Discussions By Condition: Medical Errors

Debilitating symptoms with no diagnosis, please help

Posted In: Medical Errors 17 Replies
  • Posted By: Anonymous
  • April 1, 2007
  • 01:14 AM

I'm a 20 year old male and for years have been suffering from ongoing symptoms of an unknown cause. I lived with them for a while, thinking maybe I was just a woos or psycosomatic. The last few months it has been getting worse, and is right now completely debilitating, I'm too dizzy and lightheaded to even drive. If you can relate, or have heard of, or have any idea about anything, please help.

Constant Dizziness
Constant Light-headedness
Chronic fatigue
Lack of concentration
Frequent urination/bowell movements
Excessive sleep (10 hrs a night)
Mild-moderate headaches
Low blood pressure when standing from sitting or lying position
Worsening of symptoms with physical exertion

I've had many tests done like a Complete Blood Count, Urinalysis and a few others from an endocronologist. These have ruled out the most probable disorders such as, diabetes, anemia, thyroid disorder, hormone deficiency, and others. I'm currently taking Florinef which is meant to help raise blood pressure and circulation, but it isn't working.

If you know of that could help I would really appreciate.



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17 Replies:

  • I think you should continue to get more tests done, perhaps a CT scan or MRI. Don't let the doctor tell you how you feel, you tell him/her how you feel. The doctors aren't dealing with the symptoms, you are. Good Luck and God Bless
    Anonymous 42,789 Replies Flag this Response
  • What other meds are you currently taking? What is your diet like - what foods do you like to eat? Do you drink lots of pure water daily? Do you get headaches? Do you have cold hands/feet? Any numbness or tingling in the limbs? Any feeling of heaviness in your limbs? I'd recommend testing, sure, but why not also try an alternative route? A good naturopath, acupuncturist, chiro, or other specialist could look at your symptoms differently, and offer fresh insight into your problems. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • Go to a naturopath stop wasting time with a pill pusher he/she is just making money off of you
    Anonymous 42,789 Replies Flag this Response
  • get tested for lyme disease and only at Igenix. contact me at dcordes@comcast.net if you want more information. Below is a Lyme symptom list. You can have any combination of symptoms. Unexplained fevers, sweats, chills, or flushingUnexplained weight change--loss or gainFatigue, tiredness, poor staminaUnexplained hair lossSwollen glandsSore throatTesticular pain/pelvic painUnexplained menstrual irregularityUnexplained milk production: breast painIrritable bladder or bladder dysfunctionSexual dysfunction or loss of libidoUpset stomachChange in bowel function-constipation, diarrheaChest pain or rib sorenessShortness of breath, coughHeart palpitations, pulse skips, heart blockAny history of a heart murmur or valve prolapse?Joint pain or swellingStiffness of the joints, neck, or back Muscle pain or crampsTwitching of the face or other musclesHeadacheNeck creeks and cracks, neck stiffness, neck painTingling, numbness, burning or stabbing sensations, shooting painsFacial paralysis (Bell's Palsy)Eyes/Vision: double, blurry, increased floaters, light sensitivityEars/Hearing: buzzing, ringing, ear pain, sound sensitivitylncreased motion sickness, vertigo, poor balanceLightheadedness, woozinessTremorConfusion, difficulty in thinkingDifficulty with concentration, readingForgetfulness, poor short term memoryDisorientation: getting lost, going to wrong placesDifficulty with speech or writingMood swings, irritability, depressionDisturbed sleep-too much, too little, early awakeningExaggerated symptoms or worse hangover from alcohol
    Anonymous 42,789 Replies Flag this Response
  • If they put you on Florinef, does that mean they diagnosed you with Addison's disease? If so, you might find more info and help from a Addison's disease website.
    Anonymous 42,789 Replies Flag this Response
  • Have you been tested for SLE lupus! LA:cool:
    LadyAdena 4 Replies Flag this Response
  • Do you have all over achiness? You might want to look into fibromyalgia.
    Anonymous 42,789 Replies Flag this Response
  • Dear 20 year old male, I know how debilitating being lightheaded can be. I have been dealing with the same type of symptoms for 6 months plus facial swelling. I have not been able to drive all this time. I have had 2 CT scans of sinus, one brain MRI, one CT of Parotid gland, and numerous test. I did recently have a bad root canal pulled and that has seemed to help tremendously. I can now pop might right ear most of the time. I still have some swelling in my face and under my eyes. Another doctor as offered to do a whole brain, face and neck MRI, but I think I might wait and see if it goes away on its own. My doctor says that it might take a month since the tooth was fractured all the way to the bone and was fractured for a long time, hopefully this was my whole problem. Funny how the dentist says this tooth would not cause all this swelling I guess we will see.The moral of the story, before you go spending a lot of money, try to look for the simple things. Clogged ear, allergies, or bad teeth, swollen glands, anything like this can make you miserable.
    fluffyv 38 Replies Flag this Response
  • Get Sarcoidosis ruled out!
    Anonymous 42,789 Replies Flag this Response
  • My mom suffered from simuler symptoms, there wasnt enouph oxygen in her blood.
    Belinda 8 Replies Flag this Response
  • First of all..let me start by saying your symptoms were identical to mine. I am a 27 year old female, though i was 23 and otherwise healthy when i was first diagnosed. I felt so dizzy and out of it that i would actually start to have panic attacks while driving because i felt that i couldn't concentrate at all. i would sleep and sleep and sleep with no relief whatsoever. I could hardly stand in a line at the grocery store without feeling as if i was going to pass out. my blood pressure would become low from standing and my feet would turn a purple color because the blood would pool to my legs. I was diagnosed with fibromyalgia after several tests and 3 doctors. i had so much blood work done and was insistent that i had something else because i just felt so bad all the time. You should really look into it. Now i've been dealing with it for the past 4 years, as Fibro is a chronic illness. If you have any questions or are in search of a doctor, feel free to contact me @ ms-stang@hotmail.com or if you have myspace, www.myspace.com/ibelongtogarrett. My doctor is a specialist in Fibromyalgia and people actually drive from out of state to see him. He's amazing. Good luck with everything.-AmberNicole
    Anonymous 42,789 Replies Flag this Response
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  • I am interested in the fact that you have orthostatic hypotension and extreme fatigue. Have you seen a neurologist that specializes in disorders of the autonomic nervous system? I had the unfortunate experience of being passed from physician to physician before seeking my own help. I went to Vanderbilt University Hospital and was tested for dysautonomia. They diagnosed me with Postural Orthostatic Tachycardia Syndrome. I am on a "cocktail" of medications to manage my symptoms. There is a website. Type in Vanderbilt Autonomic Disorders Center. Godspeed.
    Anonymous 42,789 Replies Flag this Response
  • I don't know where you live, but keep on asking questions for doctors and if you are not happy, go elsewhere. My husband had Lyme (some of the same symptoms as you) for 16 years before being diagnosed. Docs said it was in his head. There is a good lab in California, IGenex (something like that) give an accurate reading. 50% of the tests come back negative. My son was showing same symptoms, his pediatrican wanted to treat him for mono, had the test and he was positive also. --- keep searching for answers and don;t let the docs get you down
    Anonymous 42,789 Replies Flag this Response
  • Boy can I relate! I have been tested for all the things mentioned in the replies. At present I am being treated for chronic sclerosing`dental osteomyelitis ( meaning hardening of the area with bone infection that will not go away.). I have been told that it is very rare. The only reason that I was diagnosed is that I had a good oral surgeon and lots of photos of my swollen face. I had so many symptoms that my illness could have been anything. It took a bone biopsy to determine the problem. I had been going to a dentist who did not do good work. She left an abscess in my mouth for two months because she thought it was "a little gum disease". I went to another dentist who referred me to an oral surgeon. The bone biopsy was not as bad as I had been led to expect. I am now facing multiple surgeries. All of the work done by my previous dentist ($25,000 worth) will have to be removed. I will need bone and tooth implants. My face is now permanently puffed out on one side. I have been on antibiotics for 8 months and will likely be on them for the rest of my life. This problem does not easily show up on x-rays or an MRI. It can be caused by bacteria, dental problems, injury and probably other things that I am not aware of. I was told by the many specialists I saw that my symptoms indicated various things. None of which panned out after testing. I was just lucky that I did not give up. It was exhausting and frustrating trying to get to the bottom of this. I am still very sick but at least now I know that it was not stress. depression, lupus, chronic fatigue, HIV etc. etc. etc.. Don't give up!!!! These days you have to be your own patient advocate. I wish you good health.
    Anonymous 42,789 Replies Flag this Response
  • I have been on antibiotics for 8 months and will likely be on them for the rest of my life. I am sorry for all that you have gone through:( . Please do try to get a good quality PROBIOTIC to help balance the side effects of long term antibiotic use. You can find a probiotic at any good healthfood store, or visit www.vitacost.com. DOM
    acuann 3,080 Replies Flag this Response
  • I had all the same symptoms, and was told that I had chronic fatigue syndrome or depression for 8 years. As it turns out, I have something called SREAT, or steroid responsive encephalopathy associated with autoimmune thyroiditis or Hashimoto's encephalopathy. Did your endocrinolgist check thyroid antibodies? Normally these aren't checked unless your thryoid hormones are abnormal, but in SREAT the hormones (TSH and free T4) usually are normal. The antibodies, thyroglobulin antibody and thyroperoxidase antibody are high in SREAT, which is highly treatable with steroids.I don't know if it's your answer, but it was mine and I don't want another person to go 8 years undiagnosed being fed paxil like they're tic tacs.Hope this helps, as fatigue is severly disabling!
    Anonymous 42,789 Replies Flag this Response
  • dear 20 year old male have you heard of sca6 it is a genitical brain disorder, i too have been having the same symptons over the last couple of years and have just found out my dad has sca6 who also has the same symptoms , this can only be found out by a special blood test that takes 3 months to grow the results from 28 year old lady from england
    Anonymous 42,789 Replies Flag this Response
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