Discussions By Condition: Medical Errors

Fibromyalgia misdiagnosis

Posted In: Medical Errors 0 Replies
  • Posted By: Anonymous
  • December 9, 2010
  • 10:59 AM

I am at the end of my rope. I was diagnosed with fibromyalgia about 7 years ago, but after all of the research I have done, I don't fit within that profile. My mothers twin sister has fibromyalgia, and once I explained my problems and family history, I was diagnosed. No tests or anything.
My symptoms are myriad. My right leg muscles are extremely tight. I can not bring that leg up to put across my other leg unless I use my hands to pull it. It has moved up into my right arm and right part of my neck. My left side has the same problems, but I have more range of motion on that side. I am slowly losing more and more range of motion on both sides. I sleep on my side, and wake up a few times during the night to turn over because my leg will start hurting. (the top outside). I will sleep a little longer, than wake up and have to turn back over because the other leg is hurting. If I do too much physical activity my right leg cramps bad. I have to pause for a few minutes before I can continue.
I produce a lot of body heat. I sweat real bad at night, but during the day I also have this problem. Right now it is around 20 degrees outside, and if I put on more than a sweat shirt I will sweat.
The skin on the outer part of my right thigh is kind of numb. It is hard to explain, if I run my hand over it I can feel my hand, but it is an odd feeling. I am also always tired no matter how much sleep I get.

I have the following medical problems, but I don't know if they are a symptom of something else or part of the whole problem.

Hypothyroidism ( I had my blood checked and my levels are good on the medicine I am on) I had graves disease at one point and got treated by radioactive iodine, which led to hypo.

hidradenitis suppurativa

The beginning stages of emphysema (I am 36, was diagnosed at 34)

I have had a full hysterectomy due to endometriosis (they took ovaries too, since female cancers run in my family)

I am overweight, but these problems started before I was. I was 135 when I first noticed the problems. (am now 177) I am 5'5"

Please help. I have been to different doctors, but once they hear I was diagnosed with fibromyalgia that is what they go with. Don't get me wrong, the Lyrica they give me is great, but I want to know the real problem, not cover it up with great drugs.

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