Discussions By Condition: Medical Errors

Lymph Node Visible and Enlarged, CT Negative, Patient Confused!

Posted In: Medical Errors 20 Replies
  • Posted By: Anonymous
  • August 27, 2007
  • 11:36 PM

:confused: I am a 39 yr old female. About 6 weeks ago, I began having joint pain in my legs and low back. I work out, and really just attributed it to that. But, I started noticing that it wasn't only happening on days I worked out. Then the pain seemed to become more frequent, every day instead of once or twice a week. I also started waking up at night sweating. Not drenching sweats, I didn't need to change my sheets or anything. I still didn't think much of it. I finally went to the Dr. after I was washing my face and felt a lump on my neck under my left jaw. It's about halfway between my ear and my chin and once I felt it, I realized it was visible, too. It was about 3 weeks ago and it hasn't gone away, and neither have the other symptoms. So I went to the Dr. and he said it was suspect because it was enlarged, and firm and fixed, so he ordered a CT Scan. He was also concerned because my mother is finishing up with chemotherapy for Lymphoma, and she was misdiagnosed for over a year before an accurate diagnosis was made. Her bloodwork was continuously normal, and it wasn't until a biopsy was done that the lymphoma was diagnosed.

Anyway, my CT Scan was unremarkable, and I don't understand that. How can a lump that is visible and palpable not show up on a scan? The lump has actually gotten larger since I saw the Dr. a week ago, and I can feel it when I swallow. No pain at all....just a swollen or lumpy feeling in my throat. The tech who did my scan taped something over the lymph node to mark it. Could she have accidently covered it with something the scan wouldn't go through? I want to know what it is. I still think it could just be some type of infection, but shouldn't I be on antibiotics to see if my symptoms subside? The Dr. is treating it like there isn't anything else to do. No follow up, no recheck, no antibiotics, nothing. I am very confused....Any Ideas? I would be very grateful!

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  • New Info......I spoke to the Dr., and he told me that the report said there was slight lymphadenopathy. He said he was going to get a 2nd radiologist to read the scan and consult an ENT. Does this sound right.....I do feel better, but I'm still confused as to why any enlargement would be considered okay with my other symptoms and family history.?...Any feedback would still be great! Thanks!
    Anonymous 42789 Replies
    • August 28, 2007
    • 04:25 AM
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  • Hi KM39,I cringed when I read your post. especially the fact being your dr is not referring you to an ENT.that's the first thing he should've done. second, I don't think the marker the technician used to mark the spot where the enlargement is would effect the reading. they use these markers specifically for these machines to show the exact spot where the lump is so that the radiologist can specifically see the spot so it's not over looked.Did your dr order the test with contrast? some insurance companies won't authorize it with contrast until the test is performed first without contrast. does this make sense? so in reality the insurance has to pay MORE money because the intial test wasnt' able to observe the lump without the contrast and then the dr has to order it with contrast anyway.you're correct that the only way to detect a lymphoma is with a biopsy. blood work can be normal in a person and they can still have lymphoma.there are over 30 different subtypes of lymphoma's. a patholgist is the dr to find out if it's a lymphoma or not, not the ent.also, if and when you do get a biopsy of this lymph node, do NOT let them convince you to do just a fine needle biopsy. have them perform an excisonal, where they literally take out the entire mass. the needle biopsies can miss surrounding cells if they're bad cells and only collect what's obtained in the sample they chose. the sample they chose might not have been any bad cells in it, therefore causing a mis diagnosis. I"ve heard it happen from numerous amounts of patients that wound up having a form of lymphoma.oh, and another golden rule, if and when you get a biopsy, always get a 2nd or even 3rd, seperate, independent lab to read the biopsy. they can send slides of the speciman. sometimes the first patholgist can mis read the speciman, and I can understand why, because it's very tedious to read these biospies. they have to be trained and even the best ones can mis read the speciman. so always get a 2nd reading on the biopsy from a different lab and different pathologist.there are many many things that can cause a lymph node to enlarge,with lymphoma being the least one them.when mine enlarged to 6 cm, I was referred from my primary dr to an ENT who then examined me, put me on a course of antibiotic treatment to see if something bacterial was causing it, and when it didn't go down, he then sent me to for an MRI and then a Cat Scan.the reports all read suspicion for lymphoma. when I finally had the biopsy, which doesn't hurt that much by the way,and it's same day surgery in the ambulatory unit of any general hospital,the waiting for the results took the longest.my dr was fantastic and called me almost every other day at home to tell me the report still did not get back. he even had it sent to another lab without me having to ask for it because he thought at the time he took it out that it even looked like a lymphoma to him, so he wanted to make sure they didnt' make an error when they said it wasn't a lymphoma.they also test to see if it's caused by cat scratch fever and another type of parasitic disease. I can't think of the name right now. mine came out negative for these other things. my dx was" atypical follicular lymphoid hyperplasia". alot of swollen lymphnodes wind up being hyperplasia or hyperplastic.caused by our immune systems detecting some form of foreign object and the body reacts to it. it's not cancerous. allergies can cause it. a bad tooth can cause a lymphnode in our neck to swell. the nodes catch the bad things, sort of like a net would. they're doing their job so to speak. I was sent for a follow up to see a disease specialtist, or what ever you call them. (I have brain fog) which he performed an HIV test which came back negative and I was never told what to do after that or if the lymph node were to ever swell again.i had a chain of them along the neck. mine was sitting right on the carotid artery which a general surgeon does not want to touch with a ten foot pole. his exact words. My biopsy was performed back in 1997.It is now 2007 and has now returned. there are days the node is huge and then it goes back down again. the days it's big is the days I feel plain yucky. my head feels full like it does when you have a fever, I feel flu like, and down right exhausted, where all I want to do is sleep and I do. my body is telling me it needs rest and those are the days I listen to my body.I never had it re biopsied. the drs dont seem to be concerned about it.mine is rubbery and moves when you palpate it. My partner is very concerned and I don't want to lie to you, I am too. I have to just tell myself forget it and leave it alone and trust the doctors.so to answer your question, I would see another doctor. get another opinion and see an ENT and be put on an antibiotic first before they perform a biopsy.I can understand your fear especially being your mother was diagnosed with it. it's rare but does happen that two family members can wind up having lymphomas. I've read it from other people on a lymphoma board that one of their family members have it and they wind up getting it too.so it's not unheard of.some people have said they have no symtoms at all and were shocked they wound up with a dx of lymphoma. others went for years being misdiagnosed, and there are some fast growing types and there are also a form of slow growing, where they they call it, a "watch and wait" form of lymphoma. they can't treat it because nothing works to erradicate it and it's not bad enough to have to take it out until symtoms start to appear and then they do something for it. I think they call it follicular lymphoma.the cells are follicular.I find this subject so fascinating. I commend the patholgists for such a tediouis and difficult job to perform. it's not easy that's for sure. they're behind the scene and people forget they're the ones that detect the cancers. please keep us updated if you remember to. I am very curious to your outcome. I hope I was able to answer some of your questions being I personally went thru what you're going thru too.blessings,Linda
    lintek 26 Replies
    • September 9, 2007
    • 01:25 PM
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  • Hi KM39, a patholgist is the dr to find out if it's a lymphoma or not, not the ent.also, if and when you do get a biopsy of this lymph node, do NOT let them convince you to do just a fine needle biopsy. have them perform an excisonal, where they literally take out the entire mass. the needle biopsies can miss surrounding cells if they're bad cells and only collect what's obtained in the sample they chose. the sample they chose might not have been any bad cells in it, therefore causing a mis diagnosis. I"ve heard it happen from numerous amounts of patients that wound up having a form of lymphoma.oh, and another golden rule, if and when you get a biopsy, always get a 2nd or even 3rd, seperate, independent lab to read the biopsy. they can send slides of the speciman. sometimes the first patholgist can mis read the speciman, and I can understand why, because it's very tedious to read these biospies. they have to be trained and even the best ones can mis read the speciman. so always get a 2nd reading on the biopsy from a different lab and different pathologist.I find this subject so fascinating. I commend the patholgists for such a tediouis and difficult job to perform. it's not easy that's for sure. they're behind the scene and people forget they're the ones that detect the cancers. please keep us updated if you remember to. I am very curious to your outcome. I hope I was able to answer some of your questions being I personally went thru what you're going thru too.blessings,LindaHi Linda,I'm a pathologist, and I am glad to hear somebody appreciates us! We are behind the scenes. We're expected to be 100% right. It is not an easy job.You are right. Although fine needle aspiration can be used to diagnose a lymphoma, it could easily miss a lymphoma, especially a Hodgkin Lymphoma. In addition, the lymphoma can be misclassified. The overall architecture and visualization of the entire mass is often necessary to classify a lymphoma correctly. In addition, fresh tissue for flow cytometry and cytogenetics is also becoming a standard of care. Some lawyers have made a fortune suing pathologists on cases which were CORRECTLY identified as lymphomas, but with incorrect classification. The subtle differences in therapy, and a poor response to the treatment were enough to earn a judgment which could pretty much eliminate a pathologists entire life savings. The lesson here is if you are a pathologist, forget diagnosing lymphoma on needles. Although it takes far more skill to do so, and would be much more impressive when you were right, it doesn't take a lawyer much to convince juries to punish you if you were wrong. Although health insurance companies love the fine needle because of cost savings, malpractice insurance companies would probably discourage it. Going back to the original question. The CT could be negative for many reasons. First is a "Bad study." This could result from no contrast, area not included in the cuts, movement artifact etc. The second is interpretation. Small lymph nodes could be easily missed. Third is that another pathologic or nonpathologic process is palpable, such as thyroid, salivary gland, fat, muscle etc..
    Anonymous 42789 Replies
    • October 15, 2007
    • 07:13 PM
    • 0
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  • what a TREAT and an unexpected surprise to hear from a pathologist's view and expertise. Thank you for posting to us.I can't tell you how much I enjoyed reading your post and hearing your view on this important subject.I would love to ask you a question if you have the time.I had an excisional lymphnode biopsy back in 1998. the patholgists report read: "atypical follicular lymphoid hyperplasia". the one he removed was sitting on the carotid artery which made him very nervous to even biopsy it. my surgeon felt almost 100% it was a lymphoma upon biopsying it, so when he got the first report back, he wasn't comfortable with it and wanted a 2nd opinion. he stated this to me over the phone. we became very close and spoke to each other as friends do. he would call me frequently in the 2 weeks it took to get results back explaining to me how sorry he was in the length of time it was taking to get results. I was a nervous wreck everytime the phone rang and heard it was him on the phone. after the results came in, for a follow up, he sent me to a disease specialtist who tested me for Aids but it came back negative and I never went back to him after that.he never told me what to do if the node ever came back. there was a chain of nodes that were enlarged too but not as big as the one he removed. it is now 2007 and it's as large as it was back in 1998. it wax's and wanes and I"m very nervous about it but my family dr and my breast dr who happens to be a general surgeon said not to worry about it and that it feels benign.my health is not well and I've told my family dr to ck it again last time I saw him. he finally is referring me to an ENT for a needle biopsy, which I do not want. who knows? maybe the ent won't feel it's even necessary to biopsy if it waxes and wanes.main question and most important to me: do you think that a diagnosis of "atypical" can turn into a lymphoma up the road? is it possible that the former lymph node even though read hyperplastic, can have turned into a lyhmphoma now?you are the best person for me to ask this question, I just never met a pathologist to ask this question before.I appreciate your time and your thoughts. sincerely,Linda
    Anonymous 42789 Replies
    • October 16, 2007
    • 01:56 PM
    • 0
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  • I have your symptoms plus tons more, I feel your pain. My swelling is in the neck too. PUSH PUSH PUSH and always get a 2nd opinion. I am learning this now and still battling what I have. Have a PET, biopsy, and blood work. It could be lymphoma, but it could be mono or something like lupus. Kikuchi disease mimics lymphoma and it is what Drs are elaning to for my diagnosis. Its very rare but treatable!
    GRAYS5 2 Replies Flag this Response
  • Hi, I have two experiences where an enlarged lymph node meant something, but it took me a few years to figure it out myself with reading and research when my Doctors stopped after a cursory investigation. 1. I had an enlarged one under my left jaw that was there for years. My dentist told me to get it looked at. My doctor had no explanation. It turned out that I had a ruptured silicone breast implant on that side that was leaking. After having the implants removed, it went away.2. My son had a series of swollen lymph nodes on the back of his head and down his neck. He suffered often from sinus infections. The doctors offered antibiotics, but they never made any difference. I finally decided that he had enough symptoms that we needed a referral to an ENT doctor and that a CT scan was indicated. The doctor reluctantly agreed. It turned out my son had a rare disease called Fibrous Dysplasia that was attacking the bones in his face. His sinus infections were caused by expanding bone that was encroaching into his sinuses and interfering with normal draining. Luckily we got an excellent radiologist who knew what he was seeing. My son's Harvard-trained MD read the radiologist report and didn't even understand what he was reading! He said he never heard of it before. Many other specialists we talked with since this discovery have never heard of it either. After learning about this condition by hours of internet research, we were able to learn how to flush out his sinuses and get his sinus infection cleared up and his glands back to normal. Unfortunately, his bone disease has no cure at this time. But, swollen glands ALWAYS MEAN SOMETHING! Don't give up. Keep reading and searching. Be your own best advocate. Good luck!
    Anonymous 42789 Replies Flag this Response
  • hi ive been reading all ur posts, and was wondering if anyone has experienced the same thing as me, i have been feeling generally unwell for about a year and a half, it all started when i thought i was getting constant viruses due to being run down and lo imunity, then we found out we had been exposed to low levels of carbon monoxide for about 5 months, so still feeling generally drained i put it down to that, i noticed a small lump on the left side of neck, and that my breathing was getting bad and was having nite sweats, so i went to the dr who didnt have much to say but sent me for blood tests and chest xray, all that came bk was that i was post menopausal, which was surprising as i was only 40 and still having reg periods, anyway time goes on i still felt unwell breathing getting worse, and night sweats uncomfortablle pain swelling of abdomin and strange feeling left side of ribs no apertite, weight loss, the list goes on, i go bk to dr who prescribes steriod inhaler and tabs, but diagnosis, back i go again neck swelling and lumpy nodles ichy rash and feeling very unwell, dr says he cant feel lump, so i show him he says its nothing, but i say i am not right, he says tell me what you think its is. with that i leave his office, a week later im back seeing another dr who says he can feel it but i have to go back to previous dr who looked at me, the nxt day i do just that again i have to show him where it is again he says its nothing but to ease my mind he will send me for blood test, full blood, esr, and crp, he dosnt say what there for, so presently i feel ill anxious and a hypercondriac. any sugestions as to what i should do....thanks for reading i know its long winded
    Anonymous 42789 Replies
    • October 15, 2008
    • 09:12 PM
    • 0
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  • Hi Donsta08,I really feel for you. It's such a long process when the patient feels that something is not quite right with their health and the doctor winds up doing multiple tests that come back normal. meanwhile the patient is left feeling like their a hypochondriac when they're really not.I say keep pushing on and don't give up. Even if it means you have to try a slew of different doctors who will listen to you and not make you feel like a hypochondriac.You know your body best. I can't tell you how many times I've heard patients who have a form of lymphoma say " go by your instinct".I know that doctors get attitudes toward patients who come in their offices acting as if they're the doctor and they make their doctor feel they're not the proffessional and that we dont' trust their judgement.I feel that way about my family practioner now. I am going to find a new dr. because when I first started seeing this dr. he was brand new and just starting out in his practice. He used to spend quality time with me and not make me feel it's all in my head.But now that he's so busy and has more patients to see, he doesn't give me the time to go over my CT scan in depth and tries to get out of the room in the quickest manner he can so he can go and see the next patient that's waiting in the next room.I feel he doesn't really care anymore. just like you feel your first dr isn't taking what your feeling as importance. If a dr. feels he can't do anything for the patient, he usually then referrs the patient to a specialtist in the area the patient is having trouble with.I'm surprised your dr. hasn't referred you to a gastroenterologist yet.that should be the next thing to do being you have symptoms that is related to that area.another thing..... the percentage rate for a lymphoma showing up on a blood test is extremely next to impossible. It does happen, don't get me wrong. depending on what form of the 30 different subtypes of lymphoma's there are, but the chance that it will show on a blood test is not something you can rely on.I see your dr. must have run a hormone test on you to find out you've already entered the beginning stages of menopause? did he say how much hormones your producing or not producing? you can still be getting your period even though you've entered menopause.woman begin producing lower levels of hormones by the time they reach their late 30's or even sooner. we just don't know it. that's what I read somewhere.it takes YEARS for full blown menopause to finally arrive. Usually about ten years total. each woman's body is different when it comes to this matter. your periods will be getting lighter and less closer together and not last many days either. plus they won't be on time like they used to be. you'll start skipping.there are many illnesses or even allergies that will cause lymph nodes to enlarge. their job is to filter out bad things. they say woman who are extremely thin can feel their nodes more so than a person with more weight on them. the nodes have to be larger than 1 or 2 centimeters for a red flag to go up to the doctor. which would warrant further testing in their view.as people, we're taught that we should be concerned if we feel a lump or enlarged lymphnodes. usually if there's an enlarged lymphnode, small but palpable, the first step is to give the patient a course of antibiotics. Then the patient goes back for a follow up once the meds are finished. IF the node is still there, then the 2nd step is to either do a cat scan or an MRI. Then the 3rd step comes if the radiologist who reads the report says they feel it may be something, they will then tell the dr. to refer the patient to a surgeon for a biopsy. either general surgeons perform them, or an ENT, but personally I would choose a specialtist who deals specifically with lymphomas. your the patient, you hire the doctor of your choice and you pay that dr. of choice.if you don't feel comfortable with this dr and feel he or she is not listening to you, then by all means hire a new doctor who will take you seriously.I hope you find out what's causing your symptoms. I understand how dissapointing and frustraiting in can be to have to wait and go through so much testing and have nothing come up. Just because a diagnosis doesn't jump out at them right away doesn't mean there may not be something wrong. To come to a diagnosis can take a lengthy time in some cases. so hang in there and I"m here if you need to talk about it. I wish you the best outcome and hope you are able to get an answer soon.Keep us posted.sincerely,Linda
    lintek 26 Replies
    • October 17, 2008
    • 04:06 PM
    • 0
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  • hi, update on my situation, two weeks ago on a weds i went to see another doctor at my surgery my neck was swelling and feeling rubbery i felt awful, i explained again about the lump and also that my other doctor not being convinced there was one there, he felt and found it and told me i had to come bk in the morning to see my other doctor as he was dealing with me, he put a note confirming lump and says he thinks its ok , next day back with the other doctor, again i have to show him, obviously he cant see that my neck is swollen , tells me again its ok says what do think it is cancer! i sit there feeling a compltet fool, next im told to put your mind at rest i will send you for blood test if you want, next day i go to hospital for the blood tests as the day goes on my neck on the other side hurts to turn later that nite i went to a and e, i explain to the doctor he feels the lump ask if it been biopsied. no. ask y i am on asthma inhalers have i been told i have asthma. no. he then says have i heard of lymphoma, he then says he is going to give me a letter for my doctor asking them to refer me to a specialit for possible lymphoma with b symptoms, on the monday i gave the letter, on fri i get a appointment to c a haematology consultant my appointment is this thurs, the thing i dont understand is how i can have a lump for 16 months and its never been biopsied especiaaly with the other symptoms i have had. thanks to any who takes time to read this
    Anonymous 42789 Replies
    • October 28, 2008
    • 01:45 AM
    • 0
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  • Hi DonstaWhat did you find out? Please let us know.
    Anonymous 42789 Replies
    • February 2, 2009
    • 05:29 AM
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  • Lymph nodes that are swollen along with other symptoms such as fever and or night sweats should get any doctors attention. As I read through this post I was reminded of the time I had a lymph gland swollen in my left groin area. After complaining to my family doctor about it he put me antibiotics but that did nothing to resolve the issue. I made an appointment to see a gastronologist, who had treated me in the past for another issue, he immediately referred me to a surgeon for a biopsy. The gland had no signs of lymphoma , as was his thinking at the time of the referral. It was due to congestion caused by an infection which caused a blockage in the gland. The problem I had with that diagnosis is that it did not affect any other lymph glands, and I had no fever, which would have indicated an infection. So I went to a Onocologist and they ran tests, and came back with a diagnosis of CLL, (chronic lymphcytic luekemia). I was devasted. 2 weeks after the diagnosis I went back to the onocologist to see how we where going to treat this condition, which there is no cure for, and it was then that he told me that he had made a mistake and that I did not have CLL. It was a nerve recking experience, and I have learned the hard way to always get a 2nd and even a 3rd opinion on any issues that affect my health today. Best of luck.
    Thomas6655 1 Replies
    • February 3, 2009
    • 11:55 AM
    • 0
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  • Sorry don't mean to hijack thread..I also have the enlarged lymph glands, nothing shows up on CT scans, MRI etc, a lipoma found during abdominal ultrasound but I was told most people have them and nothing to worry about..(it's very painful..and something for me to worry about and cope with anyway) If you ever find the answers I would love to hear your update :)ThanksSamantha http://www.undiagnosedillness.org
    Anonymous 42789 Replies
    • February 23, 2009
    • 07:09 AM
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  • I just received a call from my PCP after having a CT scan of an enlarged lymph node just under my collar bone on the left side...it's been there for years, my doctor always seems to think I'm feeling fat tissue, but agreed to a CT scan 4 yrs ago. That scan showed several enlarged lymph nodes, the one I feel being the largest, but "not anything to really be concerned with, at this time". I wish I had changed PCP back then. Now, it's much larger and the call today was to tell me that the radiologist can see a "foreign object" in the scan, but again, "nothing to be concerned with". What?? He asked if I was a rough housing child, that something may have been lodged in my neck. Then he asked if I had ever had any radiation treatments to my neck area because my thyroid is enlarged, as he said, "almost like a goiter". So, with all of my symptoms, that my PCP says are "such an array of symptoms" with a tone of voice that makes one think it's in my head....he is asking me to come in today to see me. I have the butterfly rash an my face, my joints hurt and at the end of a day, my knees are so hot and swollen that I can barely walk, my vision is blurring and I have black floaters, fatigue...fatigue that is just almost unbearable, my hair is thinning, skin rashes...just lots of symptoms. I also have difficulty swallowing that I just ignored because I thought it was a stricture like my sister had and watching her go through the procedure to dialate it was just painful! So, I'd just rather chew everything really good and swallow fluids to wash it down. Having access to the internet has made me just crazy today. I've read all sorts of diseases that could cause an enlarged thyroid and lymph glands. I've decided to choose two separate disorders, cause the three choices for all the symptoms combined is too horrible.... :) I choose lupus and a simple oral thyroid treatment for my enlarged thyroid. If only it were that simple...to shop for disorders based on symptoms. So, if anyone has any ideas? Is it unreasonable to want the "foreign object" removed from my body? Should I see an endocrinologist? A surgeon? ENT? Psychiatrist? Thanks,Jan
    Anonymous 42789 Replies Flag this Response
  • JanI would see a surgeon. I had a 1.5 cm lymph node removed from my left neck area. I don't know the results yet but feel much better with it in a lab out of my body! I had renal cell carcinoma 18 months ago so my doctors are very cautious. I always say push for what you think needs to be done. We aren't doctors but we know our body.Good luck.Deb
    Anonymous 42789 Replies Flag this Response
  • I saw this post and thought I would mention what happened to me - I had a swollen lymph node in my groin. It was painful and slightly red. I was misdiagnosed at the ER and sent home with medicine to treat a UTI. Two days later I nearly died and went into septic shock as a result of Toxic Shock Syndrome they believe I acquired after I went into a hot tub with an open cut. They did a CT scan on me to determine if I possibly had cancer but it of course came back negative. Never question your gut feeling - I didn't and it saved my life.
    Anonymous 42789 Replies Flag this Response
  • I recently noticed a pea sized lump in the side of my neck where it meets the shoulder. Of course what is the first thing anyone does? Google pea sized lump in neck. What comes up could be Hodgkins Lymphoma. So having cancer on both sides of the family and a cousin that died from cancer in his neck, I made a doctor appointment to have it looked at. I told him that I found it just 3 days prior and was concerned it was cancer. He stated that he thought it was just a small cyst and would have the surgeon come look at it immediately if he were still around the office. The surgeon came in and agreed with the doctor that it was a small cyst and asked if I would like it removed right away. I agreed since I was already there and had taken the afternoon off of work. My doctor also stated that he would have blood work done after the lump was removed to see if maybe my iron was low or one of 4 other things that could be causing my fatigue. So the surgeon went in and cut out the lump. Much to his surprise it was a lymph node, my biggest fear. The surgeon told me it was a lymph node and that he would have it sent to pathology for a biopsy that I should have the results back by the following Thursday at the latest. That week was the longest week of my life. I had not heard back from him by Thursday, so on Friday I called the office only to find they were not opened that day. I had to wait the weekend also to find out if I had cancer or not. I called Monday morning, spoke with the nurse who was very quiet on the other end of the phone and then said, "I am sorry, but the surgeon himself will have to call you." I am thinking ok that is it, I do have cancer and she does not want to tell me. I received the call back from the surgeon hours later only to have him tell me, "I am sorry, your lymph node was misplaced and was thrown out in error." Who does that? I am only a patient and know that the little clear cups with green lids ALL go to pathology when there is a patient label on it. So then he tells me we will discuss it further when I come in to get my stitches out. I had already contacted another clinic with cancer specialists and was told that without the lymph node all they could do was to biopsy the area where the original lymph node was removed and if they found cancer they could confirm, but even if they did not find any cancer cells it would not be a guarantee that there was not cancer. They may never know without the original lymph node until another one may swell. So I asked the surgeon who removed the lymph node if he would he put in writing that I did not have cancer. He said it was in the original notes from the surgery that he did not think I had cancer. I told him it was not, that I had obtained a copy of my medical records from that day. Then I asked will you guarantee me there is not cancer? He said he can not do that without the lymph node. But he is pretty sure that it was not. I politely reminded him that he also thought it was a cyst before he actually cut me open and removed it. He apologized once again. Told me that he spoke with my original doctor and they came to the conclusion that a blood test would tell them if I had lymphoma of any kind. I could not believe this. Did he think I was a total idiot? So I played dumb and said, It will? Then why were you going to send the lymph node to pathology to begin with? Why didn't you just have them take an extra tube of blood while I was giving them samples for the other tests? He was quiet and I explained I had contacted a cancer specialist and was told there was only one way to find out possibly and that was by going through a second surgery and have the tissue biopsied. So once again he apologized and proceeded to tell me that I would not receive a bill for any of his services. Really? Wow! That makes up for everything. I am worried sick I have cancer. Have to wait 3 weeks just to see the cancer specialist to have a 2nd surgery performed and then wait for the results from that. I have suffered from stress and anxiety in the past and I can feel and see all of the symptoms coming back while going through this whole ordeal. I can't sleep, can't concentrate, my heart feels as though it is going to jump out of my chest etc..... what am I to do? This is so not right or fair that I have to suffer for a person's mistake. Had it been a tube of blood, no biggie, I have lots, I could have given them more. But a body part being removed and thrown away? I can't give them that back. It's not right at all.
    Anonymous 42789 Replies Flag this Response
  • The lymph nodes in my groins were swollen and extremely sore from early eighties until 2000, when I accidentally did something that made the swelling and pain go away in three days.I had been studying herpes viruses for a couple of years ton find out why garlic juice can make herpes outbreaks disappear for years. I also wanted to know, whether the neuropathic pains associated with herpes are really connected to herpes. I arranged a test, using myself as a guinea pig.I crushed two garlics and blended to two coffee cups of water. I then applied this solution on my skin from wist down twice every day during 4½ days. As I stated, the lymph nodes were already normal, which felt extremely strange, as I had already learned how to put my hands in the pockets, sit down or kneel without causing pain in the nodes.I didn't wash the goo off my skin because I wanted to know whether it irritates skin or not. The smell was something awful, but I didn't get any dermal reactions. The lymph vessel in my thighs became very hard, as if they were pressurized, and salivating increased with extremely strong taste of metal and sulphur. I was dysphoric and felt rotten in every way for a couple of months until the symptoms started to disappear.The lymph vessels on the left side of my neck started to swell and got very sore as well. I had been having pains in my skeletal muscles for years, they disappeared too during the test, as did allodynia, a burning tingling sensation in buttocks and thighs, that used to come every now and then.I have absolutely no knowledge of what happened, but I suspect that the sulphur compounds of garlic chelated heavy metals from my tissues, and that caused the foul taste and salivating. It is possible that the lymph nodes were just stuck, and this garlic thing somehow released the blockage, whatever it was.This happened to me a second time when I stopped using caffeine and started to develop symptoms of systemic candidiasis. I ate raw garlic 1-3 days until the candida started to disappear. I noticed only a couple of days after the first time that the lymph vessels in my belly were hard as electric cables under the skin and felt extremely uncomfortable.Check out my body cleaning diet at my blog. My pains are soon history after almost 30 years of misery.
    Anonymous 42789 Replies Flag this Response
  • I can relate to this. what ever happened?
    Anonymous 1 Replies
    • November 13, 2014
    • 06:00 AM
    • 0
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  • I share your story as well. I have had severe upper respiratory infections since 2011...CT scan states"Suspicious palpable lump, may require biopsy." Doctor did not AGREE. I let it go. 4/21/2012 I woke up sneezing blood out of my left nose only. Went to ER...My WBC was 2.6 * The ER tested me for Aids and Mono and the like. All negative. Sent me home even with a low WBC. One month later I went back to the ER again same symptoms with chest pains and trouble breathing. Sent me to an ENT that diagnosed me with ACID REFLUX! Such garbage since my lymph node was 3.5 cm. I had to go back to hospital and get their help in getting this Ear Nose and Throat Doc to order said biopsy. He does not honor my appointment and just called it in. Next call I get is a call to schedule biopsy (FNA) It comes back Negative for B and T cell lymphoma. Now it's 12/2015....And it's much worse. This mass I feel is under my left ear canal behind my jaw . I can feel when I swallow and I am unable to turn my head.
    Anonymous 1 Replies
    • December 2, 2015
    • 07:16 PM
    • 0
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  • http://forums.lymphoma.com/showthread.php?t=552&page=43

    Have you found anything new out yet?
    Lorac40 1 Replies Flag this Response
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