Discussions By Condition: Medical Errors

Cannot get diagnosed!! Help!

Posted In: Medical Errors 6 Replies
  • Posted By: historychick
  • June 11, 2007
  • 11:04 PM

My doctors tell me I'm a freak case. Can anyone suggest ANYTHING?

I have LOW ACTH plasma (-5) and normal cortisol levels around 14.

Pain in left side under ribcage
Reynauds syndrome (cold hands/feet)
Frequent, Intermittent fevers of 99.4-100 degrees (daily basis)
Excessive sweating (even just walking to the mailbox!)
Night Sweats
Joint aches
Weight gain
Severe Fatigue
Chest tightness (kind of feels like when I had pneumonia but comes & goes)

I have had numerous tests done and all are fine! The doctors have ruled out MS, lupus, lymphoma, leukemia, rheumatoid Arthritis and cushings.

I thought about Addisons but I have LOW ACTH, not high!

Here are the tests that I have had:

Full body CT scan -found enlarged chest lymph nodes but docs say okay
Chest x-rays
Heart cath-said heart is super
Numerous blood tests-docs say all ok except for ACTH is low
Head MRI-all okay
Pelvic ultrasound-all okay
Hormone count and CBC-all okay
Was told I have high epstein barr levels...from a "previous" infection

I do have asthma, allergies and mitral valve prolapse.

I have been misdiagnosed previously with Fibroymyalgia and depression but anti-depressants did nothing so they took me off of them. I am not generally depresssed except when I am feeling bad physically.
All the doctors tell me I am absolutely fine..but I feel like I'm dead already. Anybody have suggestions at all? Could it be a lung problem?

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6 Replies:

  • What Meds are you taking?? Dexamethasone?
    Anonymous 42,789 Replies Flag this Response
  • I don't think so. I am on Allegra D, Singulair and Toporol XL.
    historychick 3 Replies Flag this Response
  • Those allergy medications are only masking the overall Immune dysfunction pattern of yours. Your immune system is not able to do its job- you might be allergic to essential nutrients.You need a NAET, a TCM and a Naturopathic Doctor.There is no one word diagnosis, or silver bullet pill for you. To recover is a full-time job.Conventional doctors won't tell you what's wrong with you because they created this disease.You are not a freak case. People like you are been examined by doctors all the time- but they are not writing it in their records. I have proof. Five people, including myself and the doctor said we are all "healthy". They did not record our symptoms. How could you be the only and "freak" case. BS.Best,Fruity.
    Eatafruit78 960 Replies Flag this Response
  • Thanks Fruity! I feel better that I am not the ony one! Yeah I went off the meds for 2 days when I was hospitalized and I was SO sick! How ironic that you would say that! Thanks for your support!K
    Anonymous 42,789 Replies Flag this Response
  • Have you looked into the possibility of having Hashimoto's Thyroiditis?You could have the more unusual type where you have both hyper and hypo symptoms at the same time.Pain in left side under ribcage HYPOReynauds syndrome (cold hands/feet) An autoimmune disease as is Hashimoto's.Frequent, Intermittent fevers of 99.4-100 degrees (daily basis) BOTHExcessive sweating (even just walking to the mailbox!) HYPERNight Sweats BOTH DUE TO SLEEP APNEANausea BOTHHeadaches DUE TO SLEEP APNEA FOR HYPO. PART OF HYPERJoint aches HYPODizziness HYPOWeight gain BOTHSevere Fatigue BOTHChest tightness (kind of feels like when I had pneumonia but comes & goes) HYPOAnd your TSH test could vascillate between low to normal to the higher range and maybe never over the range. Thus some doctors might think something is wrong with the laboratory who did the test and repeat it. Then they get a new result and think it is a fluke and possibly ignore it.Also it is quite common to have more than one autoimmune disease. You have one, therefore, I'd be inclined to think all your symptoms could be that of something like Hashimoto's or even Grave's Disease.What are you TSH, T3, and T4 test results and the ranges for those tests?BTW, you ACTH level is lower at certain times of the day.http://www.nlm.nih.gov/medlineplus/ency/article/000358.htmGrave's Diseasehttp://www.nlm.nih.gov/medlineplus/ency/article/000371.htmHashimoto's Thyroiditis
    Anonymous 42,789 Replies Flag this Response
  • What about mitral valve prolapse??? Sounds like you need to see a cardiologist for an evaluation.
    Monsterlove 2,921 Replies Flag this Response
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