Discussions By Condition: Medical Errors

erosive pustular dermatosis

Posted In: Medical Errors 4 Replies
  • Posted By: Anonymous
  • October 15, 2007
  • 00:28 AM

problem started 9/06. Large bump and crusting of lower scalp, near neck. soon burst through scalp requiring emergency hospital admission on Christmas eve and blood transfusions. Prior to this I had gone to the emergency room twice begging for help. They never even looked at the wound. After groveling, I was sent to a general surgeon who walked in, looked at it, and said "there was nothing that could be done". ANother plastic surgeon and general surgeon were consulted - refused to come near me with a scalpel. Felt it was skin cancer. Sent to out of town plastic surgeon after 5 days in hospital with huge crater on back of head. we're talking 4 X 6 inches here. diagnosed as sebaceous cyst. underwent extensive surgical repair in 1/07 after several weeks of antibiotics. had a skin flap and walked around with head sewn to left shoulder for several weeks. Abnormal skin tissue grew again and tore apart surgical incision in a matter of less than 2 weeks. back to square one - open crater on back of head again. went home, did wound dressings as ordered, eventually readmitted for serious wound infection. another 5 days in the hospital on IV antibiotics. told I was crazy and that there was not abnormal tissue on back of my head and to go home and do some more wound dressings. sent to another plastic surgeon who stood 10 feet away from me in exam room and said "ugh". didn't go back to him. sent to another plastic surgeon who applied wound vac, debrided wound and it looked great. ready for a skin flap. underwent 2 surgeries to have skin removed from my thigh and sewn to my head. again, it looked great after surgery. but within 2 weeks, this alien tissue began to regrown and pulled the entire skin flap off of my head. open crater again. i made an appointment with a very good dermatologist. easier said than done. initial wait time for new patients was 1 year. after explaining the problem, I got in a few months earlier, had a punch biopsy, and was finally diagnosed. It is a tentative diagnosis - not completely sure what it is - just a "best guess". So I have just started therapy with twice per day Minocin and will start topical high dose steroid cream in a few weeks. it has been a long, long year.

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4 Replies:

  • Hi Anonymous,

    How are you now? I had the same experience with wrong diagnosis and wrong treatments, including a skin transplant. Absolute horror. Curious to know how you are doing now.
    Anonymous 1 Replies Flag this Response
  • Hi Anonymous,

    I hope you are doing much better now. Could you drop me some lines and let me now how you're doing? I had the same experience. Wrong diagnosis, weong treatments, absolute horror. Yes, it was EPDS too. Difficult to live with. Want to know how you are coping. Perhaps we can exchange experiences outside this website.

    Take care!
    Anonymous 1 Replies Flag this Response
  • Hi Anonymous,

    I know that it is a long time ago, but I'm curious to know how you are now. I had the same experience. Wrong diagnosis and wrong treatment (incl. skin transplantation), resulting in absolute horror. It was EPDS. Perhaps we could exchange experiences outside this website. I hope the moderator of the website can be of assistance.

    Hope you will reply.

    Take care!
    Anonymous 1 Replies Flag this Response
  • Hi Anonimous,

    I had the same expereince. Curious to know how you are now after almost 8 years. This my 4th reply. Hope this time it will be put on the site!
    Anonymous 1 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.

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