Discussions By Condition: Medical Errors

9 months of ***l,excruciating abdominal pain, vomiting, unable to eat - CURED FINALLY

Posted In: Medical Errors 11 Replies
  • Posted By: Anonymous
  • August 3, 2007
  • 11:48 AM

In summary, this is my story --- 9 months of ***l in Northern California and I am finally diagnosed --- with the help of a lot of supportive people, my gut feeling, a lot of research and a few amazing doctors who decided to care and take the extra steps to never give up on me. I first went into the hospital November of 2006 with extreme abdominal pain which I later found out was actually in my pelvic region. (Around and below your belly button is pelvic pain). I was then in and out of hospitals until receiving stronger pain medication that enabled me to eat and enabled me to stay out of the hospital when I had my most severe pain attacks. I was diagnosed with, "It's in your head, or functional abdominal pain". I was sent home with, "We don't know. Many people just have debilitating abdominal pain their whole life." I was also diagnosed with Irritable Bowel, depression, stress, even bolemia.

At one point, I was unable to eat for twelve days because the pain killers were not strong enough and was in dire straits and flew out to the Mayo clinic hoping for help. While I was there I went to the hospital to receive fluids to prevent me from passing out because I was so week. The nurse that I first met suggested that they could most likely not help me, that I had been to some very good hospitals, UCSF, Stanford and Marin General (Don't go to Marin General if you don't have to) and she did not think that I needed any emergency care. She even proceeded to suggest that I was bolemic and when I was in a wheel chair because I was in so much pain, she demanded that I get up and walk into her office which I did with so much pain that I was in tears and had nearly passed out by the time I was in her office seat --- only a few feet from the wheel chair.

Crushed by the terrible response at the Mayo clinic, I flew to Texas to be with my mother and her care taker who took me to the pain management doctor to help me manage the pain I was in that was so debilitating. By this point I had lost over thirty pounds and was skin and bones. This doctor helped me (a second time), thanks to God I believe. He gave me pain medication that enabled me to eat, to walk a few hours a day and prevented me from going back to the hospital while he tried to figure out a possible diagnosis or which specialist to send me to. Earlier in the year I had flown to my parents and had met this doctor but had flown back home hoping to continue the same care and had never found it). This was a definite lesson: when you find a doctor who is aggressive and who cares, stick with that doctor. In any case, after having every test: a colonoscopy, an endoscopy, CAT scans, ultrasounds, an MRI, X-rays, the other possibility from my symptoms and my family history was endometriosis. The doctor recommended that I see an Obgyn surgeon who specialized in endometriosis. I went to see the Obgyn and also mentioned to him that I had never been the same since I suffered from a severe infection from a tampon. From my symptoms, he said that scar tissue from this previous infection and endometriosis were possibilities. He recommended various possible treatments and also the option of doing a labaroscopy. Given the information, I chose the labaroscopy and went into surgery. I woke up and saw my mother and our family friend with two thumbs up. They said that the doctor had found both a scar tissue adhesion to my intestines and endometriosis and had taken it out. I am currently in recovery and although I am hurting from healing, I am on the mend and am not suffering from the abdominal pain that I had had. I owe a lot to these doctors --- from Houston, Texas -- who were aggressive, who believed in me and who were there to find out what was wrong and cured me. The doctor had said that we needed to just keep chipping away and that's what he did.

So, trust your gut, find a doctor with compassion who is aggressive and stay with him, stay hopeful, keep your mind positive and never give up.

After nine months of ***l of being undiagnosed and misdiagnosed I am finally recovering and have a HUGE amount of compassion for people with chronic pain. I honestly don't know how much longer I could have suffered without my body giving out on me. Thank you to the one person who responded to my initial thread, who was wrong but who gave me hope which was more important and thank you to all of the people who have been brave enough to share their story on this website. I will continue to visit to see if I can help anyone else and will continue to share my story and to keep everyone in my prayers. Thanks again to everyone who supported me, prayed for me or even thought of me during this ordeal. Also, thank you to all of the people and all of the doctors who doubted me, treated me inhumanely or without compassion, or were just uncaring. You made me stronger and better able to identify the best doctors and the best people.

Sincerely,
Hopey :D

Reply Flag this Discussion

11 Replies:

  • Human Compassion these days is being replace by the greed for money or the lack of enthusiasm for another human being. You are brave and I commend you on your strength during your ordeal. I posted a new thread on Mad Cow Disease, and the ignorance behindthe death of a relative. Should be up real soon. Thanks:) In summary, this is my story --- 9 months of ***l in Northern California and I am finally diagnosed --- with the help of a lot of supportive people, my gut feeling, a lot of research and a few amazing doctors who decided to care and take the extra steps to never give up on me. I first went into the hospital November of 2006 with extreme abdominal pain which I later found out was actually in my pelvic region. (Around and below your belly button is pelvic pain). I was then in and out of hospitals until receiving stronger pain medication that enabled me to eat and enabled me to stay out of the hospital when I had my most severe pain attacks. I was diagnosed with, "It's in your head, or functional abdominal pain". I was sent home with, "We don't know. Many people just have debilitating abdominal pain their whole life." I was also diagnosed with Irritable Bowel, depression, stress, even bolemia. At one point, I was unable to eat for twelve days because the pain killers were not strong enough and was in dire straits and flew out to the Mayo clinic hoping for help. While I was there I went to the hospital to receive fluids to prevent me from passing out because I was so week. The nurse that I first met suggested that they could most likely not help me, that I had been to some very good hospitals, UCSF, Stanford and Marin General (Don't go to Marin General if you don't have to) and she did not think that I needed any emergency care. She even proceeded to suggest that I was bolemic and when I was in a wheel chair because I was in so much pain, she demanded that I get up and walk into her office which I did with so much pain that I was in tears and had nearly passed out by the time I was in her office seat --- only a few feet from the wheel chair. Crushed by the terrible response at the Mayo clinic, I flew to Texas to be with my mother and her care taker who took me to the pain management doctor to help me manage the pain I was in that was so debilitating. By this point I had lost over thirty pounds and was skin and bones. This doctor helped me (a second time), thanks to God I believe. He gave me pain medication that enabled me to eat, to walk a few hours a day and prevented me from going back to the hospital while he tried to figure out a possible diagnosis or which specialist to send me to. Earlier in the year I had flown to my parents and had met this doctor but had flown back home hoping to continue the same care and had never found it). This was a definite lesson: when you find a doctor who is aggressive and who cares, stick with that doctor. In any case, after having every test: a colonoscopy, an endoscopy, CAT scans, ultrasounds, an MRI, X-rays, the other possibility from my symptoms and my family history was endometriosis. The doctor recommended that I see an Obgyn surgeon who specialized in endometriosis. I went to see the Obgyn and also mentioned to him that I had never been the same since I suffered from a severe infection from a tampon. From my symptoms, he said that scar tissue from this previous infection and endometriosis were possibilities. He recommended various possible treatments and also the option of doing a labaroscopy. Given the information, I chose the labaroscopy and went into surgery. I woke up and saw my mother and our family friend with two thumbs up. They said that the doctor had found both a scar tissue adhesion to my intestines and endometriosis and had taken it out. I am currently in recovery and although I am hurting from healing, I am on the mend and am not suffering from the abdominal pain that I had had. I owe a lot to these doctors --- from Houston, Texas -- who were aggressive, who believed in me and who were there to find out what was wrong and cured me. The doctor had said that we needed to just keep chipping away and that's what he did. So, trust your gut, find a doctor with compassion who is aggressive and stay with him, stay hopeful, keep your mind positive and never give up. After nine months of ***l of being undiagnosed and misdiagnosed I am finally recovering and have a HUGE amount of compassion for people with chronic pain. I honestly don't know how much longer I could have suffered without my body giving out on me. Thank you to the one person who responded to my initial thread, who was wrong but who gave me hope which was more important and thank you to all of the people who have been brave enough to share their story on this website. I will continue to visit to see if I can help anyone else and will continue to share my story and to keep everyone in my prayers. Thanks again to everyone who supported me, prayed for me or even thought of me during this ordeal. Also, thank you to all of the people and all of the doctors who doubted me, treated me inhumanely or without compassion, or were just uncaring. You made me stronger and better able to identify the best doctors and the best people. Sincerely,Hopey :D
    Hot-Topic 2 Replies
    • August 21, 2007
    • 06:31 PM
    • 0
    Flag this Response
  • I can sympathize with you. I was diagnosed with Endo when I was 20 years old. I was told I wasn't old enough to have it, but there it was. My first laproscoptomy went well and I did not have the pain or problems for about 4 years, then it all came back. My second surgery lasted a little longer and had my recent surgery in July 06. The last surgery did nothing for me, my pain and symptoms are back and worse than ever. The doctors keep telling me there is nothing else they can do besides having a hysterectomy and I'm just not ready to do that. They tell me I can't have my cake and eat it too - this is the hand I was dealt so deal with it. I hate doctors.
    mstrysh 6 Replies
    • September 21, 2007
    • 07:48 PM
    • 0
    Flag this Response
  • I can sympathize with you. I was diagnosed with Endo when I was 20 years old. I was told I wasn't old enough to have it, but there it was. My first laproscoptomy went well and I did not have the pain or problems for about 4 years, then it all came back. My second surgery lasted a little longer and had my recent surgery in July 06. The last surgery did nothing for me, my pain and symptoms are back and worse than ever. The doctors keep telling me there is nothing else they can do besides having a hysterectomy and I'm just not ready to do that. They tell me I can't have my cake and eat it too - this is the hand I was dealt so deal with it. I hate doctors. Endometriosis is a bear, and I am sorry you and the original poster had to deal with this. Please know that even with a hysterectomy, you could still have the pain. I agree to avoid this if at all possible. Please consider going to an acupuncturist who specializes in Women's health and is certified in Chinese herbal medicine. I have successfully treated several women who were in extreme pain from endo. This form of medicine can really help, but often it takes some time. IME, Chinese herbal medicine is of most importance in successfully treating this problem. Acupuncture helps, but the herbs really make a difference. Please visit www.acufinder.com to find a practitioner near you, and ask if they are NCCAOM certified in Chinese herbology. Best wishesDOM
    acuann 3080 Replies
    • September 21, 2007
    • 08:05 PM
    • 0
    Flag this Response
  • Listen to the info just above. Endo is an imbalance between hormones. That imbalance can often be dealt with by using ways to return hormones to balance. I really have no clue why regular medicine says they have no clue - it sort of says to me they do not care enough to continue to explore.Listen to accuann and begin a new journey towards health. It is really annoying to me that so many health pros keep thinking the same and repeating the same.
    Anonymous 42789 Replies
    • September 24, 2007
    • 02:39 PM
    • 0
    Flag this Response
  • I can sympathize with you. I was diagnosed with Endo when I was 20 years old. I was told I wasn't old enough to have it, but there it was. My first laproscoptomy went well and I did not have the pain or problems for about 4 years, then it all came back. My second surgery lasted a little longer and had my recent surgery in July 06. The last surgery did nothing for me, my pain and symptoms are back and worse than ever. The doctors keep telling me there is nothing else they can do besides having a hysterectomy and I'm just not ready to do that. They tell me I can't have my cake and eat it too - this is the hand I was dealt so deal with it. I hate doctors.I am a doctor. I sympathize with everyone who has pain. I cannot for the life of me understand why you hate the doctors who are treating you for your endometriosis. It is the nature of the disease, not the doctors' fault. Your statement is like saying you hate police because they can't stop you from being robbed. Evidence shows that most endometriosis may originate from the inner lining of the uterus. When the uterus is removed, most endometriosis resolves except that which already is outside of the uterus. Perhaps the doctors were not able to communicate this in a pleasant manner to you. Doctors do fail in that respect. They do not get to spend as much time as they could with you. Part of the reason is that they want to make a good living that they feel they have earned by virtue of their hard work all their lives since elementary school. Since greedy insurance companies have cut the doctors' reimbursement per case by more than half of what was paid in the past, and their malpractice rates are getting ridiculously high, doctors have become more short with their patients and perhaps more "callous" appearing. I apologize for any doctor who has done this to you and caused you to hate all of us.
    Anonymous 42789 Replies
    • October 10, 2007
    • 06:37 PM
    • 0
    Flag this Response
  • Hey doc above - if you want to really help patients how about helping organs heal so they can perform their tasks correctly instead of just cutting parts out ? Getting rid of organs and symptoms is not really dealing with the cause, is it ? IME with patients, endo is fairly easy to control in a good number of cases. It is an imbalance of hormones, too much estrogen compared to progesterone. When the ratios are correct, the endo goes away. I have no clue why we as a species tend to make things complicated. We may also want to look at the HPA axis to see if it is involved - an example on that is a great study in the BMJ a few years ago that show that most PCOS is induced by the hypothalamus. So balance that and the body should return to balance. I am a DC in OH, where we are allowed to (and have been trained in) delivering babies, OB-GYN and more, but not using drugs or cutting out parts.
    Anonymous 42789 Replies
    • October 10, 2007
    • 11:14 PM
    • 0
    Flag this Response
  • Hey doc above - if you want to really help patients how about helping organs heal so they can perform their tasks correctly instead of just cutting parts out ? Getting rid of organs and symptoms is not really dealing with the cause, is it ? IME with patients, endo is fairly easy to control in a good number of cases. It is an imbalance of hormones, too much estrogen compared to progesterone. When the ratios are correct, the endo goes away. I have no clue why we as a species tend to make things complicated. We may also want to look at the HPA axis to see if it is involved - an example on that is a great study in the BMJ a few years ago that show that most PCOS is induced by the hypothalamus. So balance that and the body should return to balance. I am a DC in OH, where we are allowed to (and have been trained in) delivering babies, OB-GYN and more, but not using drugs or cutting out parts. I honestly believe the doctors of the future will be able to say the following: "Hey, I would like to help you, but Western treatment for your disorder (whether it is endo, chronic fatigue, low back or knee pain or anything else) just isn't very helpful. Please go see a chiropractor or Doctor of Oriental Medicine as they would be better able to help you." That will be true CAM medicine...and that would be an amazing thing indeed. Best wishesDOM
    acuann 3080 Replies
    • October 11, 2007
    • 06:40 PM
    • 0
    Flag this Response
  • I have suffered for many years with the same things. I have seen doctors from Northern California to Atlanta, Georgia and I have had my share of surgeries. My symptoms have returned stronger than ever and I am interested in finding out who your Houston doc (s) were.
    Anonymous 42789 Replies
    • September 1, 2009
    • 03:23 AM
    • 0
    Flag this Response
  • Hey doc above - if you want to really help patients how about helping organs heal so they can perform their tasks correctly instead of just cutting parts out ? Getting rid of organs and symptoms is not really dealing with the cause, is it ? Okay, you seem to know what you are talking about. Please, point us to the medical literature which explains the cure for endometriosis.What, can't find it? That's because it DOESN'T EXIST! No, there is no permanent cure for endometriosis. Is that the doctors' fault? Would you also like to blame doctors for not having a cure for cancer? Or how about blaming them for any kind of death you personally deem as medically preventible, irrespective of the data?So doctors do their best to treat endometriosis with what they have. Sometimes it can be kept under control with medication including hormones. Sometimes surgery is required, but it is rarely a permanent solution. The most permanent solution to the symptoms if s hysterectomy and yes, some women have had enough of regular utterly debilitating pain that they choose to do this. IME with patients, endo is fairly easy to control in a good number of cases. It is an imbalance of hormones, too much estrogen compared to progesterone. When the ratios are correct, the endo goes away. No, it isn't. Symptoms of endometriosis can be improved or worsened by altering female hormones, but this isn't the cause of endometriosis.Seriously hate endo all you like, but before you go attacking doctors you might just want to get your facts straight. It helps to stop you looking like a total jack***
    Anonymous 42789 Replies
    • September 5, 2009
    • 10:33 AM
    • 0
    Flag this Response
  • I have a friend who is always been sick she is vomiting, has severe stomach pains and I have myself taken her to the hospital several times and she has taken herself more than I have taken her and the doctors do not know what is wrong with her.. I would like some help or suggestions on what to do to help her...... She has been like this since 2000 and recently she has not been sick she went 9 months without anything wrong and now its back.....She sometimes goes 2 to 3 months being sick....PLEASE HELP
    Anonymous 42789 Replies
    • August 18, 2010
    • 07:41 PM
    • 0
    Flag this Response
  • I have a friend who is always been sick she is vomiting, has severe stomach pains and I have myself taken her to the hospital several times and she has taken herself more than I have taken her and the doctors do not know what is wrong with her.. I would like some help or suggestions on what to do to help her...... She has been like this since 2000 and recently she has not been sick she went 9 months without anything wrong and now its back.....She sometimes goes 2 to 3 months being sick....PLEASE HELPOk - take a deep breath -- this is what I did - maybe something will click or help you -- I went to a good pain management doctor to get the pain under control so that I was not in and out of hospitals. Once the pain was in control, I could go and start seeing different specialists and usually having several opinions - I went to several gastroenterologists, an endocrinologist, internists. I did every procedure that I felt comfortable with to help Doctors deduce what was wrong. In the end, after a possible diagnosis I opted for surgery and it helped - I always went with my gut and with all my senses. I also learned to be very aware of my body and to be able to communicate what was wrong - what I was feeling. She will get through this. I am always here for moral support - write me again if you need it. Hopey
    Anonymous 42789 Replies
    • August 19, 2010
    • 04:12 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

Thanks! A moderator will review your post and it will be live within the next 24 hours.