My husband has been on the liver transplant list for 4 years. He is too weak to work. He is on his feet no more than 2 hours a day. I work 30-35 hours a week so I can be home with him more. He has had rapid weight loss and a little swelling in his feet and legs but not his abdomin. His amonia level gets high sometimes and he get sort of wacky but for the most part his mind is pretty good. Sleeps all day and up all night. We have moved to seporate rooms so I can rest. Ifeel like a nurse that doesn't get a check! He hasn't been able to work for 18 months. He is now on disability (thank God) but money is still tight. There is no quality of life happening here. We are so ready for this to be over no matter how it goes. The waiting is a killer of the spirit and hope. I feel for each of you who have blogged. I just wish in so many ways I was to the point where I could see an end or a new beginning.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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