I am a 56 year old male who is totally disabled and on ss. For the last ten years I have been to propbably 7 different nuerologists who all seem to disagree on my diagnosis. First i was told the problems I was having was all in my head and I should take yoga to rid myself of stress. Then I was told i had a possible brain tumor. next it was I had MS. But my problems did not quite add up. Then a new Doc said it was parkinsons. Treatments did not work. I finally was given a Doc who really cared and after a year he said I had parkinsons plus. Six months later he changed it to Multiple system atrohpy. He moved to the Mayo clinic and my new Doc says no, it is not MSA but rather spinocerebellar degeneration. Now a year later he claims that I have both MSA and spinocerebellar degeneratioin. All I know is I keep getting worse and I have yet to meet a brain doc that knows anything. Kansas city is not the place to have nuerological problems! I am lost and tired of taking a dozen pills a day that do little. I guess they will all be happy once I'm gone.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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