Do you think I could have Lupus?

Do you think I could have Lupus?

Posted In: 7 Replies
  • Posted By: Anonymous
  • April 9, 2009
  • 01:21 AM

My name is Becky, I am 17 years old, and for the past four years, I have been suffering from sudden and unexplained attacks.

-First i develop hives, which cover every inch of my body, each hive is about the size of a grape fruit...until they merge into one large one. My skin becomes swollen and very tender.
-Right before, or during the hives I become very dizzy. I Can't bare to stand, or walk. I have also fainted a multitude of times.
-I'm over some with horrible nausea and vomiting, and shaking.

These attacks occur from as few a once a month, to a few a week. I have been to every doctor, they have all been testing me for nothing but Allergies, and putting me on antihistamines. In four years, they have had no effect.

On a recent trip to the hospital, my doctor checked me out. And said he had no doubt that what i was having was some sort of Auto-immune problem, and not an allergic reaction. He suggested I see a rhumeotologist.

Does anyone think this could be possible Lupus?

I would be thankful for any help you could offer me.

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7 Replies:

  • My name is Becky, I am 17 years old, and for the past four years, I have been suffering from sudden and unexplained attacks. -First i develop hives, which cover every inch of my body, each hive is about the size of a grape fruit...until they merge into one large one. My skin becomes swollen and very tender. -Right before, or during the hives I become very dizzy. I Can't bare to stand, or walk. I have also fainted a multitude of times.-I'm over some with horrible nausea and vomiting, and shaking.These attacks occur from as few a once a month, to a few a week. I have been to every doctor, they have all been testing me for nothing but Allergies, and putting me on antihistamines. In four years, they have had no effect. On a recent trip to the hospital, my doctor checked me out. And said he had no doubt that what i was having was some sort of Auto-immune problem, and not an allergic reaction. He suggested I see a rhumeotologist.Does anyone think this could be possible Lupus?I would be thankful for any help you could offer me.Hi Becky,It's impossible to say with 100% certainty but your sudden, sporadic, and unexplained attacks and their accompanying symptoms don't appear consistent with a Lupus diagnosis.That said what they DO appear relatively consistent with is a diagnosis of acute cholinergic urticaria. This condition can be induced by emotional stress, heat, or exercise, and can most definitely produce the exact type of hives and subsequent additional symptoms that you have described so well. If heat and/or exercise aren't pertinent personal factors for you re: precipitating an "attack", then stress...even unrecognized "hidden" stress, may well be the culprit.Tell me what you think and then perhaps we can talk about how to best prevent/minimize/treat this.Best regards,John<
    JonMac 165 Replies Flag this Response
  • Hi Becky,It's impossible to say with 100% certainty but your sudden, sporadic, and unexplained attacks and their accompanying symptoms don't appear consistent with a Lupus diagnosis.That said what they DO appear relatively consistent with is a diagnosis of acute cholinergic urticaria. This condition can be induced by emotional stress, heat, or exercise, and can most definitely produce the exact type of hives and subsequent additional symptoms that you have described so well. If heat and/or exercise aren't pertinent personal factors for you re: precipitating an "attack", then stress...even unrecognized "hidden" stress, may well be the culprit.Tell me what you think and then perhaps we can talk about how to best prevent/minimize/treat this.Best regards,JohnThank you so much for your help. What type of doctor would you suggest I see, if this is what I have? I’ve read that most of the treatment for acute cholinergic urticaria are anti-histamines, I have taken them every day for four years...and they have never helped. Are there alternative treatments?Sincerely,Rebecca Butler
    Becky6691 3 Replies Flag this Response
  • Thank you so much for your help. What type of doctor would you suggest I see, if this is what I have? I’ve read that most of the treatment for acute cholinergic urticaria are anti-histamines, I have taken them every day for four years...and they have never helped. Are there alternative treatments?Sincerely,Rebecca ButlerHi Rebecca/Becky,You're very welcome. It certainly seems that after four years you're no stranger to antihistamine use!If your Doc felt strongly that an auto-immune condition was underlying, then a Rheumatologist would be the specialist to see. That said...rather than send you there right now, let's look a little deeper.What specific antihistamine(s), dosages, and frequency are you presently taking? Are you using these along with any other type of daily medication(s)?Also, do you presently have any chronic illnesses or a history of same?Thanks,John<
    JonMac 165 Replies Flag this Response
  • Hi Rebecca/Becky,You're very welcome. It certainly seems that after four years you're no stranger to antihistamine use!If your Doc felt strongly that an auto-immune condition was underlying, then a Rheumatologist would be the specialist to see. That said...rather than send you there right now, let's look a little deeper.What specific antihistamine(s), dosages, and frequency are you presently taking? Are you using these along with any other type of daily medication(s)?Also, do you presently have any chronic illnesses or a history of same?Thanks,JohnWell, I’ve been on virtually everything under sun. From 180mg allegra twice a day, to zyrtec...and probably around seven others. All on different dosages, so find a “balance” that was right for me......which, was obviously never found. No chronic illnesses......And as for other medication? Just Zantac, every day, I take it when i fell nauseated when I'm about to faint....and every day to 'solve' the nausea caused by the various medications they have me on every day.
    Becky6691 3 Replies Flag this Response
  • Well, I’ve been on virtually everything under sun. From 180mg allegra twice a day, to zyrtec...and probably around seven others. All on different dosages, so find a “balance” that was right for me......which, was obviously never found. No chronic illnesses......And as for other medication? Just Zantac, every day, I take it when i fell nauseated when I'm about to faint....and every day to 'solve' the nausea caused by the various medications they have me on every day.Hi Becky,Sounds like you've definitely "been there...done that"! It appears that you've taken various antihistamines on a routine daily basis for at least four years...have you been doing this just in an attempt to prevent your "sudden attacks" or are you also being rx'd for other allergies...allergic rhinitis, perhaps?Best,John<
    JonMac 165 Replies Flag this Response
  • Hi Becky,Sounds like you've definitely "been there...done that"! It appears that you've taken various antihistamines on a routine daily basis for at least four years...have you been doing this just in an attempt to prevent your "sudden attacks" or are you also being rx'd for other allergies...allergic rhinitis, perhaps?Best,JohnNope, no other known allergies. It has all just been an attempt to stop my sudden reactions. Thankfully i have an appointment with my new doctor on June 3rd. I was told to see a rheumatologist, after i mentioned to my primary care doctor that when i get my attracts i always get double vision and other vision problem throughout the duration of the attack. I never really thought anything of it, i just thought it was because i felt faint and dizzy. In any case, i just hope to finally find out whats wrong with me. Thanks for your help all this time,Becky.
    Becky6691 3 Replies Flag this Response
  • Have you been tested for mastocytosis?
    Anonymous 1 Replies Flag this Response
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