Discussions By Condition: Medical Errors

do doctors really know anything?

Posted In: Medical Errors 8 Replies
  • Posted By: Anonymous
  • March 12, 2007
  • 04:12 PM

I am a 56 year old male who is totally disabled and on ss. For the last ten years I have been to propbably 7 different nuerologists who all seem to disagree on my diagnosis. First i was told the problems I was having was all in my head and I should take yoga to rid myself of stress. Then I was told i had a possible brain tumor. next it was I had MS. But my problems did not quite add up. Then a new Doc said it was parkinsons. Treatments did not work. I finally was given a Doc who really cared and after a year he said I had parkinsons plus. Six months later he changed it to Multiple system atrohpy. He moved to the Mayo clinic and my new Doc says no, it is not MSA but rather spinocerebellar degeneration. Now a year later he claims that I have both MSA and spinocerebellar degeneratioin. All I know is I keep getting worse and I have yet to meet a brain doc that knows anything. Kansas city is not the place to have nuerological problems! I am lost and tired of taking a dozen pills a day that do little. I guess they will all be happy once I'm gone.

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8 Replies:

  • I think you need to go to Chicago and check it out with Brain research institute at University of Chicago and they do take care of things pretty fast and clearly
    Anonymous 42789 Replies Flag this Response
  • Do you ever go to Florida on vacation? Go to Jacksonville, Florida and visit the Mayo Clinic There! If you schedule your visit, they will have you in and out and all the tests done in 3 or 4 days. Plus, you can visit the beach and enjoy some beautiful weather. It is a great place, with many "older" patients due to its locale. So what I a mean by older is that they have good neurologists that study dementia as their primary focus. So....the neurlogists will be very up to date on the latest. At the very least they will be able to rule out whether or not your original physicians' assessments are correct or not. Good luck!
    Anonymous 42789 Replies Flag this Response
  • I'm so very sorry to hear your story. I went through medical school with an undiagnosed neurolgical condition, which turned out to be something called steroid responsive encephalopathy associated with autoimmune thyroiditis. No one could figure it out. It took 8 years (although there were non-neuro things that were missed)So, I guess I've seen it from both perspectives- the patient side and doctor side. Neuro things can be very hard to diagnose- the symptoms can come and go in some diseases and I think there's so much we still don't know out there. The diagnostic tools aren't perfect... Of course what the patient who has the disabling symptoms needs more than anything is an answer. The correct answer. An aswer offers an explanation, and also the hope for the correct treatment. It's an all too tragic combination- such a big question (what's wrong with me here?) and too few answers.Good luck with everything!
    Anonymous 42789 Replies Flag this Response
  • Find the posts on B-12 deficiency by the nurse that wrote the book. It is under "what is the treatment for this?".Anyone that has MS like symptoms should have B12 deficiency ruled out!Please get the 3 tests done that the nurse Sally recommends....MMA, homocystine and B12.
    Anonymous 42789 Replies Flag this Response
  • I am a 56 year old male who is totally disabled and on ss. For the last ten years I have been to propbably 7 different nuerologists who all seem to disagree on my diagnosis. First i was told the problems I was having was all in my head and I should take yoga to rid myself of stress. Then I was told i had a possible brain tumor. next it was I had MS. But my problems did not quite add up. Then a new Doc said it was parkinsons. Treatments did not work. I finally was given a Doc who really cared and after a year he said I had parkinsons plus. Six months later he changed it to Multiple system atrohpy. He moved to the Mayo clinic and my new Doc says no, it is not MSA but rather spinocerebellar degeneration. Now a year later he claims that I have both MSA and spinocerebellar degeneratioin. All I know is I keep getting worse and I have yet to meet a brain doc that knows anything. Kansas city is not the place to have nuerological problems! I am lost and tired of taking a dozen pills a day that do little. I guess they will all be happy once I'm gone.My husband has been to several doctors and after four years, he was told he had "SPINOCEREBELLAR DEGENERATION" then they ran some tests to find out what specific disease he had since Spinocerebellar degeneration was a broad coverage. After several tests the doctors said he had "MULTIPLE SYSTEM ATROPHY". We are now looking for a doctor that has actually treated a patient with this disease and we would like to locate a support group. Can we email you and talk with you ?
    Anonymous 42789 Replies
    • November 30, 2010
    • 05:22 AM
    • 0
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  • No, they don't know anything.They just diagnose symptoms. If there are no symptoms then something could be going on for years before you see something that prompts you to a doctor and then its too late. Even when you have symptoms they can misdiagnose those symptoms if the symptoms are very close to something else. If something is really bad wrong with you, you see how ineffective doctors really are. They have the law on there side though. So, they can practice on and play with more lives, misdiagnoses after misdiagnoses.
    DealtDeath 4 Replies
    • January 16, 2011
    • 05:02 PM
    • 0
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  • I feel your pain, I am dealing with some chest pain issues that have yet to be resolved since I was a young teen, im 28 now...
    PoorlyPlacedCyst 2 Replies
    • January 23, 2011
    • 04:17 AM
    • 0
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  • I am a 56 year old male who is totally disabled and on ss. For the last ten years I have been to propbably 7 different nuerologists who all seem to disagree on my diagnosis. First i was told the problems I was having was all in my head and I should take yoga to rid myself of stress. Then I was told i had a possible brain tumor. next it was I had MS. But my problems did not quite add up. Then a new Doc said it was parkinsons. Treatments did not work. I finally was given a Doc who really cared and after a year he said I had parkinsons plus. Six months later he changed it to Multiple system atrohpy. He moved to the Mayo clinic and my new Doc says no, it is not MSA but rather spinocerebellar degeneration. Now a year later he claims that I have both MSA and spinocerebellar degeneratioin. All I know is I keep getting worse and I have yet to meet a brain doc that knows anything. Kansas city is not the place to have nuerological problems! I am lost and tired of taking a dozen pills a day that do little. I guess they will all be happy once I'm gone. First off, it is easier if you register. This way we can track each others posts. Next, this is a link I want you to read. It is just information. Do not post there. It is information about B12 deficiency. Check the symptoms out. I have it and was not diagnosed for a number of years. I was very sick, and had about 60 of these symptoms. I have now been treated, and am doing great. B12 deficiency causes spinal degeneration. I was thought to have MS. The symptoms are very similar. A whole lot of neruo symptoms appeared. I take the two active forms of B12 methylB12 and dibencozide (adenosyl B12) plus many other vitamins that are needed to heal, and reactivate nerves. Please read. The place to go after is the B12 thread. Type in B12 deficiency commonly misdiagnosed. Go to the last page and read a while. There are thousands of posts there, too many to start from page 1. Ask questions there. There are many folks with knowledge and advise. Good luck to all http://forums.wrongdiagnosis.com/showthread.php?t=62327 Check out all the basics and the list of symptoms. You will be amazed at how much b12 covers.
    cyndyd 458 Replies
    • January 23, 2011
    • 06:26 PM
    • 0
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