Discussions By Condition: Medical Errors

Calciphylaxis - end stage kidney disease

Posted In: Medical Errors 0 Replies
  • Posted By: vskraitz
  • August 3, 2009
  • 03:21 AM

Has anyone else had a successful diagnosis of this disease? My mother was not diagnosed until 9 months after developing it and then it was too late. She died within 3 weeks of entering the hospital with the severe skin lesions that had developed. Her doctor had thought she had developed diabetic ulcers and had performed several surgeries to 'dig out' the ulcer leaving a hole large enough to set a medium size apple down into it. The condition is rare and usually fatal. There needs to be major education of the kidney doctors and also the PCPs so they can be alert to the signs and symptoms of this horrible disease. Does anyone know of any person who had the disease and lived? Thank you - Vicki

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