My son is 19 months old, and we have recently been told that he has a large hole in the heart (VSD) and needs a heart by-pass. Since he has been a baby he has been in and out of A & E with breathing difficulties. My local GP found a heart murmour at 18 months old and refered me to a specialist. In the 19 months we have been told he had asthma and have been treating his condition with inhalers, which I have now found out are dangerous as this opens all airways and allows more blood to flow through to the lungs meaning he could have drowned. He has non-permanent (i am led to believe) damage to all organs. He has dipping above stomach due to lung damage. He was diagnosed with pnemonea at the same time as the VSD. The specialist said his pnemonea had been there a long time, but all this time my GP and hospital staff have been saying he had a virus. Since researching this condition, I have not found any mums with this late diagnosis. Most baby's heart defects have been picked up either in the womb or at a few weeks old. This should have been picked up at the latest at his 6 weeks check. I am considering either making a complaint or taking it further in some way. My local doctor has not apologised. I just don't want to rock the boat before his heart by-pass surgery. Any suggestions?
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