My health has been deteriorating since 1994. I have drs that listen (finally), but still seem to have no better clue than the ones that didn't give a *%#! what I thought might be going on. My symptoms could be any number of things, and believe me, I Know! I read and research, hence my handle.;) I had a very, verY, veRY, vERY, VERY(!), bad experience (see - That's why it's called a practice) and as a result, am extremely proactive in my health care. That said, I don't know what the ***l is going on! I have symptoms upon symptoms in every system ie- endocrine, nervous, immune. I have a pituitary tumor, calcified thyroid nodule, blood sugar "issues", and all the symptoms of hypothyroidism, yet my hormone levels and other endocrine related tests are always normal. I have widespread neurological, skeletal and muscular pain, typing is getting especially difficult; but a lumbar emg only showed the beginnings of nerve damage on one side and I lost my insurance before I could have the cervical. My immune system isn't, so I'm always sick, on top of everything else! So far I have been diagnosed with chronic sinusitis, chronic fatigue immune dysfunction syndrome (cfids), fibromyalgia, hypertension, osteo arthritis of the spine, hips and knees, pes cavus(high arches), curvature of the spine(no, not scoliosis), endometreosis, uterine fibroids, sleep apnea, borderline diabetes( Iknow, There's no borderline.), and various mental crap- anxiety, depression, stress...Helloooo, any normal person would be in a padded cell by now. Luckily that's one problem I don't have. HA-ha. I have had 4 laporoscopes (3 for the endo and 1 for a tubal pregnancy), a lap-coli(gallbladder), an appendectomy, tonsillectomy w/a uvuloplasty(sleep-apnea), lymphdectomy, and 2 c-sections (the last with a tubal ligation). I have had every kind of scope, scan and poke, (well except for a spinal tap - shiver - which I hope I never have to have). And to make matters worse, I"M ADOPTED!!!! I have no medical history. I fell like a mystery, wrapped in an enigma, smothered in KFC Chicken Gravy. Wow, it feels good to vent!!! Any help or suggestions are greatly appreciated. I am reading about celiac disease right now and am finding it very interesting, as well as a possible contender; "And the nominees for Jane's medical condition are..." I am glad I have found this forum. Being sick can be a very lonely and isolating experience, and when there's no definite diagnosis, you can't even join a support group. Although I guess I could go a little "Fight Club".
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