Discussions By Condition: Medical Errors

HEART/Circulation/aches

Posted In: Medical Errors 9 Replies
  • Posted By: Anonymous
  • April 21, 2007
  • 02:57 PM

I'm 28 years old and have an irregular heartbeat and MVP. I could not tolerate any exercise other than walking since I was 23. If i exercise, I get squeezing chest pains, the palpitations get out of control and I am lightheaded.

At age 24, beginning of summer, I quit smoking and went on a diet. i cut out sugar, and cut back on carbs. I began drinking diet sodas. When I drank them, I would feel numbness/tingling in my feet, hands and head., but I thought this was normal. The sensation would start when I had drank about half the soda, and would go away about 10 minutes after I finished drinking it. About a week after I started drinking them, I noticed that the numbness would come even when I wasn't drinking them. And my legs would fall asleep if i had any pressure on them. Then I went off my diet (after I had lost about 10 pounds) and ate the way I did before...sweets, fatty foods, etc.
I then began experiencing crazy heart rhythms, even though I hadn't exercised. I also started having chest pains--for no apparent reason.

i went to a cardiologist. He told me i was imagining it, but offered me medicine.
I tried all the medicines they could offer me, and they only made my chest pain worse. (also made my blood pressure extremely low, then sky high when I came off of it)

My circulation became VERY bad after I tried all those medicines. I couldn't wear a purse on my shoulder without cutting off circulation on my arm. I couldn't read a book laying in bed because bending my arm up would cause the blood to stop flowing from elbow up. I couldn't drive because any pressure on my thighs would cut cirulation off down to my toes. I couldn't go to class because I couldn't sit in the seat. I couldn't wear socks because I would lose circulation in my feet.
All I could do was lay flat on my back on my bed. This lasted nearly a whole year.

At this same period of time, I couldn't walk fast or even go slowly up stairs without my heart racing. I would often have my heart rate stuck at 146 for 24 hours at a time. I had sharp pains that would flash in my fingers and my toes, and also in my head. They were almost constant.

I couldn't hang out with friends. (I was confined to my bed.) I couldn't make the drive or flight to see my family. I couldn't pay to go to a doctor again. (and I'd already tried all the medicine anyways) I couldn't listen to music or watch t.v. because any slight excitement would cause waves of adrenaline to shoot thru my body giving me butterflies in my stomache and a racing heartbeat that would last....forever it seemed.


But the worse part was...nobody could see that i was sick. I wasn't in a wheelchair. I looked healthy. And I had no diagnosis. I had no support. I had nobody who believed me. This was truly the worste year of my life.
I was planning on getting a gun...

Anyways, I started smoking again, and the symptoms immediately began to improve. It took another whole year before the circulation got completely better. My heart rhythm stabalized and I was feeling great. (I gained back all my weight though)

I had 1 year of awesome health. (but I continued to smoke) I even exercised with very few palpitations. I lost about 20 pounds in this year eating healthy foods and riding my bike. I treated this time as a 2nd chance at life. I couldn't believe my luck. I was out every day enjoying life to the fullest.
Then, one sad day, last June, I went off my diet and binged. I ate until I was going to pop...then some more. And i did this for about 3 days in a row. On that 4th day, I began having the sharp pains in my head, hands and toes. I must have knocked something off balance or triggered something. Anway, I have had those pains for the past year.

2 months ago I quite smoking for 15 days. My palpitations worstened each day and became absolutely horrible. I was also having very bad squeezing chest pains that got more frequent with each day i didn't smoke. So I began smoking again...and within just 1 day my heartbeat became normal again and chest pains went away.

But about 2 days after i began smoking again, I suddenly got very bad aches in my muscles and joint pain. So for the past 1.5 months my whole body aches so bad I cannot even go grocery shopping without using a wheelchair. I get intense headaches that last for about half the day. i still have the sharp pains in my head, hands and feet. I have extreme fatigue, especially in the morning.

And 2 days ago my circulation problem came back again too. I was driving and my legs began to fall asleep. So i put the car on cruise control and put my feet up on the seat to take the pressure off the backs of my thighs.

Yep, so this is my life. I've been tested for just about everything you can imagine during the past month. Everything comes back as negative.

How difficult life can be at times. How wonderful it can be with good health! What I wouldn'd do to have good health again. But it is impossible to figure any of this stuff out. Soooo frustrating. I won't live like this.

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9 Replies:

  • I am so sorry you are in such pain. Have the doctors considered fibromyalgia? It seems to be a disorder that has multiple symptoms but hard to really diagnose or prove that you have it. You sound like you are at the end of your rope, but please don't consider taking your life. Have hope and faith and I pray that God will help you find the answers you need and help to heal you.
    Anonymous 42789 Replies
    • September 11, 2007
    • 03:53 PM
    • 0
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  • My heart goes out to you. My symptoms are different than yours but the effect on my life has been the same. There are some mornings I am disappointed that I woke up, knowing I was probably going to hurt the majority of the day. Sleep is the only way to escape it. Please have faith and don't give up, and I'll do the same. I will say a prayer for you.Steve
    stevierayp 9 Replies
    • September 20, 2007
    • 00:28 AM
    • 0
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  • Your symptoms sound similar to mine, though i have never been diagnosed with any heart conditions. I have had severe episodic joint pain for 3 years and I have stumped my rheumatologist. At first they thought it was Lupus, but then my blood work went back to normal. Along with joint pain, I have circulation problems. Strange things, like my pinky-toe or just my knee would fall asleep. Now, my hands, my arms, legs and feet fall asleep with no pressure or obvious cut-off in circulation. Sometimes I wake up in the middle of the night because one or both of my arms are asleep. When I get cold, I get cold to the bone and am not able to warm up unless I sit in a hot bath. My joints radiate cold. When the weather gets cold, waves of pain surge through my joints. It seems as though it may be the 'change' in temperature because when the temp stays very cold, the pain subsides. I live in Minnesota, so I can be in severe pain for a week or better. I recently saw a holistic doc at the U of M. She says I'm toxic. I have always had food issues and she says I have "disordered eating". So, between my food issues, smoking, and generally not feeding my body as well as I do my mind and my spirit, here I sit. So what can being toxic do? *Migraines *Fibromyalgia *Generalized Arthralgias *Chemical sensativities *Chronic Fatigue How to reduce toxicity? avoid foods high in fat, additives and preservatives (which is pretty much everything at your normal food store), eat organic and drink water. Take the quiz and if you answer 'yes' to 3 or more, I would see a holistic doc to get checked out:1. Are you sensitive to chemicals, car fumes, odors, perfumes, or fragrances? 2. Are you becoming increasingly sensitive to caffeine, alcohol, or medications? 3. Do you have bad reactions to monosodium glutamate (MSG); foods containing sulfites, such as wine and dried fruit; salad bar food; beverages that contain caffeine; or diet sodas? 4. Do you suffer from fibromayalgia, chronic fatigue syndrome, cancer, or an autoimmune disease? 5. Do you have acne, eczema, hives, or unexplained itching? 6. Do you suffer from fatigue, lethargy, joint pains, muscle aches, or weakness? 7. Are you subject to irritability, mood swings, anxiety, depression, poor concentration, a "spacey" feeling, or restlessness? 8. Do you get headaches, a stuffy nose, frequent sinus infections, or allergies? 9. Do you suffer from nausea, bad breath, foul-smelling stools, a bloated feeling, or intolerance to fatty or starchy foods? 10. Do you keep getting sick? 11. Do you drink more than two alcoholic beverages a day? 12. Do you ever use over-the-counter, prescription, or recreational drugs on a regular basis? I really hope you find some relief and a doc that listens to you. Western medicine hasnt caught up with the times as they still write women off as hysterical. (I hate that word) I watch a lot of "Mystery Diagnosis" and the key is to not give up on yourself even if doctor after doctor has.PeaceLisa
    WyrdSister 1 Replies Flag this Response
  • Thanks for your reponse.I do fit into some of those....don't eat right, or exercise enough and I do smoke.Thanks for your time.Steve
    stevierayp 9 Replies Flag this Response
  • I think your drs need to look into Porphyria as your story sounds so much like what other porphyria patients are going through. Check out the stories of porphyria patients below... see if they seem similar to yours. There are 8 kinds of porphyria. Experiences of Porphyria British Porphyria Association. UK support organisation for people with Porphyria. ... BPA Member's Experiences. Quick links:. Elizabeth's story (AIP) ...www.porphyria.org.uk/stories.htm Welcome to the American Porphyria Foundation The American Porphyria Foundation (APF) is dedicated to improving the health ... Newly Posted Member Story—Read another courageous story in our Member Story ...www.porphyriafoundation.com/ Welcome to the American Porphyria Foundation The American Porphyria Foundation (APF) is dedicated to improving the health ... Newly Posted Member Story—Read another courageous story in our Member Story ...www.porphyriafoundation.com/ APF Member Stories Because of the many awareness programs the APF has instituted within the medical community, porphyria is being diagnosed more often. www.porphyriafoundation.com/pat_stories/index.html Scientific Am. Article on porphyria:http://www.sciam.com/article.cfm?id=born-to-the-purple-the-st&sc=rss If you test positive, hang in there. Things can get better if you learn to avoid the things that trigger your painful symptoms. Some common triggers are certain meds, alcohol, sulphites, certain foods/spices/supplements, infections, stress Hope you feel better soon. I am sorry your drs haven't figured out what is making you so sick, unfortunately such pain in the abdomen and chest can be hard to dx sometimes. tdwi;)
    TaylorDeelwithit 382 Replies Flag this Response
  • Panic and stress I've been told also are the cause of chest pains. I was once diagnoses with Arythmia, heart murmer, valve problem, angina. Angina I was told is basically "chest pain" "heart pain" related. I bought herbal remedy "Hawthorne", got off all alcohol, went back to being a vegetarian. No meat, fowl, and no milk. I eat soy meals, try to stay with the health food store, eat wheat bread or the like, drink juices and got off the meds. I refused the heart meds the specialists or ER's wanted to give me. I also let go of undesirable relationships or people that terrify, scare, victimize me in any way whether physical or verbal. Terrible cruel people have ways of making life harder on others whether it's a slumlord, a paranoid person, or an outright sarcastic type cruel alcoholic imbecile type. They are all undesirable when working on healing and get rid of them out of your life. Don't hold onto anyone who causes distress and unnecessary drama. Drama kings like to hurt and incite anger, hate, and see action for the pure fun of it. Sort of like gossip magazine writers who consistently lie about starts to elicit sales and unneccessary drama. Fear may play a part in heart related distress or things that happened during childhood. Learning how to cope and get through it whether going outside in a park or shopping mall could be part of the process of healing. Have comforting freinds accompany you to places where you feel a bit of fear. Definitely not drinking and taking alot of fatty foods could be always a good helpful thing. I don't believe in the one glass of red wine idea. Alcohol is a very strong chemical, smells like ***l, and can in no way be good for anyone. Better drink grape juice which can have the same good overall relaxing effect of nature. Alcohol can speed up and disregulate the heart beat as it does the mind. The alcohol industry will try to cover up for the disabilities and hardships it does cause and even doctors are blinded by the overbearing dictatorship of the alcohol industry to admit that alcohol and drinking it is just no good for anyone! I got high and a good feeling from a cup of pomegranate juice and grape juice. SEarching for diagnosis won't help you heal either. It will just label you so in a way consider yourself lucky in this respect. Although if you have some physcial adnormality with your heart is it is especially crucial to get a full image and specialist to work on your heart (that is if a valve is wired wrong, etc...)... Hawthorne Berry and getting enough Potassium is also essential. I had to learn how to start eating bananas. Otherwise they have horse sized Potassium vitamin pills you can take. Pottassium helps control the heart muscle and may be lacking in your diet. The lack of potassium can make you faint, feel faint, feel week and tired, and just make you collapse if you are down to near zero on your Potassium levels. I went through this as well. Make sure you get alot of Potassium and see if there is enough change. Oftentimes a doctor may overlook your vitamin needs or vitamin lacks. You can get a full blood test to see your vitamin levels.
    DebbieD 4 Replies Flag this Response
  • Oh I forgot to mention I am completely healed of all those heart diagnosis over that time.... A number of tests confirmed my EKG is perfect, my pressure, and when I went to a specialist to do a scary inside heart sort of ultrasound he said I was fine. This relaxed me even more at the time and started me on my way to recovery. All that Hawthorne, my extra Potassium vitamins I take every day, my multi vitamin, my vegetarian low fat diet, staying away mostly from cookies, sugars, cakes, greasy foods, eating some virgin olive oil once in awhile, no alcohol, and excersize is all part of the big picture. Being diagnosed with four heart diseases well that isn't a fun thing. Being afraid to suffer pain is also not a fun thing. Recovery is a great thing. If I can fully recover from all that junk you can too! I'm extremely confident in my recovery and know that If I also stay with relationships and freinds that are kind, considerate, honest, loyal is also part of the big picture. Being around a sabor tooth tiger who wants to chew you apart constantly well that may cause a problem in any normal person.
    DebbieD 4 Replies Flag this Response
  • I'm 28 years old and have an irregular heartbeat and MVP. I could not tolerate any exercise other than walking since I was 23. If i exercise, I get squeezing chest pains, the palpitations get out of control and I am lightheaded. At age 24, beginning of summer, I quit smoking and went on a diet. i cut out sugar, and cut back on carbs. I began drinking diet sodas. When I drank them, I would feel numbness/tingling in my feet, hands and head., but I thought this was normal. The sensation would start when I had drank about half the soda, and would go away about 10 minutes after I finished drinking it. About a week after I started drinking them, I noticed that the numbness would come even when I wasn't drinking them. And my legs would fall asleep if i had any pressure on them. Then I went off my diet (after I had lost about 10 pounds) and ate the way I did before...sweets, fatty foods, etc.I then began experiencing crazy heart rhythms, even though I hadn't exercised. I also started having chest pains--for no apparent reason.i went to a cardiologist. He told me i was imagining it, but offered me medicine.I tried all the medicines they could offer me, and they only made my chest pain worse. (also made my blood pressure extremely low, then sky high when I came off of it)My circulation became VERY bad after I tried all those medicines. I couldn't wear a purse on my shoulder without cutting off circulation on my arm. I couldn't read a book laying in bed because bending my arm up would cause the blood to stop flowing from elbow up. I couldn't drive because any pressure on my thighs would cut cirulation off down to my toes. I couldn't go to class because I couldn't sit in the seat. I couldn't wear socks because I would lose circulation in my feet. All I could do was lay flat on my back on my bed. This lasted nearly a whole year.At this same period of time, I couldn't walk fast or even go slowly up stairs without my heart racing. I would often have my heart rate stuck at 146 for 24 hours at a time. I had sharp pains that would flash in my fingers and my toes, and also in my head. They were almost constant. I couldn't hang out with friends. (I was confined to my bed.) I couldn't make the drive or flight to see my family. I couldn't pay to go to a doctor again. (and I'd already tried all the medicine anyways) I couldn't listen to music or watch t.v. because any slight excitement would cause waves of adrenaline to shoot thru my body giving me butterflies in my stomache and a racing heartbeat that would last....forever it seemed. But the worse part was...nobody could see that i was sick. I wasn't in a wheelchair. I looked healthy. And I had no diagnosis. I had no support. I had nobody who believed me. This was truly the worste year of my life. I was planning on getting a gun...Anyways, I started smoking again, and the symptoms immediately began to improve. It took another whole year before the circulation got completely better. My heart rhythm stabalized and I was feeling great. (I gained back all my weight though)I had 1 year of awesome health. (but I continued to smoke) I even exercised with very few palpitations. I lost about 20 pounds in this year eating healthy foods and riding my bike. I treated this time as a 2nd chance at life. I couldn't believe my luck. I was out every day enjoying life to the fullest. Then, one sad day, last June, I went off my diet and binged. I ate until I was going to pop...then some more. And i did this for about 3 days in a row. On that 4th day, I began having the sharp pains in my head, hands and toes. I must have knocked something off balance or triggered something. Anway, I have had those pains for the past year. 2 months ago I quite smoking for 15 days. My palpitations worstened each day and became absolutely horrible. I was also having very bad squeezing chest pains that got more frequent with each day i didn't smoke. So I began smoking again...and within just 1 day my heartbeat became normal again and chest pains went away. But about 2 days after i began smoking again, I suddenly got very bad aches in my muscles and joint pain. So for the past 1.5 months my whole body aches so bad I cannot even go grocery shopping without using a wheelchair. I get intense headaches that last for about half the day. i still have the sharp pains in my head, hands and feet. I have extreme fatigue, especially in the morning. And 2 days ago my circulation problem came back again too. I was driving and my legs began to fall asleep. So i put the car on cruise control and put my feet up on the seat to take the pressure off the backs of my thighs. Yep, so this is my life. I've been tested for just about everything you can imagine during the past month. Everything comes back as negative. How difficult life can be at times. How wonderful it can be with good health! What I wouldn'd do to have good health again. But it is impossible to figure any of this stuff out. Soooo frustrating. I won't live like this. try looking up diffuse idiopathic pain syndrome in the internet search engline my daughter had simular symptoms to yours for 3 years she is now fit and well hope you get better soon good luck !
    Anonymous 42789 Replies Flag this Response
  • I have one suggestion - quit smoking and instead chew nicorette gum. that way you get your nicotine but not the 127 other chemicals you're inhaling.
    roccos 3 Replies Flag this Response
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