Discussions By Condition: Medical Errors

Discovery Health- Mystery Diagnosis

Posted In: Medical Errors 27 Replies
  • Posted By: Anonymous
  • March 20, 2008
  • 08:22 PM

I am the casting producer for the medical show, Mystery Diagnosis, which airs on Discovery Health. We are currently in our 6th season of production and want to hear your misdiagnosed stories! Did you leave doctors scratching their heads? Did you desperately seek answers when it seemed like there weren’t any?

We are looking for unique diagnoses, emotional journeys, and patients (in the Unites States) who want to share their stories on television! If you fit these criteria, please contact MYSTERY DIAGNOSIS at:

eanniello@trueentertainment.net or (212) 645-0904 and leave a message on our hotline. Be sure to include your full name, phone number, email address, and disease.

Thanks and we look forward to hearing from you!

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27 Replies:

  • You should get the guy in England who has several videos in this thread...he had an accident, whiplash real bad and they just tell him he is a nut case and won't treat him...he is the worst (living) I've seen in here. I like your show and learn from it. My favorite, or it could be another diagnosis show, was when the poor girl met a guy at the bar...he bit her lip and gave her herpes1 into her blood stream instead of lodging in the ganglion...she had a rash all over her poor body and was dead in a few weeks...poor girl...and the ***k never knew he killed her.
    Monsterlove 2921 Replies Flag this Response
  • Hi My name Ciara Bolden. I had doctors baffled for year. I was diagnosed with chronic appendicitis and that it is rare. was told that it was in my head and that I needed to see a psychiatrist. I live in the United States..Pittsburgh,PA. I have a very unique story. Thank You... My e-mail is bolden_ciara@yahoo.com if you want to contact me....
    poohbear08 1 Replies Flag this Response
  • hello i would love to see u do a show on panic attacks i have been having problems forever and nothing helps and panic attacks are a big issue in the U.S. now
    worriedmom20 9 Replies Flag this Response
  • Hello to all - I used to spend hours and hours on this website and others trying to figure out what was wrong with me. I stopped doing that a long time ago, as I had finally thrown my hands up and accepted that I was going to be sick forever.I found out THIS WEEK that I DO have lupus - after ten years of being sick. I contracted a rare virus 10 years ago when I was 8 months pregnant with my son, and went from thinking I had a sinus infection one day, and was in respitory failure two days later. In any event, this virus triggered a whole host of illnesses and symptoms including pain, unbelievable fatigue, swollen joints, seizures, and constant low grade fever.I have seen most every specialist in Boston, MA (some of the best in the world), to no avail. I began seeing a new PCP over the past 6 months, and she has determined that it IS lupus - despite the negative ANA in the past. I am not exaggerating when I say that this "illness" ruined my life for a time, as I became bedridden for almost 2 years. Ive seen immunologists, rhematologists, neurologists, EVERYONE - and most all were perplexed.I have a great story, and its amazing that I read this tonight after finally getting a Dx after 10 years of on and off (mostly on) ***l.My email is elledondesign@aim.com - Email me and I will write you back with whole story (I also have most EVERY med record given to me in past 10 years) I am 40 years old married female with two children.
    Anonymous 42789 Replies Flag this Response
  • Hafa Adai, I'm a 30 year old female from Guam. 2 years ago I started to poo out blood then a week later I started to urinate blood. I went to my doctor was prescribed some kind of antibiotics and went through many lab tests, out-patient GI tract surgery, and a CT scan. With no surprise all tests came out normal except being anemic, the bleeding stopped after 1 week of taking the antibiotics. Came May 2008 and my nightmare started again, I paid another visit to my doctor and this time I had lower left abdominal pains. My doctor scheduled another out-patient surgery for another GI tract and this time a colonoscopy. As usual all lab tests all came out normal except being anemic. Two weeks later i did a follow-up with my doctor for the test results from the samples that were taken from my colon. Everything is fine and there is nothing wrong with me, that was his exact words to me. I also have severe migraines and from time to time I experience a sharp stabbing pain in my left eye more than my right :confused:. Please help I'm tired of being a guinea pig and taking prescribed medications that are being guessed by my doctor that would help me :eek:. I stopped taking my medications in July of this year.
    Malangu_Yu 1 Replies
    • October 9, 2008
    • 06:46 AM
    • 0
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  • I have been suffering with pain on my right side just below my ribcage for 1 year and 10 months now. It started when i had the flu. The doctors have done lots of tests like blood work, ct scans, hyrdoscans, physical therapy, colonoscopy, endoscopy, utlra sound, and have tried many medications all the test came back negative. My pain is sharp, i have nausea, diarrhea, fevers, i feel dizzy at times, i also feel like i'm going to pass out everyday, i have trouble breathing, i seem to cough alot to. My pain is on a scale from 1 to 10 it is usually a ten or more. It is getting worse everyday, its also getting harder for me to work cause i have had to pull over at times to wait for my pain to die down. I have gone to the hospital once cause it got so bad that i fell on the ground, they sent me home with some medicine that did not work, because they couldn't find out was wrong. please help me i need to find out what is wrong with me this pain is getting to unbearable for me.
    liliansimage 7 Replies
    • October 26, 2008
    • 10:54 PM
    • 0
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  • i just got a intercostal nerve block done on thursday ( novemeber 13). They kept me in the hospital for 6 hours, cause after the nerve block i was having trouble breathing. Its has only made my pain worse, now when ever i sit up straight, lie down ( in any way) it hurts:(. I also have chest pain, and heart pain. i really could use some help, please help me.
    liliansimage 7 Replies
    • November 17, 2008
    • 10:34 PM
    • 0
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  • My father was in a medically-induced coma for over a week, because his body was attacking himself so bad...doctors had 10+ bags of different antibiotics/steroids/etc. attached to him at once, because they had no idea what it was and hoped one might help him. They tested for diseases that haven't been reported for decades. They didn't think he would make it, but he did. He was considered "diagnosis challenged" by all the dr.s and specialists that saw him. Finally, he just went to MAYO clinic and they all were interested in his puzzling case. They diagnosed him with something along the lines of hemophagocytic syndrome (dr.s can confirm the name)...where your red blood cells start attacking your whole body. They'll never know what triggered it, but they have a diagnosis of what it was and considered my dad EXTREMELY lucky.The doctors said there were only 50 reported cases of this in the world and only half survived.There's way more to the story with weird symptoms, yellow eyes, confusion, memory loss, emotional stories of him communicating while coming out of his coma but not able to talk...loss of use of one side of his body etc.I sent you an email. Get back to me if you're interested. We're from Wisconsin.
    Anonymous 42789 Replies Flag this Response
  • I have been suffering with pain on my right side just below my ribcage for 1 year and 10 months now. It started when i had the flu. The doctors have done lots of tests like blood work, ct scans, hyrdoscans, physical therapy, colonoscopy, endoscopy, utlra sound, and have tried many medications all the test came back negative. My pain is sharp, i have nausea, diarrhea, fevers, i feel dizzy at times, i also feel like i'm going to pass out everyday, i have trouble breathing, i seem to cough alot to. My pain is on a scale from 1 to 10 it is usually a ten or more. It is getting worse everyday, its also getting harder for me to work cause i have had to pull over at times to wait for my pain to die down. I have gone to the hospital once cause it got so bad that i fell on the ground, they sent me home with some medicine that did not work, because they couldn't find out was wrong. please help me i need to find out what is wrong with me this pain is getting to unbearable for me.did you ever found out what it was?
    DH1987 3 Replies Flag this Response
  • Please pick me! I live in the US, and I have microwave sickness/electromagnetic hypersensitivities like Sarah Dacre. http://www.dailymail.co.uk/pages/live/femail/article.html?in_article_id=450995&in_page_id=1879 I sent you a brief email.Uh, you imply in other posts that you live in Sweden, and you have your status set to Sweden - you really do jump at opportunities to spread this information. I think blaze should be chosen - it would be an opportunity to expand actual scientific discourse on biological effects of EM.
    npcomplete 20 Replies Flag this Response
  • I have been ill for unknown reasons for approximately 2 years. During this time, I have seen about 2 General Doctors, 3 Internists, 1 Cardiologist and 2 Gastro Doctors in addition to the 6 Emergency Room visits made over this period of time and all doctors have listened to my symptoms, drawn bloodwork and released me in good health. The only thing that is ever brought to my attention is that my blood pressure is low and has been as low as 50/52 when I go through these "spells". Usually I am sick for 1 or more days then feel fine. Recently (in the past week) in addition to the sudden and random drop in blood pressure my resting heart rate has gone up to 105 and even then I have been sent away from the Emergency room said to be in good health and referred to a Cardiologist who says my heart is fine but have notice some irregular heartbeats. When my symptoms started about 2 years ago they did so with very deep chills when I was not cold, extreme fatigue, weakness and a dull knawing/pulling sensation where my liver/gallbladder are. Periodically, I will get very sharp pains in this area but 2 fairly recent ultrasound tests showed "no stones". I have progressed in the past week with increased and almost constant knawing sensations where my liver/gallbladder are, heart rate and beat/irregularity problems, to near fainting and shaking/trembling as if I'm cold when I am not and slight loss of balance/dizziness off and on. I am tired of being dimissed and released by doctors to continue to detiriorate. I feel that my life is in jepordy and need help as soon as possible.
    Anonymous 42789 Replies Flag this Response
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  • Hi Mystery Diagnosis Team My name is Connor and my grandma has just discovered a diagnosis called Arachnoiditis. It is the inflammation of the fluid in your arachnoid membrain. It is really rare and only about 200 000 people in the world get it. It has taken her 9 long years to get this diagnosis. She has been through over 30 MRI's, 20 cat scan's and 2 spinal taps. She has broken her back once, choked on a piece of meat and had 3 blood clots. She has been through a lot and wants to be on your show really badly. What also is disapointing is that their is no cure. What i also find unhappy is that most doctors she went to did not have an answer. Some times they have said that she has blood clots and have perscribed many pills but nothing worked so it would be a great honour to be on your show and i think she would be a perfect candidate. Thank-You Connor
    Anonymous 42789 Replies Flag this Response
  • Hi, I have a 15 year old sister that has some syndrome or disease, but we have yet to figure out what it could be. A doctor just recently said that it might be Turner Syndrome, but tests have not been run. I have come here to ask if you could help figure out what it is. Some of her symptoms are a webbed neck that she can not move, she has a short stature (about 4'9) she has gone through puberty really early. She used to have a cleft pallet but we have had it fixed. In the middle of her tongue there is a rased bump running down it. She can not feel the hottness in the water, when she takes a shower or helps with dishes the water will be on full hot, and she doesn't feel it at all. She has a lazy eye, her ears are not symetrical. She was born with an unspecified mid-line brain defect, affecting the corpus collusum and hypothalmous. In the past she had Lupron injections to stop the pituitary gland from causing premature puberty. She is a junior in high school, but math is fifth grade level, she reads at a sixth grade level. She has been tested for MS, Down's, missing chromisomes, and all have come back normal. She has had three sets of tubes put in her ears. Please if you can help us or lead us to someone who can let us know. Thank you~Tia~
    Anonymous 42789 Replies Flag this Response
  • hello, my daughter has rare disease called diffuse cutaneous mastocytosis. I had gone through different doctors and trips to teh emergency room to figure out what was wrong with her. first my daughter had small bumps here and there, every week a new bump would appear and she would develop blisters, I woke up one morning screaming when my two month old daughter had a blood filled blister on her wrist about the size of a quarter. Doctors kept telling us that she had dry skin or exzema, I knew this was not right and she kept getting worse finally at 3 months old she was officially diagnosed. then when she was about 1 year old and she fell faint onto the floor, then quit breathing. the ambulance came and they gave her some oxygen, she snapped out of it. almost exactly one month later , before we foudn out what happened when she fell onto the floor, she did it again turning red all over adn short gasps of air, once again my baby girl was lying in my arms nearly dead and I still did not know what was going on. They beleive this is from her mastocytosis, she had gone into some sort of shock and is given medicine daily to keep her from getting sick. This is her two year story of a mystery diagnosis put into short. I would like to have my daughtes disease on the show because it is very rare and can cause a child to die if not taken care of properly. I want other peopel out there to see this show and can see the 'warning signs' of diffuse cutaneoud mastocytosis, without going from doctor to doctor and getting unsure answers. Thank you, Dena and Jacenda
    Anonymous 42789 Replies Flag this Response
  • i dont know if a show has been done on systemic mastocytosis but i'd like to see one done as my uncle has this very rare and life threatening illness which is hard to get diagnosed. (the poster aboves child may have this form of mastocytosis as it can attack the whole body.. not just affecting the skin thou skin is often affected as well). My uncle due to systemic mastocytosis risks death at all kinds of things eg another chewing peppermint bubblegum near him can make him go into anathalatic (sp?) shock!!. He's regularly rushed to hospital in ambulance needing resusitation etc due to things which can trigger off his systemic mastocytosis more. He cant have exposure to perfumes and so many other things due to this life threatening disorder and going to a wedding nearly killed him (due to perfumes in washing powders on family members clothes etc.. He ended up outside on oxygen having serious breathing issues). He cant have any real form of a life with this illness. please find a systemic mastocytosis sufferer and do a show on this very serious, usually progressive illness.
    taniaaust1 2267 Replies
    • August 12, 2009
    • 02:33 AM
    • 0
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  • Well, I thought I had problems. Whew!My name is Ana and I have been having low-grade fevers since December of 2008. That is about 9 months now. My normal temp is 96.7 and my low-grade temp has been running 99.1 every day. In addition, I have been having night sweats and extreme fatique and occasionally, my neck will be stiff or sore. I am 40 years old and have been on the depo shot for 6 years now. You would think I might be having hormone problems right? Wrong. All hormone levels are normal, all blood levels are normal too except CRP, Sed Rate and Platelets are high. But, as I have been running fever, you would expect those to be high because I obviously have some type of inflammation or infection somewhere.Anyway, my internal medicine doctor ran all the blood work for me cause he originally thought I had hormone problems and wanted me to be prepared when I went to my GYN. He also had a vaginal ultrasound done because I told him I would take hormone therapy only if the doctors believed my probem was hormones. Ovarian cancer runs in my family close on both sides. A 5.7 cm cyst was found on my right ovary and my doctor was told by the radiologist "no worries". However, GYN, was worried. What radiologist did not know was I had been on the depo shot for 6 years and should not have any cysts, least of all one that was 5.7 cm in diameter.So, here I am still running fevers except now, I have had a GYN examine and my cyst has been disturbed. I am in more pain, my fever now spikes to 101.1, I still have night sweats and fatigue and I am waiting on the gynelogic oncologist to return the GYNs call to see when I can expect to have my cyst and, hopefully, my ovaries and uterus removed. I hope I am on the right track and all my symptoms will disappear after the suregery is performed. I have been sick all year and I am very tired of being sick.
    Anonymous 42789 Replies
    • October 13, 2009
    • 07:10 PM
    • 0
    Flag this Response
  • Well, I thought I had problems. Whew! My name is Ana and I have been having low-grade fevers since December of 2008. That is about 9 months now. My normal temp is 96.7 and my low-grade temp has been running 99.1 every day. In addition, I have been having night sweats and extreme fatique and occasionally, my neck will be stiff or sore. I am 40 years old and have been on the depo shot for 6 years now. You would think I might be having hormone problems right? Wrong. All hormone levels are normal, all blood levels are normal too except CRP, Sed Rate and Platelets are high. But, as I have been running fever, you would expect those to be high because I obviously have some type of inflammation or infection somewhere. Anyway, my internal medicine doctor ran all the blood work for me cause he originally thought I had hormone problems and wanted me to be prepared when I went to my GYN. He also had a vaginal ultrasound done because I told him I would take hormone therapy only if the doctors believed my probem was hormones. Ovarian cancer runs in my family close on both sides. A 5.7 cm cyst was found on my right ovary and my doctor was told by the radiologist "no worries". However, GYN, was worried. What radiologist did not know was I had been on the depo shot for 6 years and should not have any cysts, least of all one that was 5.7 cm in diameter. So, here I am still running fevers except now, I have had a GYN examine and my cyst has been disturbed. I am in more pain, my fever now spikes to 101.1, I still have night sweats and fatigue and I am waiting on the gynelogic oncologist to return the GYNs call to see when I can expect to have my cyst and, hopefully, my ovaries and uterus removed. I hope I am on the right track and all my symptoms will disappear after the suregery is performed. I have been sick all year and I am very tired of being sick. Check out adult onset still's disease.
    Anonymous 42789 Replies
    • October 26, 2009
    • 06:47 AM
    • 0
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  • Hi there. My sister has a genentic disease called Freidreick's Ataxia. It's a pretty rare disease. She was told she has Scoliosis, which she did but the symptoms were getting worse and we had a feeling it was more than just that. Her speech was slowly getting slurred, her balance was a little off and her coordination just wasn't right. She went to a few doctors. One told her it was MS. She thought it was MS for a while but she saw a Nueorologist that finally diagnosed her with FA. She is now confined to a wheelchair, has very little coordination and has several things happeneing to her that goes along with FA. This is a disease that can only be passed on if the Mother and the Father are both carriers. She has two sisters but she was the unfortunate one that ended up with it. I would be intersted in getting this on your show if possible. Please let me know if it's possible. Thank you.
    Anonymous 42789 Replies
    • December 27, 2009
    • 03:30 AM
    • 0
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  • I have been suffering for two years with pain in my joints. I have been to 4 Rheumatologists, 1 Neurologist and am scheduled to see a Gastroenterologist and an Endocrinologist. I have been diagnosed with Ankylosing Spondylitis, and then told I do not have that. Then I was diagnosed with Fibromyalgia, now they are unsure. I do have wide spread osteoarthritis and problems with my sciatica. I have been treated with prednisone for a year and a half. I now have problems with my liver, which they feel is from the prednisone. I have many days I cannot move around or get out of bed. I lost my job of 17 years, because I could not get there and perform the duties I needed to. I have been on so many different medications from injections to multiple pills. I am now experiencing depression because of the daily pain and drastic change in my life. My pain is in my ankles, knees, hips, spine and neck. I can’t sleep because of the pain and I get up 2-3 times during the night and throw up mucus mixed with blood. I have diarrhea 6-8 times a day. Every time I leave an appointment I feel more confused. I am searching for someone to please help me. I can be contacted at terrimurphy1263@comcast.net
    Anonymous 42789 Replies Flag this Response
  • Dear Ms. Eanniello,I'm writing on behalf of my friend Kristie who has been suffering from a painful and mysterious illness for over 4 years. It was thought by some doctors that she might have Stiff Person's Syndrome (SPS), but later this diagnosis was found to be incorrect. Kristie and her fiance, Brian, are from Northern California but have been living in a tiny apartment in Cleveland, Ohio hoping the doctors at the Cleveland Clinic could help save Kristie's life. Unfortunately, it seems the doctors there have given up hope and are hardly responding to Kristie and Brian's phone calls. She has now developed dangerous seizures which happen several times a day. At this point we can find no one to help Kristie. They are out of money and running out of time. Kristie and Brian were featured last year on 20/20 when it was still believed she had SPS. Here is the segment: http://abcnews.go.com/2020/story?id=8250804&page=1Kristie is so sick and weak she hasn't been able to walk outside and see the sunshine in years. I'm asking for your help. Having Kristie on your show might be the very thing she needs to help bring public awareness to her situation so that someone might be able to help her. Would you please help us?Thanks, TamraI am the casting producer for the medical show, Mystery Diagnosis, which airs on Discovery Health. We are currently in our 6th season of production and want to hear your misdiagnosed stories! Did you leave doctors scratching their heads? Did you desperately seek answers when it seemed like there weren’t any? We are looking for unique diagnoses, emotional journeys, and patients (in the Unites States) who want to share their stories on television! If you fit these criteria, please contact MYSTERY DIAGNOSIS at:eanniello@trueentertainment.net or (212) 645-0904 and leave a message on our hotline. Be sure to include your full name, phone number, email address, and disease.Thanks and we look forward to hearing from you!
    tamrakat 1 Replies Flag this Response
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