Missed diagnosed for years and years and so sick with extreme fatigue, pain, stomach problems..
Lets start in 1992 Crohns they said or irritable bowel syndrom...
That seemed to get better cause I cut out the carbs and ate protien....
Lived with extreme fatigue and pain for years and years just got so bad this past year....
In Sept 2004 I was so sick I went to the doctors and was sent to take some blood tests a week later the doctor called and said he need to see me right away. When I got there he said that my blood counts were so low he was amazed that I was not dead he looked at me and said that I was extremely sick and that my blood counts were so low that the pathologist called him and said that this lady is extremely sick and he was sending my blood out to be tested for Lukemia.. Blood counts were at 80 and normal is above 120.... Lukemia test came back negative..
The reason I went to the doctors in the first place was because I had these sores all over the top of my head. There were about 20 and they were bleeding and sore and never seemed to heal... They were causeing extreme pain and headaches..
I was then sent to a dermitologist and perscribed steriod lotion to put on. and Antibiotics...
Neadless to say I have been on antibiotics for 3 years straight because these lessions on my head have been spreading to my face neck and back.. The antibiotics have help for the few weeks I used them but about two weeks later the lessions became so sore and red all over again..
As of Feb 2006 I was hospitalized over and over again with my Lymphnodes so swollen in my throat and neck and back of my head that they tested me for Non-Hodgkins Lymphoma and the doctors suspected that is what I am developing but the anitbiotics have made them go away and cancer doesn't get better with anitbiotics one dr said..
I have choked on my foods and been so sick and as of Feb of 2007 my chest has been hurting so bad that it feels I cant breath.. Drs in emergency said it was around my heart and lungs and it was called pleursy and that is a symptom of Lupus.. well they perscribed me anti- inflamitories and to take them as It hurts.. So I have another symptom that has gotten worse and worse and Now I know it is Lupus...
So There is now cure.. My body has taken it upon itself to attack itself..
and kill by inflamation...
There has to be something better to do..
Well I started some natural alternatives.. Been Juicing fresh fruits and veggies cutting out harmful toxins that are in our foods.. Making fresh veggie soups and rinking the liquids all day..
YOu see My daughters 8th birthday last week and I just felt like I was going to die cant even function with the extreme pain and sores and weakness.. it was sad at Easter I couldn't even sit and enjoy supper with all my kids. Had hit the bed with chest pains and dizzyness.. As the years go by Im worse and worse.. Been on some forums for Lupus and these peeps with Lupus are so sick...
So with that said YES after 3 weeks of changing what and how I eat. My lympnodes are gone not swollen anymore and my extreme weekness and fatique are now just tiredsome.. I am able to sit up and enjoy live a little better.. I believe that its gotta be up to me how I wanna live this life..
Lupus Get of my back..
Thank you for listening to me... I feel alone here sometimes even though there are lots around me to help me.. I still feel alone..
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