I have just been referred to a specialist as my GP says I have Lupus. I’ve been searching this online (having not heard of it until last week) and am trying to find out whether a variety of other complaints that I have, or have had, would be linked.
I’ve spent my whole life (30 years) suffering from joint pains. Initially these pains were just in my knees, but are now in my elbows, knees, wrists, ankles, toes and fingers. These pains were dismissed as growing pains until such a stage it was apparent I wasn’t growing any longer, and then doctors just kept telling me they didn’t know what was wrong with me. All through my teens I also suffered from migraines and abdominal migraines and I’ve spent the last ten years also suffering from constant headaches, frequent sore throats, IBS, occasional weight loss, fatigue, depression, eczema and itchy skin. All of these have been put down as stress, but now I’m wondering if it would all be Lupus. I don’t tend to have any allergies, although I do react badly to insect bites – they have become raised and started to track along my vein in red lines before, so I’ve needed antibiotics to clear them. In recent months I’ve also started needing to go to the toilet lots more than used to be normal, although I don’t have any pain when I do so.
Can you let me know if these sound like typical Lupus symptoms, or whether there is something else I should be looking into. I know I’ve had three lots of blood tests – one when I was about 5, one about 19 and one at 30, the first two blood tests were normal, whilst the most recent one showed an autoimmune abnormality. X-rays haven’t shown anything and my ESR was normal. My doctor did say it’s possible my ESR would only be raised when I was having a flare up, and since the blood test was midday my joints weren’t aching – I find they usually ache in the evenings, at night or very early in the morning, and they often mirror each other which seems to be a classic Lupus symptom, although I’m curious whether this is also common of any other illnesses.