Discussions By Condition: Medical Errors

Guess what you are NOT an asthmatic. WHAT?!?????????? why am I still wheezing???/

Posted In: Medical Errors 3 Replies
  • Posted By: xomissmelxo
  • January 4, 2012
  • 08:21 PM

After 15 years i've been MISDIAGNOSED for all the time with asthma.

I'm now experiencing intermittant hypoxic respiratory failure with a severe anion gap acidosis, severe tachycardia, lactic acidosis that comes and goes usually with an onset following an acute upper respiratory infection.

I've now been wheezing more frequently than ever before, have air hunger, shortness of breath, tachypnea and chronically low serum bicarbonate levels.

I'm being told I may have a mitochondrial disorder and probably have had symptoms since I Was a teenager. So here we are with NO diagnosis!

Omg.

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3 Replies:

  • Sorry to see you are back to square one,, but better start over than travel the wrong path,, acidosis and low bicarb these are important disorders that need to be corrected and will probably improve your breathing significantly.. my friend has a rare genetic disease called andersen tawil syndrome which is a metabolic disorder affecting the ion channels in her cells.. she has to stick to a low carb low sodium diet and maintain an alkaline diet,, she also has to supplement with potassium as this helps her cells especially cardiac and voluntary muscles to repolarise correctly.. she is also participating in a research study to find out the state of her genetic picture,, and I believe they will be doing the mitochondrial dna also.. she requires oxygen full time due to paralysis of breathing muscles causing short rapid breathing.. the muscles are not totally paralysed but compromised enough to affect her blood and acid alkaline balances...it might be that supplementing potassium if your kidneys are healthy through the low carb high potassium low sodium diet might aid your situation,, if you have one of these ion channelopathies the very medicine given for athsma can make the situation worse by lowering the blood potassium levels.. hope this info is helpfull to you,,katts
    kattsqueen 29 Replies
    • February 16, 2013
    • 02:48 AM
    • 0
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  • I'm being told I may have a mitochondrial disorder and probably have had symptoms since I Was a teenager. So here we are with NO diagnosis!
    Sandra4gleyl 1 Replies Flag this Response
  • Sorry to hear about your trouble with diagnosis. I am a TV journalist in Washington, DC working on an in-depth report about missed diagnosis in the US. Assuming you are in the US, would you be willing to talk to me about your case? After 15 years i've been MISDIAGNOSED for all the time with asthma.I'm now experiencing intermittant hypoxic respiratory failure with a severe anion gap acidosis, severe tachycardia, lactic acidosis that comes and goes usually with an onset following an acute upper respiratory infection.I've now been wheezing more frequently than ever before, have air hunger, shortness of breath, tachypnea and chronically low serum bicarbonate levels.I'm being told I may have a mitochondrial disorder and probably have had symptoms since I Was a teenager. So here we are with NO diagnosis! Omg.
    GrantClark 1 Replies Flag this Response
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