Discussions By Condition: Medical Errors

Dilaudid and Renal Failure - Amyloidosis Disease Patient

Posted In: Medical Errors 1 Replies
  • Posted By: Anonymous
  • April 3, 2007
  • 04:41 AM

My mom was diagnosed with Amyloidosis several years ago. She has a pacemaker and Renal Failure. She undergoes dialysis 3 times a week. At one point her doctors in Kaiser prescribed Dilaudid. She moved to Texas with a bottle of 120 as a 30 day supply. She was in and out of the hospital here for stomach pain and vomiting. They removed her Gal-Bladder thinking it would help the symptoms. Finally someone decides to get her off the Dilaudid, gee, Drug Detoxification/Rehab for a 63 year old that never smoked anything. She now has Endocronitis??? A bacterial vegitation in her heart and is undergoing a six week regiem of antibotics in an accute care facility. Anyone wanna comment ??? What should I do? My mom doesn't deserve what she is going through. I've seen what's been billed to the insurance company. Their decisions, conclusuions, mistakes were expensive, profitable??

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1 Replies:

  • So sorry. We see this all too often. Kaiser must start to inform patients (and the patients are finding out) that after a diagnosis of amyloidosis, they are entitled to a second opinion at a center of excellence. Many go to Boston University Medical Center and the other is Mayo Clinic in Rochester MN. Both are approved and we wish we could get the word out more. We do have two California support groups Southern and Northern.Please contact muriel@finkeluspply.com Muriel FinkelPresidentAmyloidosis Support Groups Inc.ASG www.amyloidosissupport.com Toll Free 866-404-7539
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