Forgive the length of this, I will be as brief as possible, and, no, I am not making anything up.
I had been very healthy all of my life until January 2000, when the first of 2 melanomas was surgically removed from my left leg. I was 35 and my risk factor was being unlucky to be born with dysplastic nevi all over my body. Since that point I have had so many things wrong with my health I can't help but feel there must be some common denominator that connects it all. In the past 7 years I have undergone the following in addition to the melanomas: surgery 6 times to remove chronic infection in my right breast culminating in a partial mastectomy (1/2) and latissimus reconstruction, which led to a long battle with MRSA; 3 surgeries to remove an extremely large neuroma from my right foot that kept returning. Rather than doing a 4th surgery, they tried stearoid injections to shrink the neuroma which in turn destroyed the tissue from the inside out on my foot requiring 2 surgeries to debride the infection (MRSA again), 8 months of packing an open wound, the removal of tendon and ligament, 40 hyperbaric treatments, a wound vac and 2 skin grafts to finally close the wound as best as they could...it is a large concave area on top of my foot. This has left severe nerve damage and my 3rd toe is "floppy" so I have to make sure it does not fold under when I put what few shoes I can wear on.
I had a complete hysterectomy in 2002 for extremely large fibroids that caused never ending periods and was left with a vaginal cuff hematoma that took 6 months to clear up.
In 2004 they discovered thyroid cancer and I underwent a complete thyroidectomy and subsequent radioactive iodine treatments. As a result of how large the tumor was and some lymph node involvment, I must endure radioctive iodine full body scans yearly for life.
I developed cervical arthritis and in 2006 had cervical fusion surgery of C4/5 and C5/6 to relieve spinal cord compression.
I developed diabetes, high blood pressure and a constant low grade fever (100-101) during this period as well. My blood pressure is well controlled, but my glucose levels go from one extreme to the other from day to day, sometimes hour to hour.
Every couple of months I develop abcesses along my scars from the breast surgeries that culture staph sometimes and nothing at other times.
Recently I have begun having problems with numbness, tingling and pain that could be in one leg on one day, but the whole side of my body on another. I am seeing a neurologist in 2 days for what my PCP is concerned may be something called Chronic Inflammatory Polyneuropathy Disorder(?) whatever that is. The ER thought I had Guillen Barre Syndrome a few weeks ago, but now they are not sure what to make of it all. A recent EMG shows extreme nerve damage in lots of areas.
I have also had things like an umbilical hernia repair, cubital release surgery of the right elbow, high occular pressure bordering on glaucoma, a chronically high white blood cell count and SED rate.
My wonderful caring primary doc is not only perplexed, but very concerned as well. If anyone has any ideas please let me know. Surely this all can't be random?
I am on many meds, so if listing them will help just ask.
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