I'm a 16-year-old girl and at this point, I'm starting to get just really confused,
and could use some help.
It started about 2 years ago, and I seem to develop more and more symptoms,
though not enough to be diagnosed with SLE. But I cannot consider them
normal, not any more. I don't know what to do, I was always a healthy person,
and don't want to be hypochondriac. :(
first of all: my ANA came back negative, and I don't have arthritis, which are
two major factors. But I do have the butterfly-rash, and I can't bear the sun.
I have protein in my urine, an elevated RF, and recurrent pneumonias, pleurisies,
and ear-throat-nose infections.
I have a history of collapse ( not from low bp), urticaria, and weird
immunological symptoms, like catching viruses , and bacteria that
aren't considered harmful to the average population, but make me quite
sick (hospital care). I've caught diseases I've been vaccinated against (!),
like pertussis (whooping cough).
I am not feverish. Only subfebrile, and it's sort of like the rash. My joints
are hyperflexible, and only stiff if I don't pop them. Or crack, whatever you like
to call it.
Please answer my questions if you can, and help me out: Can the butterfly
rash appear just on its own, without SLE? Can protein show in your urine
because you are tired? Do vaccinations wear off in 10 years or so? What does
the RF ( in your bloodwork) mean?
All in all, what does it look like?
And something else: I would like to ask all of you with lupus: How did it start?
I know it can be private matter, but please, I need to know. What were your
first symptoms? If you have the butterfly, what yours looks like? I'd be very,
very grateful if you could send me a picture of it
Thanks in advance, and hoping to get some answers. Any opinion would be