Discussions By Condition: Medical Errors

"It's all in your head" - Reflex Sympathetic Nerve Dystrophy

Posted In: Medical Errors 0 Replies
  • Posted By: wafflecushion
  • October 27, 2006
  • 03:57 PM

When I was about 11 years old, I put my foot on the couch, I don't know what for? To scratch my leg maybe? I have no idea. but I put it back on the ground, turned and walked away, and I had SEVERE heel pain. It was burning, hot to the touch, bright red, stabbing pain. This lasted for about a month before anyone believed me, because everyone assumed I was being a hypocondriac. I went to the doctor, finally, and even after SEVERAL MRI's and x-rays, she still just 'assumed' it was something tendon related and immobilized my foot and ankle. After we took it off 6 weeks later, I did physical therapy. None of these things helped. When I went back, she basically told me it was all in my head and to take motrin.

Needless to say, we never saw her again. So we went to some sports medicine orthepedic guy, I can't recall. He said the same thing.

I ride horses, and after I got back into that(my heel pain was almost gone by then, about 4 months later) I fell off a horse and landed on my back. Two weeks later, I had horrible arm pain. It was hot to the touch, it was sensitive and I couldn't touch it, it was shaking really badly.

I finally went to the ER after I was up crying, scared out of my mind because I couldn't move my fingers. The ER doc had seen 5 cases of what I had. RSD. He sent me to the Pain Management clinic at Children's Mercy. She had me try osteotherapy, accupuncture, PT, herbs, bio-feedback, /several/ anti-depressants and pain-killers, of which nothing helped of course. At one time I was taking 10 pills a day. We dropped her because we were getting the same BS every time.

Now, two years later, RSD has spread through my body(I'm one of the 10% of people that have this happen). One or two spots in my body can hurt one day(or everything), and the next I can hurt in a totally diffrent spot.
I've attempted suicide 3 times, and been in two psychiatric hospitals. I encourage anyone in that state to please get help, because I know it helped me a lot. I don't know how, and I had my doubts.

I hope my story has hopefully given some of you knowledge of RSD if you have symptoms and everything ruled out. It helps a lot to know

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