Discussions By Condition: Medical Errors

"Poor bathroom hygeine to diverticulitis fistula

Posted In: Medical Errors 2 Replies
  • Posted By: tardawg
  • July 28, 2009
  • 03:14 PM

I am a 45 y/o XX with a PMH positive for SLE, OA, Ostepenia. Last fall I went to the obgyn c/o air bubbles from my urethra and an occasional "***t" sound at the end of urination. I was experiencing a chronic dull ache in my lower abdomen/super pubic area. Also, sudden onset acute attacks of UTI type symptoms. I was dip negative. He did a dye test into my uterus and found nothing. He told me women my age who have had children will develop a sagging uterus which puts pressure on the bladder causing such symptoms..he offered me a hysterectomy which I declined. I went on three more occasions about the UTI symptoms..same day appts because the pain, need to go but couldnt, and intensity of it was unbearable. The urine dips were negative and the nurse taught me about proper wiping, frequent voiding, voiding before and after sex and etc. Sometimes when i would have these attacks and knowing the doctors opinion, I would take left over antibiotics in the house which helped.

At the same time I was having horrible stomach cramps..bouts of double over cramps..with feverish clammy feeling and the chills. The doctor told me this was common for panic attacks and or anxiety which made since because there were things going on in my life...so I went about with air bubbling from my urethra because I wouldnt have a hysterectomy..went into counseling for better coping of these horrible stomach cramps, and wondered what I was doing so wrong to cause these UTI/bladder attacks
To my discredit, I never attributed 7-10 days of constipation followed by a few days of diarrhea as anything other than how some people are...I would take laxatives which made the cramps worse, or result a week later in diarrhea, but that this meant anything was lost on me.
During counseling we talked about my 50lb weight loss over a 6 month period of time...anxiety and panic can cause decrease in appetite and another visit to my obgyn to discuss my pot belly resulted in a handout about perimenopause.
Went to my rheumatologist for the annual lupus blood work..got a call that i had microscopic hematuria which happens if the kidneys are involved with lupus and to recheck in several months.
Had a bout of the uti attack so bad I went to the er...acute hematuria and superpubic pain..resolved after several hours ( or at least got tolerable) MD speculated I must have passed a kidney stone.
Abdominal cramps intensify...assume my anxiety about urinary problems is the cause...feverish feeling and chills not uncommon with lupus..Im glad I lost 50lbs..25 of them were needed.
Ultimately and recently Ive had a ct with oral and iv contrast, am scheduled for a cystoscopy have been told to consider a surgeon and that any woman with pneumaturia, hematuria, abdomonial pain, weight loss, constipation and etc has diverticulitis complicated by a bladder vistula and will require surgery.
So, I sure wish the doctor who told me to wipe properly, to get therapy for my anxiety driven abdominal cramps, and who offered me a hysterectomy had suggested a comprehensive work up. I have suffered for a long time...questioned my sanity to the point I stopped talking about any of these problems and now I am a very sick person.

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2 Replies:

  • Sorry that you are having so much trouble! I don't have any answers for you, just wanted to let you know that you are not alone with finding doctors who think any woman who comes in with less than "text-book" symptoms are either in need of having internal organs yanked out or counseling for stress and anxiety. I was also dismissed and my complaints minimized for so many years that I also ended up in very bad shape. Have you ever hear of IC-interstitial cystitis? That can be ruled in or out by the cystoscopy and can cause the UTI symptoms you're having, especially since all the dip tests have been neg. for infection. Diverticulitis does also fit a lot of your symptoms. Good luck!
    Anonymous 42789 Replies Flag this Response
  • My sister has Interstitial Cystitis (sp?) as well. From what I understand, it makes her truly miserable. She works for a nephrologist, lucky for her. I would continue to keep an eye on the labs though considering your lupus. Lupus nephritis is one of the biggest concerns for lupus patients and you are probably well aware that lupus patients' blood tests are hard to monitor because they fluctuate so much. I had lupus symptoms for years and was told the same thing, you're crazy, etc. Only after I was nearly dead did my DsDNA ever come up positive. It's all craziness. These doctors think they know it all. My family doctor that I had for ten years told me I was bipolar when I talked to him about lupus. He should have HIS head examined. Sorry that you are having so much trouble! I don't have any answers for you, just wanted to let you know that you are not alone with finding doctors who think any woman who comes in with less than "text-book" symptoms are either in need of having internal organs yanked out or counseling for stress and anxiety. I was also dismissed and my complaints minimized for so many years that I also ended up in very bad shape. Have you ever hear of IC-interstitial cystitis? That can be ruled in or out by the cystoscopy and can cause the UTI symptoms you're having, especially since all the dip tests have been neg. for infection. Diverticulitis does also fit a lot of your symptoms. Good luck!
    Anonymous 42789 Replies
    • September 24, 2009
    • 01:27 PM
    • 0
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