My first semi major illness that was misdiagnosed was endometriosis(Sorry about the spelling). I first started showing symptoms within a year of my first monthly cycle(It was a week after my tenth birthday that I got my first period). I would have such sever pain every time I had my period that I would literally pass out and start convulsing because I was literally going into shock. My mom took me to see an obgyn after she discovered me unconscious in the bathroom convulsing and covered in sweat. The doctor told me that I was just young and wasn't used to the pain that comes with having a monthly cycle and that it wouldn't bother me so much after I had a few more periods. For the few years my mom would just keep me out of school for the first couple of days of my cycle when the pain was the worst. Heck, to be honest if she didn't keep me home my school would end up calling her before lunch to help carry me out of what ever class I managed to make it to before the convulsions started(I wouldn't be able to stand of my own power). When I was 16 I brought up the sever pain to my OBGYN again and she once again said that I just needed to "get used" to what I period was like. She did pull my mom aside and recommended that she take me to a psychiatrist because I was obviously faking my symptoms and I needed help. Needless to say when my mom told me what she said I stopped bringing up the pain to anyone but my immediate family that had seen just how bad it was... Fast forward to when I was 20 years old and I found out that I was pregnant. I was really excited about the baby until everything came crashing down around me when I was only a month and a half along. I got sever abdominal pain and ended up going to the emergency room just to find out that I was having a tubal pregnancy. I had emergency surgery to remove part of my fallopian tube and low and behold during the surgery my doctor found massive amounts of endometriosis.(The look on her face when she had to admit that there really was something wrong with me after telling my mom all those years ago that I was making it up was absolutely classic!!!) Sadly she removed all that she could but it still didn't even slow the pain down even a little bit. Since my endometriosis spread for so many years my only option at this point is a full hysterectomy. I will be having the full hysterectomy this upcoming spring.
My second semi major illness that was misdiagnosed was Diverticulosis/Diverticulitis. Over approximately 2 1/2 years I was in and out of the hospital every other month with infections, diarrhea, and sever abdominal pain. I was hospitalized, placed on high powered iv antibiotics and told I was having sever kidney infections, pelvic inflammatory disease, and urinary track infections. The only problem was that the infection, pain, and diarrhea was lasting longer than it should and by the third or forth week of the infection I would be kicked out of the hospital and called a faker. The doctors would say that my infection should be gone by then and that there was no reason for me to be treated any further because those types of diseases/infections just plain don't last that long. The last time I went to the hospital with the usual symptoms I went to a hospital in the next city over hoping that new doctors would have a new perspective. Well I was in luck because they did and on my first day they called in a GI specialist who looked at my ct scans and then preformed a colon exam with the camera thingy and figured out that I had diverticulosis and at the time a severe case of diverticulitis. They wanted to remove a large chunk of my intestines to "cure" me of my affliction but I refused to be 23 and have a colostomy bag!!! Now that I know what is wrong with me I watch my diet and make sure to consume large amounts of fiber and it has really helped. I haven't had to be hospitalized since I was diagnosed. What bothers me the most about everything that I went through is the fact that more than once a GI specialist was called to look at scans of my intestines and more than once the specialist would say that it looked like I had Diverticulosis but I was just way to young for that to be true!!!
The reason I wanted to share my story is I am hoping that my story helps someone else out. Well I also have to admit that it feels really darn good to be able to talk openly about what I went through...
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