Discussions By Condition: Medical Errors

Headaches and vision problems

Posted In: Medical Errors 7 Replies
  • Posted By: Anonymous
  • May 19, 2007
  • 06:50 AM

I have been diagnosed. But I thought I would post on this site, to make others aware of this condition. I was diagnosed about a year and a half ago with pseudotumor cerebri. I was going to the doctor with severe daily headaches, and my vision was blacking out with up and down body movements. Of course the doctor immediately assumed I was having migraines. They gave me and MRI (which comes out normal with this condition). About 8 months later, I went to my eye doctor for a routine appointment, and she told me I had pappiledema, which is swollen optic nerves, caused from pressure in the brain. Long story short, I went back to the hospital, where they did a spinal tap and realized the pressure was about 3 times that of what it is normal. This is caused by the body's inability to absorb cerebral spinal fluid.

The reason this is so important for people to know, is that this is a very rare condition, and doctor's usually don't diagnose it quickly. If it goes untreated, you can become permanently blind. So if you are having any of these symptoms, please, be aggressive in seeing that your doctor is checking every possibility. Do your research. It's not "just migraines."

On a positive note. There is treatment. And it works weel for most. It's getting the RIGHT diagnosis that is the difficult part.

If you think your headaches, and vision problems (sometimes balance problems as well) could possibly be this condition, please research. Common names are: pseudotumor cerebri, idiopathic intracranial hypertension.

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7 Replies:

  • you're absolutly right!.i had the same thing,braught on by bloodclots inside my brain(also misdiagnosed as stress headaches.tut tut).i nearly died & came scarily close to ending up blind.lumber punctures are the quickest way to relieve the pressure,tho not the most pleasant way :( and ofcourse,it was an optition who first spotted it,despite 11 trips to the Drs for help! - three months i walked around with bloodclots in the brain & severe double vision,in absolute agony!.my eyes felt like they were going to pop & the pain inside my head,down my neck,& my face was horrendous.i thaught i was going to die :( 2 years on & i'm almost back to normal :)
    Anonymous 42789 Replies
    • October 15, 2007
    • 04:10 PM
    • 0
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  • If you think your headaches, and vision problems (sometimes balance problems as well) could possibly be this condition, please research. Common names are: pseudotumor cerebri, idiopathic intracranial hypertension.Interestingly, I had an ED doctor tell me for sure this is what I had. He put me through the diagnostic test for it. When it came back negative he was stumped but wouldn't admit it. I was sent home with the diagnosis of Atypical Migraine.My symptoms at that time were photosentivity which made me extremely nauseated, headache over and around the side of my right eye, pressure in my eyes. My symptoms began about 4 months earlier with a severe headache.My diagnosis, which took a total of 8 months to find a doctor who knew the symptoms, was Acute Narrow-Angle Glaucoma. I had ongoing attacks which occurred frequently and ended with severe nausea, severe diarrhea, and severe vomiting. I went through 3 months of the gastrointestinal symptoms before getting a diagnosis. I had several terrible diagnoses beyond the first one. And I had many rude and uncaring comments about my health and personal habits. When I got a diagnosis I had about 4 hours before I would be blind in my right eye.
    Anonymous 42789 Replies
    • October 19, 2007
    • 11:14 PM
    • 0
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  • My daughter was 9 when she would get blurred vision in her right eye,followed by an unbearable headache. She has been diagnosed with migranes.She is now 16. She know exactly when she is going to get a migrane, because she gets blurred vision in her right eye right before the migrane. The Dr has her on 100mg of Imitrex (dosent work) I never took her to an eye Dr because they have always checked her vision at her Drs office. When they checked my son they told me to take him to the eye Dr because he failed they're test. They never told me to have her seen. So do you think I should have her seen by an eye Dr?
    Micky6608 6 Replies
    • February 7, 2008
    • 05:30 AM
    • 0
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  • My daughter was 9 when she would get blurred vision in her right eye,followed by an unbearable headache. She has been diagnosed with migranes.She is now 16. She know exactly when she is going to get a migrane, because she gets blurred vision in her right eye right before the migrane. The Dr has her on 100mg of Imitrex (dosent work) I never took her to an eye Dr because they have always checked her vision at her Drs office. When they checked my son they told me to take him to the eye Dr because he failed they're test. They never told me to have her seen. So do you think I should have her seen by an eye Dr?I have to know what this is. I just experianced this today, and it has me scared. To better explain, if you ever had a "head rush" from standing too fast. The way your vision is blurred, or stared at a light for too long, then looked down a dark hall. Almost completly blind,but only in my right eye! I wasn't worried, at first. No pain, sickness or anything. Just my vision. But when the vision was gone, I was greeted with the worst headache I have ever had. It made me sick to my stomach. Honestly, my initial reaction was that of, lack of air to the brain. BUT, if it is something different, PLEASE let me know! Scott252567@hotmail.com4802701237
    Anonymous 42789 Replies
    • January 3, 2009
    • 05:40 AM
    • 0
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  • I have to know what this is. I just experianced this today, and it has me scared. To better explain, if you ever had a "head rush" from standing too fast. The way your vision is blurred, or stared at a light for too long, then looked down a dark hall. Almost completly blind,but only in my right eye! I wasn't worried, at first. No pain, sickness or anything. Just my vision. But when the vision was gone, I was greeted with the worst headache I have ever had. It made me sick to my stomach. Honestly, my initial reaction was that of, lack of air to the brain. BUT, if it is something different, PLEASE let me know! Scott252567@hotmail.com4802701237Get to the ophthalmologist asap!!!
    Anonymous 42789 Replies
    • January 4, 2009
    • 11:13 AM
    • 0
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  • That sounds just like what my daughter is experiencing. tunnel vision, blinding headache, lays down and sleeps a bit, gets up...throws up, goes back to sleep and wakes up fine. But she is in so much pain while she is going through this. They say it is migraines, or that she is having a alergic reaction to something.
    CarlaCampbell 5 Replies
    • January 12, 2009
    • 10:22 PM
    • 0
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  • I used to have perfect vision but during the past 1.5 years, my number has gone from 0 to +3 in both eyes. Also for the past month i have been experiencing horrible headaches (never got them before) and photosensitivity. Can someone please help me out. I am very worried
    Anonymous 42789 Replies
    • August 16, 2010
    • 02:38 PM
    • 0
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