Discussions By Condition: Medical Errors

3 misdiagnosis in my daughter before the right one

Posted In: Medical Errors 0 Replies
  • Posted By: Anonymous
  • September 2, 2009
  • 02:51 AM

My daughter was born completely healthy in 2008. She passed all her initial tests with flying colors. However, within a few weeks we noticed that she always tilted her head to the left. Her doctor said it was mild torticollis at her 2 month check-up. At her four month check-up, we made him watch her when she was trying to grab something. With her right arm, she could reach right out and get what she wanted. With her left arm, she had to swing her body and arm. She would never unclench her left fist. He diagnosed her with brachial plexus palsy and did the x-ray to make sure it was not her bones in the wrong place. From this point on, we were pretty much ignored when it came to our concerns. She was not using her left leg right and was not talking/babbling the way that she was suppose to. At 14 months old, we finally demanded that she have a MRI. We told the doctor that we did not think that this was brachial plexus palsy because her entire left side was effected and brachial plexus palsy does not effect language development. He diagnosed her with cerebral palsy. At 15 months she had her MRI done. At 17 months, we finally got the results. Diagnosis: left hemiparesis due to an in-utero stroke. Thankfully she is expected to make almost a full recovery because kids brains have a lot of plasticity and she has been in therapy since she was 4 months old. We were really lucky to get a therapist who recognized that she had more problems than the doctor said and started her at an early age with her treatments. She is now 18 months old and it is barely noticeable any more that she ever had any problems. People are amazed that the baby who could not hold her own head up, roll, or make babbling noises at 6 months old is now this running, energetic, talking toddler. We are very happy with her progress, but we wish the doctors had listened to us in the beginning and did an MRI sooner. It was very frustrating for us to know that the diagnosis were not fitting all the symptoms and to not have anyone willing to find the right one.

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