Folks, I've read so many of your posts. It hits home in a hard way and my heart goes out to all of you. I, too, am in my final stage of Cirrhosis. I also vascillate between stage III and V, dialysis mode, stage of CKD (chronic kidney disease.) I can only tell you what my docs have done for me. I just had 8 litres of peritoneal fluid drained through paracentesis. It did no good since I still weigh the same. Without going into detail, I just saw my nephrologist who explained the three cell structures of fluid. My diuretics (high dosages) take care of the edema. They do NOT take care of the peritoneal fluid in my abdomen. I see a hepatologist next week who will hopefully ascertain if a portal shunt is necessary to get rid of the ascites in my gut(if not, I see someone else because I'm a small guy who looks 9 months pregnant and I feel like garbage everyday.)I know this is not much help but rather than take my Easter Sunday by celebrating the resurrection, I thought it best to share some of my story in hopes of keeping those of us alive - alive since I don't believe we'll ever see the resurrection of those of us who've passed on. Oh, and as most of you know, Hepatic Encephalopathy (HE) is a big part of the ammonia build up in the blood system, so my GIs have placed me on Lactulose and Xifaxan. If you, like me, can't afford the $1200.00/mo. for Xifaxan, Salix, the manufacturer, has implemented a "special" plan which now allows me to pay $10.00/mo. after insurance. Don't get me started on insurance companies!
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