Discussions By Condition: Medical Errors

I am feeling very sick, help...

Posted In: Medical Errors 10 Replies
  • Posted By: Anonymous
  • March 20, 2007
  • 02:36 AM

Hi - I have been feeling very sick the last two months. Let me tell you a little about what's been going on with me. I'll try to be brief, don't know if I can.

About 25 years ago, I started to have severe emotional problems and weight loss and weight gain out of the blue. I had gone to several docs woh said that I was young, there could be nothing wrong with me except stress. I watched what I ate, exercised but was still an emotional mess and couldn't lose the 20lbs. I gained. I'm tall so it didn't show up so much.

I married and 9 months and a 120lb. wt. gain since the first night of marriage, I gave birth to a healthy baby boy. I tried losing the weight afterward but couldn't. Finally, I was diagnosed with hypothyroidism and put on Synthroid. Had baby no. 2 and gained 100 lbs. (this was after I had lost a lot of weight).

I couldn't lose weight while nursing but lost a lot of weight after I quit nursing. Exercised, dieted, and only could get down to a certain weght and my belly pooched out which I attributed to having children.

5 years later, had baby no. 3. The dizzy spells set in and I was back up those 100lbs. Couldn't lose weight while nursing, but after I quit I started losing weight again. I wasn'teven trying this time. It just fell off. I started to look really good.

Then, I started gaining weight again. Over the years my thyroid dosages got higher and higher.. Finally, Cytomel was added to the treatment. Went to several docs who said I was insulin resistant. Tried to eat properly only to gain more and more weight. Went to see a doc in L.A. and was diagnosed with Cushing's disease.

Had 2 tumors removed. Nothing changed. Still look Cushingnoid. Here is where I am at today, I'm on .3 Synthroid, .75 Cytomel.

today, My heart is beating fast, my pupils are dialated. I have a killer migraine and am nauseated, and my body is swollen and I don't feel like I can pee. I am urinating though. My urine is light in color. I'm emotional and am feeling chilly at the moment. help. It's awful. I feel absolutely awful. Anyone? Please, help.

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10 Replies:

  • I don't know what happened but today, I'm feeling better. I awoke during much of the night to release the water retention. Fell asleep about 8:30pm and kept waking up every 2 to 3 hours to urinate and just couldn't sleep during those moments. I'm still swollen today but I am watching what I eat, eating light (medifast) and drinking some water but not too much. I feel quite out of breath today but amazingly, sort of refreshed. Whatever this is, it takes a lot out of me. I was deeply depressed with this water retention and wanted to cry a lot. I felt like I was going to die. I don't want that to happen just yet as I have 3 beautiful children to watch grow up!I would appreciate any feedback from anyone!
    Anonymous 42,789 Replies Flag this Response
  • Helloooooo? Anyone?
    Anonymous 42,789 Replies Flag this Response
  • I am sorry to hear of your troubles and it sounds like your body is way out of balance. Have you considered trying an alternative approach to treating your illness? A good naturopath or Doctor of Oriental Medicine or NAET practitioner may be very helpful for you. I would suggest looking into nutritional deficiencies and food intolerances as it seems to be a possible source of your problems. Do you eat a lot of protein? An alternative practitioner often has much more experience with this and they may be able to point you in the right direction. I would start keeping a food diary and write down EVERYTHING you eat and drink on a daily basis. At the end of the day write down any symptoms you are having. You may be a connection there that would be overlooked. I find this to be very helpful. Visit www.naet.com and www.acufinder.com for info on these forms of medicine. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • That sounds like at lot of thyroid hormone has your doctor checked your free T4 and T3? Too much thyroid hormone can be just as bad as not enough I am also on both Eltroxin (like syntroid) 0.1 and cytomel 0.25. You might ask about Armour Thyroid (contains T4 to T1 but doses are harder to control). I know they don't like prescribing this any more but if you have having problems converting T4 to T3 which is normally why they give cytomel you may not be converting it to T2 or T1 which are hormones they still haven't figured out, they don't know what they do. I know some people need more then others but you doses sound very high and I know another women here who had hyperthyroid and her symptoms included high heart rate, fatigue and inability to loose weight. Your more recent symptoms do sound diabetes/insulin related but I don't know much about that myself.
    Kyanite 3 Replies Flag this Response
  • yes, it\'s a good idea to second guess the medications you\'re given. fact is, sometimes you\'re getting overdosed or even given something that has side-effects worse than the problem you\'re trying to cure!good luck!
    Anonymous 42,789 Replies Flag this Response
  • It seems like you could have a psychiatric disorder, such as atypical depression or bipolor disorder. You mention over and over about your emotional distress, and depression can cause debelitating physical problems too. I suffered from MDD for many years and was hospitalized 4 times, so I can relate. It would be worth talking to a psychiatrist about, once you rule out other possible issues such as a thyroid disorder.
    Anonymous 42,789 Replies Flag this Response
  • Hi and thanks everyone for the replies. I am doing ok except that I had a relapse a couple of days ago. I'm pretty sure that the Cushing's tumor that wasn't removed is kicking in again. I was on a high protein diet but I have added a few more carbs in the last two days. I'm still swollen and am perspiring again which is a sign that the adrenals are doing something and perhaps doing too much in the way of cortisol production. I have heard that if you're taking too much thyroid that it can slow down weight loss as well instead of speeding it up. I'm interested in finding out more about T-1 and T-2. I've been researching this off and for a few years. As far as depression goes, it goes along with Cushing's. I just didn't understand what was happening to my body a few days back. I'm so frustrated with everything that is going on with my body. I hate leaving the house because of the way I look and my emotions are all over the place. I cry easily whether it's good new, bad news, or just talking in general. Right now, I have no emotion. It comes and goes. I'm afraid sometimes that I'm not going to "make it". I walk around and do things with my kids but then there are times when I just have to sit and take it easy. I don't like it.I started taking DHEA (natural), vitamin supplement, adrenal support with vit. C, a supplement for insulin resistance, and marine oil. I will start on progesterone on the 12th day after the 1st day of my last period. So, on the 15th is when I will begin that. I'm also on .6 of Genotropin (growth hormone). That's a lot of stuff, eh? I do like the idea of trying Oriental medicine, so I'm going to try those websites. I have tried acupuncture once before but after a month, the needles drove me crazy!! I need to find something to get my body back into balance again.
    Anonymous 42,789 Replies Flag this Response
  • Did they remove two adrenal tumors? I have adrenal tumors. Wondering if you are on replacement meds for adrenals. If it was Cushing's, did they remove pituitary tumor?
    Anonymous 42,789 Replies Flag this Response
  • That's a lot of stuff, eh? I do like the idea of trying Oriental medicine, so I'm going to try those websites. I have tried acupuncture once before but after a month, the needles drove me crazy!! That is why I like NAET - it uses acupressure, and is noninvasive yet very effective. A good practitioner will perhaps be able to shed light on the cause of your Cushings and hopefully help to regulate your cortisol levels. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • You might want to get checked out for celiac disease. Requiring higher and higher doses of thyroid meds is a red flag that you probably are not absorbing meds or food properly. I just recently read a medical article that stated doctors needed to test patients for celiac who were resistant to their thyroid meds.Many doctors will tell you that since you are heavy that you couldn't possibly have this autoimmune disease, - NOT true, person can be rail thin or obese and still be a celiac. To get checked out you need to have a celiac blood panel done that includes Total IgA, IGA, IGG, and VERY important - TTG ( total tranglutaminase) and the endomysial antibodies. All of these tests must be done to be accurate. Some docs for whatever reason do not want to order the entire panel - insist that you want all tests done.Celiac disease is an autoimmunde disease that means you cannot eat wheat, rye, barley, and contaminated oats (gf oats are available). Your immune system recognizes the proteins in these grains as enemies and in turn begins to attack the small intestine thus causing damage to its absorptive surface. The small intestine is where you absorb your nutrients and so a majority of celiacs end up malnourished (despite obesity) and always have problems regulating thyroid medication as well as insulin dosages.A recent study showed that 1 out of 133 people are celiac. Many of these people are running around feeling very ill and have been to lots of doctors. This hereditary problem is easily missed and misdiagnosed because it mimics many other illnesses including bipolar, irritable bowel syndrome, anxiety/depression, chronic fatigue, etc. Sometimes anemia and osteoporosis are the only clues that a person is celiac.Obvious symptoms for the textbook celiac can be diarrhea, constipation, bloating, gas, stomach pain/cramps. However, a significant number of celiacs do not display the aforementioned symptoms.Hope this helps,Lee
    Anonymous 42,789 Replies Flag this Response
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