Could it be?

Could it be?

Posted In: 4 Replies
  • Posted By: St.Trillian
  • February 3, 2007
  • 07:10 PM

My mother and her sister both have lupus. My mother swears up and down that she could not have passed it to me. However, I do display many of the symptoms of it, but I've had doctors brush that off as an answer due to the fact that I've never had the butterfly rash, or much in the way of rashes at all. Is it possible to have lupus without the telltale rashes?

I know people as well with things like CFS and Fibromyalgia who have had the darndest time getting diagnosed, and mother had trouble with her lupus diagnosis. How do I get a doctor to listen and help...and finally figure out what IS going on with me if it is not, in fact, lupus? What questions do I need to ask and what information do I need to go armed with to get a medical professional to listen and understand that it's not in my head?

Thanks in advance!

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4 Replies:

  • http://users.mrbean.net.au/~wlast/lupus.htmlLupus took my favorite Aunt. I miss her so much.I see how many things in this website link I am giving, are totally true for my Aunt's case.I think I am one inch away from Lupus. I am working with a number of books in order to treat myself in ways that no doctor have been able to help me.Please follow Walter Last's advice. Also read on Doctor D'Adamo, Doctor Raymond Francis, and Doctor F. Batmanghelidj advice. Harvey Diamond also have a great book. NAET is a technique that helps people fight hidden allergies and chemical sensitivities- everyone with Lupus have those problems but the immune response is absent in the ways people expect it to react.You can interweave those together and find what works best for you.I wish this info was available when my Aunt was alive. Now I know that she did not have to go so soon.I send you a big hug.SincerelyMaribel from Arlington, VA.
    Anonymous 42789 Replies
    • February 4, 2007
    • 04:01 AM
    • 0
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  • Have you seen a rhemotogist? Ask for an ANA titer this is often negative in those with lupus unless you can get them to test you when you are most symptomatic. Even then not all people with lupus test positive with the ANA titer. If one has systemic lupus the rash is not the main symptom to look for. The rash is more prevelant in discoid lupus. Good Luck in getting your answers. Tab
    tabby68 1 Replies
    • February 12, 2007
    • 07:12 AM
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  • Lupus is caused by Lyme disease and /or a co-infection. So its possible , if your mom had/has undx'd Lyme, she could have passed it on to you. This is all new info, connecting Lyme and Ms, Als, Alzheimers ,Autism and much more. Many are bitten and never have a rash, or notice the bite mark. Do a google search. The info is out there..check out www.lymenet.org too. Hope you get some help soon. Best wishes
    Anonymous 42789 Replies
    • February 20, 2007
    • 01:55 PM
    • 0
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  • My daughter had Lupus for 11 years before I was also diagnosed with it. When I broke out with the rash it was a week-end and I was so afraid that I went to the E.R. The first thing the E.R. doctor said, "you have Lupus, i've seen this a thousand times." My daughter never had a rash so, I'm thinking no way is this Lupus. I had never even heard of Lupus causing a rash. Well, I made an appointment with a Dermotologist and he did a biopsy that tested positive. I had always been told that Lupus is not genetic. With both my daughter and myself having it certainly clarified that for me.My possible conclusion as to how we got it, may be in part that my mother had rheumatic fever when she was a child. Hope this helped with your question and I truely wish you the best.
    Anonymous 42789 Replies
    • February 21, 2007
    • 08:14 AM
    • 0
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