I have been diagnosed. But I thought I would post on this site, to make others aware of this condition. I was diagnosed about a year and a half ago with pseudotumor cerebri. I was going to the doctor with severe daily headaches, and my vision was blacking out with up and down body movements. Of course the doctor immediately assumed I was having migraines. They gave me and MRI (which comes out normal with this condition). About 8 months later, I went to my eye doctor for a routine appointment, and she told me I had pappiledema, which is swollen optic nerves, caused from pressure in the brain. Long story short, I went back to the hospital, where they did a spinal tap and realized the pressure was about 3 times that of what it is normal. This is caused by the body's inability to absorb cerebral spinal fluid.
The reason this is so important for people to know, is that this is a very rare condition, and doctor's usually don't diagnose it quickly. If it goes untreated, you can become permanently blind. So if you are having any of these symptoms, please, be aggressive in seeing that your doctor is checking every possibility. Do your research. It's not "just migraines."
On a positive note. There is treatment. And it works weel for most. It's getting the RIGHT diagnosis that is the difficult part.
If you think your headaches, and vision problems (sometimes balance problems as well) could possibly be this condition, please research. Common names are: pseudotumor cerebri, idiopathic intracranial hypertension.
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