I was diagnosed with colon cancer in 2004. The surgeon didn't agree and said it looked like diverticulitis to him. He had to go with the pathology report though. I had 6 months of chemo. I went for check up and tests until September 2007. At that time I was told all looked good and I wouldn't have to go back for a year. In January 2008, just 4 months later, I was back in the hospital with the same stomach pain. I had surgery and that surgeon went and told my family that the surgery went well and there was no signs of cancer. A few days later, he came and told me that the pathology tests showed cancer. I did not have chemo. In August 2008, I again had an attack. More surgery. This time surgeon #3 told me that I was stage 4 and didn't have long to live. I developed infection a few days after coming home and ended up in the hospital for several weeks. I also developed a fistula. In my search to have it fixed, I ended up at a cancer center several hours from my home in March 2009. I took my medical records with me. That doctor told me that I never had colon cancer, that it was appendix cancer!( the surgery I had in 2004 was to remove the appendix, which had burst and the surgeon had found a hole in my colon.) He said it was in the pathology reports. When I question my doctor here about it, he said that the doctor shouldn't have told me that. The fistula finally healed on it's own over a year ago. I had one 46 hour round of chemo in April 2009, but had a bad reaction that put me in the hospital for a week. I told them no more chemo. I have had cat scans, x-rays and tons of blood work and there is no sign of cancer. My liver, kidneys, bladder and lungs are all clean. I do have a hernia from all the surgery on my stomach, but am having no problem with it. I feel good for someone who didn't have long 3 years ago. I really think they misdiagnosed me. How do I go about getting re-diagnosed?Reply Follow This Thread Stop Following This Thread Flag this Discussion
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