Discussions By Condition: Medical Errors

Endometriosis

Posted In: Medical Errors 2 Replies
  • Posted By: Anonymous
  • November 4, 2009
  • 10:51 AM

Has anybody been misdiagnosed with endometriosis? I have heard that this illness is very difficult to diagnose, sometimes only laparoscopy can give a realible diagnosis. If anyone suffers from it, what are the main symptoms?

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  • Has anybody been misdiagnosed with endometriosis? I have heard that this illness is very difficult to diagnose, sometimes only laparoscopy can give a realible diagnosis. If anyone suffers from it, what are the main symptoms?I am having a laproscopy soon b'c my doc thinks thats what I have. He isn't messing around w/it. He is going ahead and doing the surgery. I think it depends on how bad it is. It is easy to diagnose when they are in their w/ the scope.....not as easy if they can't see what's going on.
    Anonymous 42789 Replies
    • November 8, 2009
    • 02:29 AM
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  • Has anybody been misdiagnosed with endometriosis? I have heard that this illness is very difficult to diagnose, sometimes only laparoscopy can give a realible diagnosis. If anyone suffers from it, what are the main symptoms?I've had endometriosis since I was about seventeen years old. It was very difficult to get a diagnosis. It took about fifteen years and several doctors before I could even get someone to try to tell me what it was. I went to private GYN's and military doctors as well, no one had any clue what it could be. My symptoms started back in the late 1970's and it took until 1995 to finally figure out what it was. My diagnosis came from a laparoscopy. My symptoms were severe discomfort/pain in the lower abdominal area (started on the left, moved further to the right over the years) around the time of my period, which made me double over and put me out of action for several hours at a time. The only way I found to lessen the discomfort was to sit in a hot bath for about half an hour, but that didn't always work. I tend to not take pain meds very often, and quite honestly, they really didn't do much to solve the pain.Endometrial tissue had invaded my abdominal area almost completely by the time my obstetrician figured out what it was. My OB decided after I gave birth that he wanted to go in and look for the tissue after I described the pain in a first visit during my pregnancy. After the laparoscopy, I was told the tissue had invaded my entire abdominal cavity and also had wrapped around my bowel as well. As I understand it, the pain level varies in different women. No procedures were ever done to take care of it, and unfortunately, in 2003, I had an ectopic pregnancy which I've been told could have been due to endometrial tissue in my fallopian tube. When my fallopian tube burst, I ended up losing that as well as one ovary. I've never had any laser surgery or any other procedure to get rid of the built up tissue, but I've been considering it recently. I walk around in no discomfort these days. As I get older (I'm in my late 40's now) the pain occurs much less often and doesn't seem to be as sharp as it was and I haven't had a bout that I could pinpoint as being endometriosis related since before the ectopic pregnancy. When I had the ectopic pregnancy, I thought it was another bout of the endometriosis, the pain was similar to me. Luckily my ex-husband called an ambulance because I was thinking I should just roll up in a ball on the bed and wait for the pain to subside after several hours and if I hadn't gone to the hospital, I would have died.I hope this information helps. I'm not sure it does.
    Sleepless in Phoenix 1 Replies
    • November 8, 2009
    • 02:22 PM
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