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Posted In: Liver conditions 8 Replies
  • Posted By: maries45
  • November 26, 2006
  • 04:47 AM

Hello everyone,
My husband was diagnosed with end stage cirrhosis about a month ago. He has known for years that he had this horrible disease but never slowed down. His Doc really doesn't answer alot of my questions--maybe someone here can help me. He has ascites and severe edema and was hospitalized for two days last week because of his low sodium level. He is sleeping most of the days. His mind is a little confused daily also. It is getting too bad to leave him alone. I have been staying home to do the caregiving as this is what I want to do. I want to know what down the road for him. We live in Hawaii and have sons in the mainland going to college. I want them to come home before things get too bad to visit their father. I would like to know when things will get too bad. Can anyone give me a time frame and what will be going on with my husband in the future?

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8 Replies:

  • Hello everyone,My husband was diagnosed with end stage cirrhosis about a month ago. He has known for years that he had this horrible disease but never slowed down. His Doc really doesn't answer alot of my questions--maybe someone here can help me. He has ascites and severe edema and was hospitalized for two days last week because of his low sodium level. He is sleeping most of the days. His mind is a little confused daily also. It is getting too bad to leave him alone. I have been staying home to do the caregiving as this is what I want to do. I want to know what down the road for him. We live in Hawaii and have sons in the mainland going to college. I want them to come home before things get too bad to visit their father. I would like to know when things will get too bad. Can anyone give me a time frame and what will be going on with my husband in the future? Sorry to hear about your husband - mine us going through some of the same things. He is fiorgetful, an dvery fatigued. He aslo sleeps mauch of the time. I have no idea where we are in the process, but I know that this has been a scary thing. How long did he have cirrhosis before it really knocked him down? My husband has Hep C and cirrhosis, which complicates things a little. If he is getting confused, and having mental issues with memory, you may want to have the kids visit, just for you. Barb
    Ferminsrib 3 Replies
    • February 10, 2007
    • 06:59 PM
    • 0
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  • I wish I could be of some help for you. I am very new to this forum and am searching for answers myself. Doctors seem to always answer you very vaguely. Do they not realise the immense pressure thet are imposing on the carer. I care for my mum who has end stage liver faliure, oedema, oesophageal varices and enecphalopathy. She takes all medication prescribed but nil seems to be happening. My marriage is suffering because I have always to be there for mum and I know my huisband feels neglected. I do not have any other family member to help. I just need to know how long this stage is likely to continue for before I take a breakdown, which is highly likely as I feel under so much stress. Sorry don't mean to sound ungrateful but I am so tired. I have been caring for mum for 11 years now. She lives with us.
    pennymum 6 Replies Flag this Response
  • Hello everyone,My husband was diagnosed with end stage cirrhosis about a month ago. He has known for years that he had this horrible disease but never slowed down. His Doc really doesn't answer alot of my questions--maybe someone here can help me. He has ascites and severe edema and was hospitalized for two days last week because of his low sodium level. He is sleeping most of the days. His mind is a little confused daily also. It is getting too bad to leave him alone. I have been staying home to do the caregiving as this is what I want to do. I want to know what down the road for him. We live in Hawaii and have sons in the mainland going to college. I want them to come home before things get too bad to visit their father. I would like to know when things will get too bad. Can anyone give me a time frame and what will be going on with my husband in the future?Hi there,My hubby sleeps a lot to,We only new a month ago that he has Cerhossis of the liver,but only weeks to live,I cant leave him alone at all,as i found him outside with no clothes on,Early hour of the morning,i only found him at 8.15. he was in a coma,Docs couldnt believe that he pulled through it,Its the toxics that go to the brain,that make them confused,Thats what the Specialist explained to me.blondie54
    Anonymous 42789 Replies Flag this Response
  • Sorry to hear about your husband - mine us going through some of the same things. He is fiorgetful, an dvery fatigued. He aslo sleeps mauch of the time. I have no idea where we are in the process, but I know that this has been a scary thing. How long did he have cirrhosis before it really knocked him down? My husband has Hep C and cirrhosis, which complicates things a little. If he is getting confused, and having mental issues with memory, you may want to have the kids visit, just for you. BarbHi there,I am sorry ,And i do know what your going through,My hubby was told 2 months ago he had Cerhossis of the liver,And only a couple of months to live,He is failing every day,Confused ,Odema And the way things look today im sure it wont be long before i lose him,as docs have said couple of months,which is about 2.I have found him twice unconsious on the floor,then dial 999,Its the toxics going to the brain,I wish you all the best and im sorry .Take care xx
    Anonymous 42789 Replies Flag this Response
  • Every cell in the body has Glutathione in it. Next to water there is nothing more important in the body than Glutathione when it comes to detoxification. Glutathione is most abundant in the liver. In order for the liver to do it's job Glutathione levels need to be adequate. Without Glutathione we die. Not enough of it and we get many illnesses and diseases which are related to low glutathione. Cancer, hep ?, asthma, allergies, heart disease, liver disease etc. These are some of the low glutathione illneses.
    dfarrish 34 Replies Flag this Response
  • I Am Deeply Sorry To Hear About Your Husband.... I Know What You Are Going Though Because My Mom Had All The Same Problems. She Had Had Ascites For Two Years Before Getting Infections. Then Her Doc Told Us That Once She Got An Infection In Her Ascites She Had 2-5 Years To Live. Well, She Passed Away In May Of This Year. All I Can Say That No No No Two Persons Are Alike. Just Beware Of Infections. Once He Gets One Infection, He Is More Likely To Get More Infections Maybe Not In Ascites But In Different Areas. Please Read "the Final Stage Of Cirrhosis" On 6-9-07 Because I Wrote It. Hope All The Best For You And Your Family. In My Prayers.
    Anonymous 42789 Replies Flag this Response
  • Every cell in the body has Glutathione in it. Next to water there is nothing more important in the body than Glutathione when it comes to detoxification. Glutathione is most abundant in the liver. In order for the liver to do it's job Glutathione levels need to be adequate. Without Glutathione we die. Not enough of it and we get many illnesses and diseases which are related to low glutathione. Cancer, hep ?, asthma, allergies, heart disease, liver disease etc. These are some of the low glutathione illneses. The liver is the largest and most complicated organ in the body. Adequate levels of Glutathione are necessary for the liver and kidney to function properly. Health food stores sell Glutathione in capsule form. But Glutathione cannot be eaten. The digestive tract will get rid of it. The body has to be given the precursors or building blocks to get the cell to manufacture Glutathione. Glutathione has to be manufactured at the cellular level./quote]
    dfarrish 34 Replies Flag this Response
  • I suggest your children visit him soon. I too was away at college right before my dad passed away due to cirrhosis. He had the same symptoms your husband has.Luckily, the semester ended and I came home for summer vacation. My dad passed just weeks after I returned home. I can't imagine not being there with him those last couple of weeks.No one in my family had any idea how sick he was. It all happened so fast. He was in ICU for one week before he passed. When the doctors thought he was stable enough to be put in his own room, they did. But just as he was settling in, he started vomiting even more blood. He looked so scared. They rushed him down to ICU again, but somewhere between his room and the ICU my dad lost consciousness. Hours later he passed. It's the most awful experience ever in this life.I'd like to think that I'm a spiritual person and that I understand that he's in peace now, and that it is us that are here suffering. But that doesn't make up for the fact that I still need my father.This may sound strange to some people here. Maybe even crazy. But I communicate with him through a medium. Before any of this happened, I was very skeptic of this type of thing. But now, I'm not. I'm grateful that I can find comfort in knowing that my dad is still around me and that in the spiritual world, he still lives.
    video producer 1 Replies
    • January 30, 2008
    • 01:35 AM
    • 0
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