Discussions By Condition: Medical Errors

50 years with scarlet fever?

Posted In: Medical Errors 5 Replies
  • Posted By: DaisyLee
  • February 3, 2007
  • 08:27 PM


:mad: Yes I am a little angry to day, and feverish with my itchy rash. Here’s the story. I was born in 1953. There are two events that happened early in my life that seem to keep colliding in the course of my life. When I was 15 months old, I fell from a 2nd story window and landed on my chin onto a cement step porch. The impact bent the baby bones of my neck and jaw out of shape as well as drove all of my baby teeth back up into my gums. They didn’t return for a while so screwed up the development and health of my permanent teeth. Part 2 - When I was 3 ½ years old, I started getting sick with delirium level fevers and rashes. We were farmers and medical help was not easily available. The fevers and delirium states occurred every month for about 2 years. When I was about 6 years old, a doctor finally diagnosed it as Scarletina. He gave my mom medicine that I had to take for a month. He was adamant with my mother that this was NOT Scarlet Fever. Probably because people of that day were so afraid of Scarlet Fever and we had so many kids. The medicine seemed to stop the fevers for a couple of years. My tonsils and adenoids were bad but they wouldn’t take them out. When I was 14 the doctors finally removed my tonsils. The fevers had already started again. The surgeon who removed my tonsils told Mom that they had deteriorated so badly that I had been swallowing chunks of them over time. The fevers abated after that for a few years, showing up about once a year. I had children in 1972 and 1973. Before they were 5 years old they had fevers and tonsillitis attacks. For me, in 1978 the fevers came back with a vengeance. Over the next several years I was in delirium fever states 3 to 5 times a year. I saw doctors pretty much with every fever outbreak. They never took throat swabs or tests. Their diagnosis ranged from “the flu” to “allergy to medicine” as explanations for the rash pattern. They had me convinced, as they worked their way through the full range of antibiotics, that I was allergic to all of them. By 1983 they told me that there was only 3 antibiotics left (all of which had extreme side effects) that I could take. All this was their explanation for the rash which by the way had a very specific pattern and behavior. I say again, none of them ever took throat swabs or tests. By 1986 I learned to GET UP AND WALK AND WORK my way through the delirium states until the fevers broke without the benefits of medications. By 1989 I started severe uterine bleeding. It took 2 more years to get that dealt with and the fevers continued. I finally threw a screaming crying fit in the waiting room of Mount Sinai Hospital. That’s when they agreed to finally remove my uterus. I was down to about 86 lbs. Shortly after this, a doctor associated with Mount Sinai diagnosed me with Systemic Lupus. After a multitude of tests – she gave me that diagnosis. I was exhibiting 11 active symptoms of Lupus. She was then “spoken with” by her colleagues. The results of which were that she called me and reversed her diagnosis. She said she could be of no further help to me. Since then, the fevers still occur 3 to 5 times a year. I am still getting “flu” diagnosis but no throat swabs yet! The connection to the dental issue that I mentioned in the beginning of my story, is that the dentist I started seeing last year, made up his mind that I had a history of Scarlet Fever. No explanation of mine would deter him. The walk in clinic that I go to also told him that was wrong, but he insists that I take massive doses of antibiotics 4 hours before entering his office (2000 mg per dose to be precise). I will say that the doctor did test my blood, but never when I was having an outbreak. This doctor, the same as all his predecessors, has never taken a throat swab when I have gone to him for a fever. He gives me the antibiotics only because I continue to get tooth abscesses when I get the fevers (abscesses are a common effect of SCARLET FEVER). The dentist just wants to remove all my molars in spite of the fact that it would leave me with only one grinder tooth to chew my food with. So are those swabs too expensive for the doctors to actually use or what? Several things concern me about all of this. First – Did the medical profession all go brain-dead or have they just forgotten that Scarlet fever is a contagious disease? When I came home yesterday from the doctor, again with the fever, the rash, my antibiotics and feeling pretty crappy, I decided to go on the internet and find out what Scarletina actually is. Guess what? It is simply an alternative name for SCARLET FEVER. So for 50 years now I have been spreading these germs. I know now that I gave them to my kids for sure, and now maybe my grandchildren. All of whom have never had throat swabs during an outbreak. All of whom have never been correctly diagnosed. Some of whom have residual health damage. And there are so many others I have had contact with while ill? Remember I learned to walk and work while ill. The Medical Profession gave me no other choice. I regularly hear that we the patient has to be more pro-active for our own health. So what now? And what product do I use to clean my house, clothes (they used to burn them for Scarlet fever patients), my body? How do I get this disease recognized and finally out of my system?

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5 Replies:

  • Hi, i hope that someone has read my posting about scarlet fever. Would anyone please make comment or give me some ideas what to do?
    DaisyLee 3 Replies
    • February 4, 2007
    • 04:54 PM
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  • Hi DaisyLee, I read your story and feel badly you have been through this for so long!! Have you been tested for Lyme disease and its co infections?? Babesia, bartonella, borellia and more. They can be the sourse of the rash and fevers. Lupus, is NOW connected to Lyme. As well as MS, CFS, Fibro and much more. Its very possible that you were bitten by ticks, growing up in a farming area. Many people didn't get the "bulls eye" rash and didn't know they were bitten!! NOW it is also known, that you could have , unknowingly passed the bacterias on to your children when you were pregnant. For you to have had this so long, you have to have a huge bacteria count!! Lyme is also an infectious disease. Very strange, the doc dx'd lupus and then got talked into changeing her mind and dropping you.. ""I finally threw a screaming crying fit in the waiting room of Mount Sinai Hospital. That’s when they agreed to finally remove my uterus. I was down to about 86 lbs. Shortly after this, a doctor associated with Mount Sinai diagnosed me with Systemic Lupus. After a multitude of tests – she gave me that diagnosis. I was exhibiting 11 active symptoms of Lupus. She was then “spoken with” by her colleagues. The results of which were that she called me and reversed her diagnosis. She said she could be of no further help to me.""" Are you still in the Mt Sinai area?? That is supposted to be a great medical center.. Can you get to docs away from your home area?? See your medical charts and reports?? Many doc's have dropped patients, once its learned they are dealing with Lyme Disease... Something to do with the gov't. The dentist, is trying to keep bacteria from affecting your heart, with giving the abx before doing the dental work. Not to scare you, do a google search on Lyme disease and also Plum Island and Lyme.Daisy, go to the website, www.lymenet.org , there are many people there that should be able to help you seek the truth!!! I was bitten in 86-88. It looked more like a huge bruise. I had alot of strange symptoms and the docs blew me off. Till I got so bad, they thought I had MS...But no brain lesions, so they Dx'd me with fibro and treated me for that for 6 yrs. I again inquired abt Lyme disease and got a Rheummy to test me..the numbers are way up there for me....I have only been treating for a few months and have felt better than I have for yrs. I am in NJ, the whole east coast crawling with Lyme and many unexplained sicknessess. Good luck Sweetie..Hope you get the right treatment soon.
    Anonymous 42789 Replies
    • February 6, 2007
    • 01:03 PM
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  • Thanks, I'll go check lyme disease. I appreciate your comments
    DaisyLee 3 Replies
    • February 6, 2007
    • 04:47 PM
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  • My son had Scarlet fever. He had strep, and impetago. It turned into scarlet fever and he was so red all over that he looked like he had a really bad sunburn. He was in pain too. He then peeled. I think that is the key to find out if you have this disease. If you have it you will turn very red and then your skin will begin to peel. God Bless!
    Anonymous 42789 Replies
    • February 12, 2007
    • 01:55 AM
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  • Daisy,I found out a few years ago that I had Scarlet Fever from my mother. I never knew it. I also had bouts of spiking fever when I was a child and was pumped full of antibiotics that eventually (they thought) caused rashes and then they told me I was allergic to the antibiotics. I had my tonsils out, but the fevers continued yearly and they were blamed on strep that was treated without throat swabs to check it. My teeth were ruined and if you look up decalcification caused by Scarlet Fever, you will see what happened to mine. My teeth also spontaneously abscess and at this point they are all full of root canals and crowned by four. I have twenty two left. I've also become allergic to antibiotic after antibiotic (or so they say). Main indicator? A rash. I also had sudden and uncontrolled bleeding of my uterus which ended with a hysterectomy after I bled continuously for 10 months straight without stopping.Sound a little too eerily familiar? I think so. It was also a dentist who eventually asked me about Scarlet fever which led me to ask my mother. Lo and behold. No one has ever swabbed me either or checked it. No one ever diagnosed me with lupus. I've known people with lupus and this was not the same. I've also known people with Lyme. Same thing. Now you are making me wonder. I'm going to ask my mother how I was treated. I remember being in the hospital and alcohol and ice baths. Do you remember any of that? I wonder if my mother would remember what they treated me with. I'll let you know what I find out. I don't think this is a coincidence.Zanne
    Anonymous 42789 Replies Flag this Response
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