Discussions By Condition: Medical Errors

diagnosed with this and that but still feel the same after all the medication

Posted In: Medical Errors 15 Replies
  • Posted By: Chris88
  • October 15, 2006
  • 01:33 PM

hi i am new to this sight. i have been reading this sight for over a year now and i just had to get in on it. i am a 33 year old female. i was always healthy and energetic and a happy go lucky gal. it all started back in october of 05. i was sleeping and awoke to nausea,dizziness, shakiness, extremely high blood pressure for me. (189/118) , my head and arms were numb, and i felt really flushed. i was in and out of emergency room for 1 week. Continued to have all these symptoms the entire time. They just put me on nausea pills and sent me on my way. finally, they put me in the hospital, for 1 day , ran some tests and nothing. Put me on a blood pressure pill, diagnosed me with anxiety, high blood pressure, high cholestrol. which i take medication for all. since i have gotten out of hospital i am experiencing alot of different symptoms. my abdomen is swollen and i look like i am 6 months pregnant, i put on 35lbs. in 2 1/2 months. i was constipated and they sent me a gastroentorologist. said i had ibs. put me on pills. did a colonoscopy and endoscopy and found a esophagus ulcer. put me on more medication. also nausea medication. i was getting muscle aches and pains, sent to a rhematologist, ran tests and my ana came back positive, ran more tests and said they don't know why it is positive.some people just live with a positive ana. put me on muscle relaxers and pain medication. my glucose test came back low 52 and sent me to an endorcornologist , ran tests said i was hypoglycemia. also that i had pcos. since then my sugar goes up and down. when it goes low i get the symptoms bad. my gynocologist said yep pcos. mean while i am nausea at least 1 time a day, always tired, lower back pain constantly, muscle aches all the time, abdomenal tenderness(navel and up) ,vomiting,and living with this swollen abdomen. they did a ca125 test and it was normal. i am so clueless,and i am ready to just deal with my symptoms. it is just so hard considering healthy and boom it wakes you up from your sleep and your never the same. and the doctors just see you in afew months and nothing. i just wanna be normal cuz i have 2 boys that need me. sorry so long. Help!!!!!!!:confused:

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15 Replies:

  • can anyone tell me how to get replies?
    Chris88 2 Replies
    • October 18, 2006
    • 01:25 AM
    • 0
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  • Hi Chris, I may have some answers... though they may not be the answers for you! Just like a doctor, I can only suggest diagnoses I'm familiar with. (As I think you've now learned, many doctors know very little beyond the commonest complaints they see, and often don't even know who to refer a patient to but instead declare "there's nothing wrong!" when what they should admit is, "I haven't done the right test yet.")Regarding the swelling and nausea in your abdomen: Have you previously had your gall bladder removed? A close friend of mine developed similar symptoms several years after hers was removed. It started with abdominal pain and swelling, though the swelling came and went in later months. Many doctors she saw insisted there was no swelling (!) because she's "overweight" but the different texture of the swelling and the asymmetry (more on one side) were obvious to non-medically-trained people like myself. She went through ultrasounds which were negative and an endoscopy which revealed gastroparesis (but which the gastroenterologist who performed it said meant nothing and was unrelated to any other problems) and numerous other tests and examinations. Meanwhile almost anything she tried to eat gave her diarrhea, vomiting or both. This got worse as the months went by, until finally even the last few things she had been able to digest no longer worked. She couldn't keep anything down/in for ten days straight and was dehydrated, light-headed and growing malnourished. Finally a different gastroenterologist, after performing a colonoscopy, saw tiny traces of bile in her colon and figured out that she actually needed her gallbladder! Oops! (This is rare, most people are fine without theirs.) Now she needs to take a medication called cholestyramine, she says it's really nasty but it lets her digest almost anything she wants -- raw fruits and vegetables still cause her some problems.As for the sudden nausea, dizziness, shakiness, extremely high blood pressure: Especially since you say your BP was normally nowhere near that high, it sounds to me like you had a transient ischemic attack or TIA. Despite what you will see in the literature the common factors in TIA victims I know are women with a history of low or low-normal blood pressure. The hospital never evaluated you for stroke because stroke is "typically" seen in people whose blood pressure is already high, 160 or higher, and the stroke spikes it up over 200. One woman I know who had a TIA was told at the ER that she couldn't be having a stroke because her BP was less than 200 even though she was having classic stroke symptoms (sudden inability to talk or write and hemispheric weakness) -- obviously this was wrong. Don't be too mad at them, though, since there's no tests that reliably show TIA and no real treatment either. You should seriously consider seeing a neurologist, however. You may be at risk for another TIA, and/or may benefit from physical therapy.Finally, the persistent arthritis-like aches you describe, along with the PCOS diagnosis, make me wonder if you might have Fibromyalgia (FMS), so-called Chronic Fatigue Syndrome (CFS) whose name sufferers have likened to calling Tuberculosis "Chronic Cough Syndrome," or Myalgic Encephalitis (ME) which was controversially reclassified as CFS by the CDC years ago. A good rheumatologist should be able to evaluate you for FMS -- the rheumatologist you've already seen should have tested you (by poking you in specific places for trigger point response), so if he or she didn't, try another, especially one who you know treats FMS patients and is familiar with the disorder. There's no research about this yet that I know of, but there seems to be a high correlation between PCOS and these three disorders, especially FMS, possibly as the body's attempt to heal itself; there is some clinical research indicating testosterone as an effective treatment for fibromyalgia.Good luck! --Jack
    Anonymous 42789 Replies
    • October 22, 2006
    • 05:31 PM
    • 0
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  • Did you move into a new house about that time or get treatment for termites or did your basement flood? Did you get new furniture or carpets or anything that might be gassing out a lot of chemicals? Did you start eating or touching something you never used before? Medicines? cosmetics? soap? anything at all? do you have pets? can you smell mold or fungus anywhere? Do you have back pain between the shoulder blades that could signal an overtaxed liver? Do you smell things that other people don't notice? Do you talk on a cell phone too much or spend too much time with electrical equipment?sometimes you can seem to be doing everything the same, and then you pick up a heartworm or something from your dog or another worm from a restaurant or a tinier creature from the water or even the air and there you are, sick. Sometimes your house can develop dry rot (my personal nemesis) and you can feel like you'll die soon. The environment is also filthy, remember those tons of uranium dust circling the earth and a third of american communities with unsafe water. Most of us have also used vaccines and antibiotics and eaten processed foods, and the harm can build up.Ring up one of those healers from the Barbara Brennan school of healing. Lots of them out there now, I've had my life put back together by a couple of those people, many are good at long distance diagnosis and quite a few are also qualified doctors or other types of ordinary therapists. and they won't make fun of you, no matter how strange your story is!
    Anonymous 42789 Replies
    • October 29, 2006
    • 00:58 AM
    • 0
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  • Chris, have you thought about an endocrine problem.. you might want to check out cushing's disease/syndrome... NOTHING you will die from but worth getting checked out. Try cushingshelp.com it is a good board for stuff that you are explaining...
    Canasa 2 Replies
    • October 30, 2006
    • 02:10 AM
    • 0
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  • hi, it is me again. yes i was checked for cushings. they ran a 24 cortisol urine test and it came back fine. i go for a gallbladder ultrasound with kinevac on nov.13. but i am not sure gallbladder would cause a swollen stomach and weight gain though. if any one has any information on anything or even gallbladder symptoms i would greatly appreciate it.thank you for your reply. i look forward to reading them. everything counts when i am at the end with answers and noone to help. i was also thinking maybe my liver wasnt functioning right. i am on the internet so much of the time looking for a diagnosis. i cant wait to find one so i can spend more time with my family and less time on the computer. i pray everyday that a doctor will finally come up with my diagnosis, but so far nothing. it is just hard to deal with especially when it all came on suddenly within 3 months time. if it would of come on within years i could of dealt with it alot easier. but i no there is something wrong and every thing is coming back normal. thanks
    Chris88 2 Replies
    • October 30, 2006
    • 11:58 AM
    • 0
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  • Chris:Did your endocrinologist test you for Cushing's Disease? I had Cushing's Disease and had high blood pressure and over 80 pound weight gain among many other symptoms. Read my post on the misdiagnosis forum. The initial tests to have done are an am cortisol level, a pm cortisol level and a 24 hour urine for free cortisol. Convince the endocrinologist to do these tests if he hasn't already. Good Luck. Let me know what happens.Laurie:)
    laurie hahnlen 19 Replies
    • November 16, 2006
    • 00:35 AM
    • 0
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  • Chris:I just read your post that you were already tested for Cushing's. Sorry.Laurie:)
    laurie hahnlen 19 Replies
    • November 16, 2006
    • 00:37 AM
    • 0
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  • Get checked for metabolic Syndrome, now known as Syndrome X. It is linked with PCOS, fibromaligia and Chronic Fatigue, weight gain and many other conditions, people start to develop insulin resistance and their health goes to pot. It is estimated about 80 million in America alone have the syndrome.Type in Syndrome X, and you should come across some interesting info outlining the symptomes. Women to women is a good site.Agape,searchingsam.
    Anonymous 42789 Replies
    • November 16, 2006
    • 08:22 AM
    • 0
    Flag this Response
  • Hi Chris. I truly believe you have adrenal fatigue. Google info on it. Basically, you need to get off all sugars and white starches - eat lots of protein and high fiber to normalize the rate at which sugars enter your system. good luck!hi i am new to this sight. i have been reading this sight for over a year now and i just had to get in on it. i am a 33 year old female. i was always healthy and energetic and a happy go lucky gal. it all started back in october of 05. i was sleeping and awoke to nausea,dizziness, shakiness, extremely high blood pressure for me. (189/118) , my head and arms were numb, and i felt really flushed. i was in and out of emergency room for 1 week. Continued to have all these symptoms the entire time. They just put me on nausea pills and sent me on my way. finally, they put me in the hospital, for 1 day , ran some tests and nothing. Put me on a blood pressure pill, diagnosed me with anxiety, high blood pressure, high cholestrol. which i take medication for all. since i have gotten out of hospital i am experiencing alot of different symptoms. my abdomen is swollen and i look like i am 6 months pregnant, i put on 35lbs. in 2 1/2 months. i was constipated and they sent me a gastroentorologist. said i had ibs. put me on pills. did a colonoscopy and endoscopy and found a esophagus ulcer. put me on more medication. also nausea medication. i was getting muscle aches and pains, sent to a rhematologist, ran tests and my ana came back positive, ran more tests and said they don't know why it is positive.some people just live with a positive ana. put me on muscle relaxers and pain medication. my glucose test came back low 52 and sent me to an endorcornologist , ran tests said i was hypoglycemia. also that i had pcos. since then my sugar goes up and down. when it goes low i get the symptoms bad. my gynocologist said yep pcos. mean while i am nausea at least 1 time a day, always tired, lower back pain constantly, muscle aches all the time, abdomenal tenderness(navel and up) ,vomiting,and living with this swollen abdomen. they did a ca125 test and it was normal. i am so clueless,and i am ready to just deal with my symptoms. it is just so hard considering healthy and boom it wakes you up from your sleep and your never the same. and the doctors just see you in afew months and nothing. i just wanna be normal cuz i have 2 boys that need me. sorry so long. Help!!!!!!!:confused:
    Anonymous 42789 Replies
    • December 20, 2006
    • 03:19 PM
    • 0
    Flag this Response
  • Hi!I am experiencing almost the exact same thing. I am 36 yrs old.Funny thing is that my mother had the same thing..with thestroke-like symptoms! Funny thing is that when she gother gallbladder removed - it removed the symptoms!Although tests were negative for gallbladder, therewere gallstones present and dangerous - blockingher pancreas!The stroke-like symptoms occur because the Vagus nervegoes from your head to your stomach/liver/gallbladder!It's simply sending a signal to you that you really havea problem with your gallbladder and will only get worseif you don't remove it! My Mom ended up in the ERwith jaundice before they finally found the problem!
    Anonymous 42789 Replies
    • January 26, 2007
    • 04:14 PM
    • 0
    Flag this Response
  • I forgot to add that, for me, I am having gallbladder surgery next month.The only thing that could detect that it is my gallbladder wasthe HIDA scan revealing that my gallbladder is not functioning properly.Yes, I have the elevated stomach also, I get attacks every nightat 9pm when I eat at 7pm. Does this sound familiar?
    Anonymous 42789 Replies
    • January 26, 2007
    • 05:10 PM
    • 0
    Flag this Response
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  • Have you ever been tested for Lyme disease? I'm curious.PLease reply.
    Anonymous 42789 Replies Flag this Response
  • Hi - You may want to check further into the endocrine disorder. I have Cushing's disease and I started another post on a different thread that I hope someone will answer.If you don't mind my saying, you will need more than one urinalysis to find out about Cushing's and an expert in that field. Do you have a "hump" on your shoulders or the back of your neck? This would be a fair indication that there is something going on with your endocrine system.Other options are to check out the gall bladder symptoms. Take care and keep us posted.
    Anonymous 42789 Replies Flag this Response
  • Hi - I was reading about your symptoms and I was wondering if you had your thyroid levels checked? Alot of the symptoms you're experiencing sound like they could be related to either hyper or hypothyroidism. It's worth looking into. God Bless
    Anonymous 42789 Replies Flag this Response
  • Chris ... How are you feeling now that your Gallbladder was removed??:)Bridget
    egovid 11 Replies Flag this Response
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