Hello to whomever reads this. I recently was diagnosed with Acute Idiopathic Portal Vein Thrombosis, however, I feel there is more to it than this. Of the numerous doctor's that I have seen in the last two months, noone can seem to answer why I still have pain and how long before the uncomfortable, bloated, distended feeling I have in the upper abdomen will go away. I am at a crossroads now as to how to continue my treatment...continue with the Coumadin or consider surgery to remove the thrombosis. Although the intense pain symptons are no longer present, I consistently have a dull pain, with the feelings of constriction and pressure, especially when i sit. The radiologist informed me today that he doesn't feel that I am possessing intense enough symptons to warrant a surgery, but he doesn't have to live with the day-to-day aches and pains. And of course my spleen is markedly enlarged due to the clot. I haven't been able to wear a pair of jeans in 2 months because of the swelling of my spleen.
I know this doesn't give all my comings and goings since I began this journey, basically I am looking for someone to give me an idea of what will happen if I decide I do not want the surgery. Is reoccurence possible? What will happen to my spleen?
I'm just so confused and am really just looking for someone who may have this condition to discuss it with me....Thanks in advance.
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