Hello, just happened to find this terrific spot thanks to the suggestion of a kind friend. Forgive my rambling and incoherence. I've been sick for a long time - just didn't know it!
I couldn't resist telling those of you dealing with b12 issues the following: Since Sept '08 I have been to four specialists and was days away from major cervical spine surgery ( do have have spurs and stuff on 4 discs) when someone finally said, "oh yes, why don't we check your B12 level" ... after numerous mri's, brain scans, xrays.... On a scale of 211 to 989, my B12 reading was 68. (Is that some kind of world record? OMG.) I then was given ONE shot 1000 cmg and sent on my way with no follow up instructions. Needless to say I am going to the fifth doctor TODAY. wish me luck and blessings to all of you facing your personal challenges.
Later: it's been 3 weeks since diagnosis deficiency B12. Doc #5 said to go to 'X-mart" and buy any brand of B12 1000, one per day. Experienced mild improvement on cyan b12 for two weeks. Cracked lips and burning tongue with sores went away. Some feeling returning to finger tips. L'Hermitte? still very bad. Legs feel strange but not quite as wobbly. Feet especially tingly. Exhaustion continues but mental state doesn't seem quite so black. After reading much info and checking a neuro site, switched to Jarrow methyl 1000-2000 daily and after 10 days symptoms which had showed some improvement are returning.
I feel much worse. Is it possible that the b12 type switch has caused this or is it typical three steps forward two steps back type of thing. I actually had my typing ability back for a week and now I'm like a slug again. Any input would be very much appreciated. anyone ever hear of something crazy like this? Distressed and discouraged.
Oh yes, on a final strange note: neurologist said I have the brain of a 78 year old and I'm 58. (while investigating what they thought was MS) Anyone know about brain atrophy or if there is a possible connection to the b12 issue? Appreciate any and all thoughts shared.