Discussions By Condition: Medical Errors

Being told nothing's wrong, when you know something is!

Posted In: Medical Errors 8 Replies
  • Posted By: ChronicNate
  • June 6, 2009
  • 04:52 AM

(I posted this in another section, but it's relevant here as well so I figured I might as well)

Hello everyone, I'm new here as you can probably tell. I have a nice laundry list of medical issues, but I'll focus on the worst for now.

About 2 years ago I was leaning to reach for something on my left arm and heard a pop/snap from my left shoulder. After that the muscles in the shoulder got tighter and tighter over time. I worked out then, and when trying to do bench presses my shoulder actually gave out and I dropped the weight on myself.

I saw numerous doctors, some said "Subacromical Bursitis" to an issue with the Trap muscle. I saw a neurologist and after 2 MRI's spaced over a year it said that I had signs of Degenerative Disc disease, with a narrowing at C6-C7. My pain at this point was from my head, to my shoulder blade, down my arm at the forefinger/thumb. Numbness/tingling/burning/shooting pains were all part of it.

I eventually went into pain management for this and numerous other problems like my knees and was put on opiates so I could actually function. Recently my pain got worse and I noticed it more after a medication change, and now my right shoulder is getting tight just like my left began to hurt. I'm having another EMG done as a prerequisite to seeing a Neurosurgeon/new MRI, but I'm worried as the last one didn't indicate a problem.

Besides that one MRI I've been told by most other tests that nothing is wrong, which is crap. Either I've gone insane and my brain has it out for me, or something is wrong. I also have sciatica symptoms down my leg when I sit in an odd position, or in a recliner which is driving me nuts.

I'm really afraid this is a lot worse than a single herniation or something, and might be spinal stenosis or worse.

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8 Replies:

  • Obviously, you feel there is more to this than the diagnosis' you have received and the treatments, etc. that still leave you experiencing problems. Unfortunately, I can relate all too well! I can only speak for myself ... hence, were I in your shoes ... I would see a neurologist and request an MRI of both in full, the entire brain and entire spine ... with and without contrast (dye); also, a CT scan of both ... in entirety; just to rule out any/all other possibility(ies) and put your mind to rest. If this is a spine issue, as you describe in your post, these procedures should show something. Also, if there is a neurological problem ... such as a problem with "nerve signaling" or similar as well. Also, they can see if this/these problem(s) are manifesting in your brain in lieu of, or in addition to, a potential problem in/with your spine/spinal cord. The central nervous system (CNS) is the core controlling mechanism of the entire body ... and is comprised of both the brain and the spine in their entirety. If both are not "signaling" properly, or if signals are "fragmented" or "misdirected" by malfunction of any sort in/of either, the brain or the spine, a host of problems, conditions, ailments, and sensations can develop as a result. I should know ... mine is limited to my brain, and my entire body experiences the impacts of this "phenomena" 24/7! They tried to blow me off for years, and give me psychiatric meds ... me repeatedly telling them and knowing my own body full-well that something "physical" was taking place. Well ... it took seven years for them to listen to me and finally do the tests I mention above ... and then they saw for themselves!!! Ohhh ... "She's right!" Clearly something is wrong, as your post states ... some abnormalities have already been found. If your providers are "blowing this off" and leaving you to believe your problems have been resolved ... I suggest you find new providers. If they suggest that this is "all in your head," then tell them ... "perhaps it is, maybe a signal problem with brain involvement ... which is why you want the appropriate experts to have a complete and entire look of your CNS system in full!" Lastly, I always go for a 2nd opinion when a provider concludes a diagnosis, or a potential or probable one; I suggest you do the same. In your case, being so much happening (as in my case), I suggest you get three confirmations. Although I see you have had MRI's and such ... I can't help but wonder if the entire brain/spine have been completed together, in full, with and without contrast ... along with a full CT scan of both as well. These tests also indicate any potential weakness in the CNS pertaining to weak signal(s) or more prominent (exaggerated) activity within the CNS ... as in my case as well. As for me, I have a "partial diagnosis" but the cause remains to be determined. I have yet another procedure scheduled for this upcoming week and hope this will finally be concluded once and for all! Best of luck to you, I extend my prayers to you and yours ... and if you would, please think of me as well. I hope you find the answers you need and feel better very soon ... and your ride there, upon your concluded arrival to answers and solutions, will be a short one! :rolleyes:
    neurotransmissing 145 Replies Flag this Response
  • back in jan last yeah i got what looked like appendicitis...and they kept telling me i was constipated...i KNEW i wasn't...i didn't have the normal symptoms...i only did for the 24 hours...and finally after a month i had a CT scan and it showed i had an inflammed appendix so i had it out on valentines day
    Missa995 38 Replies Flag this Response
  • back in jan last yeah i got what looked like appendicitis...and they kept telling me i was constipated...i KNEW i wasn't...i didn't have the normal symptoms...i only did for the 24 hours...and finally after a month i had a CT scan and it showed i had an inflammed appendix so i had it out on valentines day Wow Missa995! I'm so happy you found the problem. Did you have to "press them" to continue testing? Knowing yourself that there was 'more to this' and they were stalling? Just curious. It happens so often, and was the case with/for/of me for nearly seven years. What a blessing that your problem was found and taken care of; that could have been really bad had it gone untreated (not to mention, extremely painful)!
    neurotransmissing 145 Replies Flag this Response
  • oohh yeah!!!...we had to press them hharrdd! they kept saying "oh shes constipated...just take this it'll clean u out and u'll be fine!" i did take the stuff...funny thing is it didn't even work which me and my mom found totally humorous...and after that the pain just kept getting worse and worse untill FINALLY! one of the many docs i saw was like.."okay...we'll give her a CT scan and see if anything shows up" and of corse...there was my appendix!!! inflammed and everything....that last week before i had surgery i only got 2 hours of sleep i was in so much pain.and that was only ONE of the things that i've had...i just had surgery AGAIN! for an ingury that went undiangnosed for 10 months...my appendix was totally tame compared to the ingury i had...if u want to know more just let me knowWow Missa995! I'm so happy you found the problem. Did you have to "press them" to continue testing? Knowing yourself that there was 'more to this' and they were stalling? Just curious. It happens so often, and was the case with/for/of me for nearly seven years. What a blessing that your problem was found and taken care of; that could have been really bad had it gone untreated (not to mention, extremely painful)!
    Missa995 38 Replies Flag this Response
  • oohh yeah!!!...we had to press them hharrdd! they kept saying "oh shes constipated...just take this it'll clean u out and u'll be fine!" i did take the stuff...funny thing is it didn't even work which me and my mom found totally humorous...and after that the pain just kept getting worse and worse untill FINALLY! one of the many docs i saw was like.."okay...we'll give her a CT scan and see if anything shows up" and of corse...there was my appendix!!! inflammed and everything....that last week before i had surgery i only got 2 hours of sleep i was in so much pain. and that was only ONE of the things that i've had...i just had surgery AGAIN! for an ingury that went undiangnosed for 10 months...my appendix was totally tame compared to the ingury i had...if u want to know more just let me know Hi Missa ... thanks for the feedback! Again ... with your further experiences, I see the same; sad. Unfortunately, it happens often. They simply go too fast (assembly line ... "Next!") and don't listen; listening intently to the patient is the absolute best way to get to the bottom of things, in my opinion. Providers that lack this ability (be it ego, lack of humility, know-it-all-ism, or what I refer to as the "God Complex") are really missing out ... and depriving themselves and their patients of the gifts and abilities they could possess if only they could learn and encompass this extremely important skill. On a good note ... there are some really good providers out there, excellent ones, caring, and they don't $$ overbook $$ ... forcing the time constraints upon themselves and their patients ... which ultimately results in poor care overall. The best providers I've found listen, take their time, review all of the options available, and the time is found to be thorough, relaxed, and well-spent on all parts. I suspect this may have a lot to do with a distortion in priorities, or ... for the best providers, the wisdom they have to see the big picture; that they will be much more successful as a provider to the patient, and then futher so ... monetarily ... simply by doing the right thing ... based on the occupation to care for other human beings of which they, themselves, choose (care of patients vs. incurring more income $$$). Seems the ones that have their motives and character intact don't have this problem. Sometimes it appears that good providers are hard to come by ... moreso as the years go by; they are out there though, and we may have to drive a considerable distance to see them ... but it is well worth it as far as I'm concerned! Very sorry to hear this happened to you (too) ... and not just once ... At least we have the experience to know better now so we can better investigate .... I'm happy for us there! Hopefully, others will use much care when seeking providers ... especially with chronic and/or ongoing conditions. Take care, thanks again for sharing more. No questions on my part, the point I was curious about was made, thanks! :)
    neurotransmissing 145 Replies Flag this Response
  • Hi Missa ... thanks for the feedback! Again ... with your further experiences, I see the same; sad. Unfortunately, it happens often. They simply go too fast (assembly line ... "Next!") and don't listen; listening intently to the patient is the absolute best way to get to the bottom of things, in my opinion. Providers that lack this ability (be it ego, lack of humility, know-it-all-ism, or what I refer to as the "God Complex") are really missing out ... and depriving themselves and their patients of the gifts and abilities they could possess if only they could learn and encompass this extremely important skill. On a good note ... there are some really good providers out there, excellent ones, caring, and they don't $$ overbook $$ ... forcing the time constraints upon themselves and their patients ... which ultimately results in poor care overall. The best providers I've found listen, take their time, review all of the options available, and the time is found to be thorough, relaxed, and well-spent on all parts. I suspect this may have a lot to do with a distortion in priorities, or ... for the best providers, the wisdom they have to see the big picture; that they will be much more successful as a provider to the patient, and then futher so ... monetarily ... simply by doing the right thing ... based on the occupation to care for other human beings of which they, themselves, choose (care of patients vs. incurring more income $$$). Seems the ones that have their motives and character intact don't have this problem. Sometimes it appears that good providers are hard to come by ... moreso as the years go by; they are out there though, and we may have to drive a considerable distance to see them ... but it is well worth it as far as I'm concerned! Very sorry to hear this happened to you (too) ... and not just once ... At least we have the experience to know better now so we can better investigate .... I'm happy for us there! Hopefully, others will use much care when seeking providers ... especially with chronic and/or ongoing conditions. Take care, thanks again for sharing more. No questions on my part, the point I was curious about was made, thanks! :) I sure know about distance also! i had to travel out of state for some treatments with this last thing i had (sports hernia...very rare) and for surgery for the sports hernia i had to go to Wisconson...and I live in Michigan...so it was a wase to travel but worth it for the resaults I got!
    Missa995 38 Replies Flag this Response
  • Since I have to wait for a new EMG, then get an MRI then see a new Neurosurgeon, I'm going to a Chiropractor more than anything for an opinion on what's wrong with me. I probably won't let him manipulate my neck, in case it could make it worse, but if it comes down to surgery I will.Basically I've got numerous problems which may or may not be connected:Shoulder/Shoulder blade, neck, arm and fingers all painful, tingling.Constant muscle twitchingLeft foot big toe pain, sounds like Turf Toe or Hallux RigidusSciatica like symptoms from lower back to buttocksIt's gotten so much worse I have to do something, my pain medications used to work well and don't control it now. It's not even tolerance at this point, the pain has just jumped up that much.
    ChronicNate 2 Replies Flag this Response
  • Well CN, I hope they get you in soon; especially with your pain increasing. As for the Chiropractor, I doubt a Chiropractor would do any manipulations at all if there is suspicion of something other than a condition he/she can confirm with absolution. The manipulations could cause more harm than good, so I seriously doubt any Chiropractor would do anything unless the problem directly pertained to his/her expertise without question. The good part though ... you will get an opinion while you wait! At the very least ... you'll know that it's either something the Chiropractor can help with or can't ... at least until you're treated in whatever way necessary upon determination of the problems. As for the meds not working for the pain because it is now so intense, I'd call the prescribing doctor. I'm sure he/she could likely increase the dose ... or if you've already maxed out, give you something else that could work since it would be a new med, newly introduced to your body for the pain ... which could prove more effective. I hope you have asked. If not, please do. That's why they're there, please don't suffer unnecessarily if you don't have to. I'll be thinking of you, good luck; please post updates.
    neurotransmissing 145 Replies Flag this Response
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