Discussions By Condition: Liver conditions

Question about End-stage liver failure (Cirrhosis)

Posted In: Liver conditions 4 Replies
  • Posted By: BrownEyed.Girl
  • November 8, 2008
  • 05:41 AM

My father was diagnosed with Cirrhosis of the liver about 3 months ago after he and my mother divorced and he moved to Florida, where I grew up.

I had no idea about the disease, other than what I read online, though nothing could prepare myself when I saw him when my boyfriend and I decided to move to Florida as well.

He weighed 240 the last time I had saw him. He now weighs 150. He's 6'2.

I was shocked. Confused. But I knew he would get better. Besides, he's my dad, and you don't lose your dad at 21 years of age.

I've been here living with my dad for a month now. At first he seemed fine. Skin and bones with a big belly, but fine. We talked. Laughed, but he always look exhausted.

Two weeks later he was put on medications to help the pain, such as Oxycodone. He didn't want to take them. Then it soon got to the point where the pain was so unbearable he had no choice.

Now he's on hospice. Morphine. A nurse came today and put a Catheter in him to try and flush the anommia out of his system that's now effecting his brain, though he won't drink but a few sips of something a day. He doesn't make any sense when he talks and his vision is going bad as well. He's barely eating and can barely walk.

My grandmother is my dad's primary caregiver besides hospice. I try and ask her questions, but her mind is in a million different places at once that I just don't quite understand a lot of things. I've done a lot of research online about the dying process, which obviously my dad is in. I'm just trying to prepare myself for it as much as I can. I've tried to catch the hospice nurse in private to talk to her, but she either slips through one of the million doors we have in the house or I'm not here.

Since my dad has a catheter, does that mean his kidney are failing?

I know no one can say when my dad is going to pass, but is there something, anything, that is a major sign that it's close? Is it different for everyone?

My dad drank all of his life. Alchohol is taking him from me, therefore he's not qualified for a transplant unless he goes to AA...for a year. Not possible. But I do understand, as much as I want to hate everyone for not giving my dad a new liver. But my dad is a good person. He's the most amazing person I've ever known in my life.

The only blessing I can ask for is for him to go in peace.

*Sarah

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4 Replies:

  • BrownEyed.Girl, I'm so sorry to hear about your dad, but I'm glad that you are there to help him. Dealing with death is difficult, especially when you're 21. I wish I could give you some answers. Life changes in an instant, so we can only cherish the time we have with those we love and care about. You & your family are in my thoughts & prayers. Friend040
    Anonymous 42789 Replies Flag this Response
  • Sorry to hear about your dad, my dad is 71 and he was diagnosised in September 2010 with end stage liver failure, i believe he has known for a lot longer then that but never wanted to tell my brother and I (very proud man). In Ocobter we had to put him in a nursing home, where is was doing really well but for the past week has slowly gotten worse. He does not want to eat, he sleeps pretty much all the time, he can't get to bathroom or needs help. He can't really talk and on some days does not even know who we are or that we are even there. As your dad my dad is not allowed to have a transplant because it was caused by drink too and as he had only quite 5 months before being diagnosised is not even going to be considered. my brother and I know that he is not going to make it but as your father sounds so much like what is happening to mine, how is your father now?I miss my old dad and only hope he is not going to have to suffer like this for long
    Anonymous 42789 Replies
    • November 28, 2010
    • 10:18 PM
    • 0
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  • Im sorry to hear about your father, my mother is going through the same thing right now. The liquid in his stomach is not so much of the kidney's problem as it is the livers. Someone once told me to try and think of your liver like an overpass on a highway and all the fluid that needs to be filtered as cars. If for some reason the overpass is unusable, the cars tend to back up and eventual they need to find another route. So the fluids are backing up and flooding the stomach and sometimes the ankles. This fluid NEEDS to be drains as a lot of bacteria holds in it and it can lead to an infection in the blood. From what Ive seen and heard, here are some signs to look for if there end is near:*Yellowing*Bleeding in the stool and mouth/nose (Small veins in the stomach or esophagus have busted)*Confusion (theres times where my mother cant remember me)*weight loss*Excessive bloatingThe main thing I seem to see over and over again though is*comaEvery time I hear a story about Cirrhosis it mostly seems to end with the loved one going into a coma and dying.I had my suspicions of my mother not being far from death (as Im sure you are) and finally a doctor called us this morning to inform us she had (at most) 6 months. BUT THERE IS HOPE FOR YOUR FATHER! If he can quite drinking now, I have heard of many cases (if not too late) where the liver regenerates itself.I hope that I have helped some.
    DJMooMoo79 5 Replies
    • December 9, 2010
    • 05:51 AM
    • 0
    Flag this Response
  • Hi Sarah,I am so sorry to hear about your father. My husband has had cirrhosis for years and has had bleeding in his esophagus but he'd always bounce back and start drinking again. This time he had an abdominal hernia operation (2 months ago) ... he still has a large stomach and his hernia (bellybutton) is hanging out in a pouch about 4" from his distended stomach. The doctor said his liver is causing the fluid buildup and there is nothing he can do. If he drains the fluid, it will just build up again. If he operates again, my husband would die. Our family doctor said the same thing...that there is no cure short of a liver transplant but that it's too late for this as he'd have to be sober for 6 months before they'd even consider him as a candidate. My husband sleeps most of the time except for 2-3 hours a day...he's tired, dizzy, nausceous, eats 3 tbsp of oatmeal and drinks at most 1-2 glasses of water/juice. He has been taking pain medications when he can't stand the pain any longer but otherwise is always in pain and uncomfortable. He's lost 36 lbs since the operation but his stomach may weigh 10 lbs? I don't know what to do. I have been caring for him as I know no one else except 2 neighbors. The doctor gave me a number to call for hospice and nursing care. Is my husband close to death? The doctors indicate this but won't tell me exactly. What can I expect? He's only 62 and his heart is still strong. He has thyroid and high blood pressure and congestive heart failure. If anyone can give me some advice, I'd be very grateful. Is my husband dying? How long does he have to live? Help somebody! Thank you.My father was diagnosed with Cirrhosis of the liver about 3 months ago after he and my mother divorced and he moved to Florida, where I grew up. I had no idea about the disease, other than what I read online, though nothing could prepare myself when I saw him when my boyfriend and I decided to move to Florida as well. He weighed 240 the last time I had saw him. He now weighs 150. He's 6'2. I was shocked. Confused. But I knew he would get better. Besides, he's my dad, and you don't lose your dad at 21 years of age. I've been here living with my dad for a month now. At first he seemed fine. Skin and bones with a big belly, but fine. We talked. Laughed, but he always look exhausted. Two weeks later he was put on medications to help the pain, such as Oxycodone. He didn't want to take them. Then it soon got to the point where the pain was so unbearable he had no choice. Now he's on hospice. Morphine. A nurse came today and put a Catheter in him to try and flush the anommia out of his system that's now effecting his brain, though he won't drink but a few sips of something a day. He doesn't make any sense when he talks and his vision is going bad as well. He's barely eating and can barely walk. My grandmother is my dad's primary caregiver besides hospice. I try and ask her questions, but her mind is in a million different places at once that I just don't quite understand a lot of things. I've done a lot of research online about the dying process, which obviously my dad is in. I'm just trying to prepare myself for it as much as I can. I've tried to catch the hospice nurse in private to talk to her, but she either slips through one of the million doors we have in the house or I'm not here. Since my dad has a catheter, does that mean his kidney are failing? I know no one can say when my dad is going to pass, but is there something, anything, that is a major sign that it's close? Is it different for everyone? My dad drank all of his life. Alchohol is taking him from me, therefore he's not qualified for a transplant unless he goes to AA...for a year. Not possible. But I do understand, as much as I want to hate everyone for not giving my dad a new liver. But my dad is a good person. He's the most amazing person I've ever known in my life. The only blessing I can ask for is for him to go in peace. *Sarah
    Anonymous 42789 Replies Flag this Response
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