In summary, this is my story --- 9 months of ***l in Northern California and I am finally diagnosed --- with the help of a lot of supportive people, my gut feeling, a lot of research and a few amazing doctors who decided to care and take the extra steps to never give up on me. I first went into the hospital November of 2006 with extreme abdominal pain which I later found out was actually in my pelvic region. (Around and below your belly button is pelvic pain). I was then in and out of hospitals until receiving stronger pain medication that enabled me to eat and enabled me to stay out of the hospital when I had my most severe pain attacks. I was diagnosed with, "It's in your head, or functional abdominal pain". I was sent home with, "We don't know. Many people just have debilitating abdominal pain their whole life." I was also diagnosed with Irritable Bowel, depression, stress, even bolemia.
At one point, I was unable to eat for twelve days because the pain killers were not strong enough and was in dire straits and flew out to the Mayo clinic hoping for help. While I was there I went to the hospital to receive fluids to prevent me from passing out because I was so week. The nurse that I first met suggested that they could most likely not help me, that I had been to some very good hospitals, UCSF, Stanford and Marin General (Don't go to Marin General if you don't have to) and she did not think that I needed any emergency care. She even proceeded to suggest that I was bolemic and when I was in a wheel chair because I was in so much pain, she demanded that I get up and walk into her office which I did with so much pain that I was in tears and had nearly passed out by the time I was in her office seat --- only a few feet from the wheel chair.
Crushed by the terrible response at the Mayo clinic, I flew to Texas to be with my mother and her care taker who took me to the pain management doctor to help me manage the pain I was in that was so debilitating. By this point I had lost over thirty pounds and was skin and bones. This doctor helped me (a second time), thanks to God I believe. He gave me pain medication that enabled me to eat, to walk a few hours a day and prevented me from going back to the hospital while he tried to figure out a possible diagnosis or which specialist to send me to. Earlier in the year I had flown to my parents and had met this doctor but had flown back home hoping to continue the same care and had never found it). This was a definite lesson: when you find a doctor who is aggressive and who cares, stick with that doctor. In any case, after having every test: a colonoscopy, an endoscopy, CAT scans, ultrasounds, an MRI, X-rays, the other possibility from my symptoms and my family history was endometriosis. The doctor recommended that I see an Obgyn surgeon who specialized in endometriosis. I went to see the Obgyn and also mentioned to him that I had never been the same since I suffered from a severe infection from a tampon. From my symptoms, he said that scar tissue from this previous infection and endometriosis were possibilities. He recommended various possible treatments and also the option of doing a labaroscopy. Given the information, I chose the labaroscopy and went into surgery. I woke up and saw my mother and our family friend with two thumbs up. They said that the doctor had found both a scar tissue adhesion to my intestines and endometriosis and had taken it out. I am currently in recovery and although I am hurting from healing, I am on the mend and am not suffering from the abdominal pain that I had had. I owe a lot to these doctors --- from Houston, Texas -- who were aggressive, who believed in me and who were there to find out what was wrong and cured me. The doctor had said that we needed to just keep chipping away and that's what he did.
So, trust your gut, find a doctor with compassion who is aggressive and stay with him, stay hopeful, keep your mind positive and never give up.
After nine months of ***l of being undiagnosed and misdiagnosed I am finally recovering and have a HUGE amount of compassion for people with chronic pain. I honestly don't know how much longer I could have suffered without my body giving out on me. Thank you to the one person who responded to my initial thread, who was wrong but who gave me hope which was more important and thank you to all of the people who have been brave enough to share their story on this website. I will continue to visit to see if I can help anyone else and will continue to share my story and to keep everyone in my prayers. Thanks again to everyone who supported me, prayed for me or even thought of me during this ordeal. Also, thank you to all of the people and all of the doctors who doubted me, treated me inhumanely or without compassion, or were just uncaring. You made me stronger and better able to identify the best doctors and the best people.
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