Discussions By Condition: Lymphoma

Marginal Zone lymphoma

Posted In: Lymphoma 3 Replies
  • Posted By: mommyto3
  • March 8, 2008
  • 03:52 AM

Does anyone have any experience with this? My husband was diagnosed with this after having a lump removed from his arm. The papework says: "Diagnosis-Monoclonal B-cell lymphoproliferative disorder most consistent with marginal zone lymphoma with increased large cells"... It was a cutaneous lump that was removed from an area that had another lump removed in 1995(that diagnosis was cutanous immunocytoma...).Anyway, my husband's cancer doc presented his case to the tumor board and it was agreed that he should see a specialist in Seattle. Well, my husband is under the impression that since the lump is gone, the cancer is gone, which could very well be true. I asked his doc why the recommendation if he is fine and she said she just would feel better about a second opinion as to treat him in some way (chemo, etc.). Does anyone have any input on this type of lymphoma? Should we pursue it a bit more and have some more testing done?

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3 Replies:

  • I wish things were that easy. He needs to be following the advice of the oncologists who are skilled in this, that is very important. I have indolent and intermidiate follicular NHL but, trust me on this one. If you don't have the trust in your oncologist then, you need to find another one whom you will. There is nothing wrong with asking questions, knowledge is power and your husband has only one life; yet, on the other hand you must believe in their medical judgements. I wish it were so easy, that if the bump is gone, so is the cancer. You need Cat Scans, too, in order to be safe.
    cookiepieces 9 Replies Flag this Response
  • Hi thereI am a radiation oncologist and very familiar with marginal zone lymphoma. Here is a great link to read if you like that kind of learning.http://asheducationbook.hematologylibrary.org/cgi/content/full/2005/1/307Basically, you should follow with the oncologist. There are many reasons to do so. One reason is he should be tested to make the lymphoma is not somewhere else in the body. This can happen.Also, the surgical margins of the area resected should be checked to see if any further local therapy needs to take place. This is a highly curable disease but proper attention and follow up are necessary to make sure of the best outcome. Go see the oncologist!!philberonhttp://breastcancertx.blogspot.com/
    pberon 4 Replies Flag this Response
  • Phil,I have some questions about where lymph nodes are and how you may know if their size has changed if you can't see/feel them with your hand.I have (amongst other things) intermittent pains on the side of my breast toward my arm pit, right behind my ears, right behind my jaw, at the base of my skull on the right side, and in my groin on the right side. I also have a "skin tab" that appeared on my right breast suddenly years ago that doctors have said are nothing to worry about. I have fatigue, night sweats, intermittent low grade fevers, dizziness etc. A dentist also told me I have "a little tonsillitis". Nobody is mentioning lymph nodes in the diagnostics. So far all other test show nothing but sinusitis, EBV (previous) and a slightly higher Rheumatoid Factor. Should I be pushing my PCP to look at my lymph nodes?Need a professional opinion.
    dizzy lizzie 192 Replies Flag this Response
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