Discussions By Condition: Map Dog Fingerprint Dystrophy

Map dot fingerprint dystrophy

Posted In: Map Dog Fingerprint Dystrophy 9 Replies
  • Posted By: Anonymous
  • May 22, 2008
  • 05:02 PM

I have this disorder and was wondering if what I read on the internet is true. I read that this flares up for a few years and then goes away on its own. I had the corneal scraping about 1 month ago and so far, so good. No erosions in the eye that was scraped. I did have a very minor one recently in my other eye. It woke me up and then I was terrified to go back to sleep. Does anyone else feel the terror in closing their eyes at night and opening them in the morning? Just want to hear from people that are experiencing this. Thanks!

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9 Replies:

  • I was just diagnosed with this today ... I do hate those days when I wake up and I'm in pain and cannot see .... I'm scared because I read on google that the symptoms worsen with age.
    Anonymous 42789 Replies Flag this Response
  • I know too well that fear of sleep because of the pain you'll feel upon waking. I carefully open my eye with my fingertips and apply the preservative free artificial tears as I open it. The aching leads to a morning headache. It will be hours before the sunlight isn't painful, this can limit my driving abilities. I've been seeing an opthamologist for 2 months (former chief of opthamology). He hasn't recommended abrading. Just Muro 128 drops and ointment.
    Anonymous 42789 Replies Flag this Response
  • Hi, use Aloe Vera eye drobs, will make immediately effect! regards!
    Anonymous 42789 Replies Flag this Response
  • I have this condition and man, let me tell its not a pleasant way to wake up. You can go from a sound sleep to instantly wide awake with your eye tearing, light sensitive, MASSIVE pain, and precious little you can do about it. Both of my eyes are affected; symptoms can vary from a very mild episode that you hardly notice to a severe one that affects sight for days.For me, it's not an every day occurrence-- more like once every 2 or 3 weeks. Never in both eyes at once thank god. I find if I wake up suddenly to an alarm clock or the phone ringing I am more prone to have an episode than if I wake naturally or a little before the alarm. Eye drops before bed and in the middle of the night if you get up for whatever reason seem to help. The drier the eye, the more prone you are to an attack. Which is why it tends to happen in the morning after waking. The Dr. recommended some ointment but I never followed up on it. Doesn't seem to be a whole lot you can do except keep your eyes moist. I also find that after a severe episode an eye patch helps-- it lets you keep your eye open but helps with the foreign body sensation and light sensitivity. I am male, 45 years old and this just started last year.
    Anonymous 42789 Replies Flag this Response
  • I was just diagnosed with this. I am a 50 year old female. I wake up with pain so bad, I can't open my eyes and end up on the floor in pain. I have almost fell down the stairs trying to get to the freezer for ice to try and numb the pain. My doctor prescribed sodium chloride drops and ointment. He also is continuing the restasis I have been on for the past 3 months. I have tried everything. I sleep with eyedrops next to my bed, a humidifier, you name it, nothing helped. Finally today I found out what it is. I have had dry eye problems for years on and off. I don't know why, but waking up is the worst. I have lost several nights sleep for fear of waking up in pain. I wish you luck with yours. , I have this condition and man, let me tell its not a pleasant way to wake up. You can go from a sound sleep to instantly wide awake with your eye tearing, light sensitive, MASSIVE pain, and precious little you can do about it. Both of my eyes are affected; symptoms can vary from a very mild episode that you hardly notice to a severe one that affects sight for days.For me, it's not an every day occurrence-- more like once every 2 or 3 weeks. Never in both eyes at once thank god. I find if I wake up suddenly to an alarm clock or the phone ringing I am more prone to have an episode than if I wake naturally or a little before the alarm. Eye drops before bed and in the middle of the night if you get up for whatever reason seem to help. The drier the eye, the more prone you are to an attack. Which is why it tends to happen in the morning after waking. The Dr. recommended some ointment but I never followed up on it. Doesn't seem to be a whole lot you can do except keep your eyes moist. I also find that after a severe episode an eye patch helps-- it lets you keep your eye open but helps with the foreign body sensation and light sensitivity. I am male, 45 years old and this just started last year.
    Anonymous 42789 Replies
    • September 2, 2009
    • 10:40 PM
    • 0
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  • I am a 44 year old female with no real medical problems other then a slow thyroid which is under control with meds, and this incredibly painful disease. I was also misdiagnosed before I found out what this was, being told everything from metal in the eye to an allergy. I actually work up one morning and thought my eye was stabbed in the middle of the night. As far as what can help, I appreciate all of the suggestions, but it seems so random. The only things I do notice that help are to drink lots of water, I found that when I consume even the smallest quantity of alcohol, or to much coffee, that the symptoms are worse. Also, being jolted awake is also more painful as someone else noted. The salt drops prescribed by my doctor seemed to make this worse for me, so I just use refresh tears. All drops should be preservative free. Also, full removal of all eyemake before bed time is a must. I am told this condition is much worse for smokers, so quit if you smoke. For me, started in my mid thirties. I am working on about 10 years with this, so the claims that this goes away I have not found to be true. Symptoms did subside for a while, but there are periods I go through that this occurs every night. I am worried about long term vision problems. Anyone who has tips, or can recommend the laser, please let me know. I am fearful of the laser surgery as my doctor said it comes back in more then half the patients, and it can effect vision. Also any referrals would be good, I am in the North Jersey area, and was thinking of going to Wills in Philadelphia.
    Anonymous 42789 Replies
    • November 12, 2009
    • 10:18 AM
    • 0
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  • Hi, use Aloe Vera eye drobs, will make immediately effect! regards!Please do tell me the name of your Aloe Vera drops and where you get them. I will try anything. I just got diagnosed with this and I cannot believe the pain of it. I went to emergency 1 night begging for something for the pain. It had worsened and they had to put freezing drops in and the scrape my eye with a qtip and then put a bandage lens in. Then they took the lens out a week later and I had 4 days of peace from it and now the pain is back. I fear going to sleep.
    Anonymous 42789 Replies
    • January 3, 2010
    • 09:42 PM
    • 0
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  • nice one this helped me out alot, very useful stuff. thank god I found forums.wrongdiagnosis.com ! Annie :)
    EmilyBurrows 1 Replies Flag this Response
  • I empathize !!! REALLY. May 11th was my last "normal" day. I woke up May 12th with blurred vision and a little discomfort...went to the doctor after a week of double and triple vision. June 1st I was finally sent to an ophthalmologist and immediately diagnosed with Fuch's Dystrophy. She didn't seem to think it was even worth mentioning just telling me to look it up online and come back in 6 weeks for some measurements. I got home , looked it up and found a site for people with this. They told me to get to a Fuch's doc immediately so I called the top guy who was only 5 hours drive from us and got an appointment for June 20th. July 17th I had my first corneal transplant. From that day on I was plagued with "something in my eye", light phobia, and pain.....PAIN. Three days post op I was told I also had map dot fingerprint dystrophy.and that 50% of Fuch's patients also had this. (would have been nice if someone had WARNED me!!!!! II was told to use battery acid (muro 128) every two hours and increase the ointment from bedtime to three times a day and gave me some pain meds. The next week I had to have puctal plugs put in. I was thinking that it helped.....then the numbing drops wore off. I am now 5 weeks post of and see the surgeon next week. I'm expecting that he will do the map dot scraping with my transplant on the other eye Sept 24th. The pain affects my sleep, most days I can't drive, the Muro is every two hours (reminding me that I'm miserable), the ointment obscures my vision even more, I was prescribed an antiboitic (doxicycline) for its protease inhibitor function aiding in eye healing. It made me feel sick so I stopped. I also have to use prenisonalone drops so I don't reject the donor tissue.MY opinion and 4.50 will get you a cup of coffee but I'll give it anyway........ GET TO A FUCH'S / MAP DOT SPECIALIST STRAIGHT AWAY. There aren't that many but you can find a list online.I am sick of the pain......and the MURO and praying this is all fixed by Christmas.PS map dot does NOT go away, you have it or you don't.
    Castlemom 1 Replies
    • August 22, 2012
    • 02:20 AM
    • 0
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