HI Everyone - I´m not sure how to participate properly - but here´s a question I´m wondering about....
Two years ago my gallbladder was removed as well as multiple (+50) LPD tumors in the intestine and diaphragm.
This year´s CT shows they are back everywhere and also on the liver. As far as I can tell nobody has ever seen fibroids on the liver. My regular doctor says that since they are benign we should do nothing until they get worse. That sounds reasonable, and I´m not anxious to go through surgery or experimental treatments if it is unneeded, but this is a bit like not being able to arrest a stalker until they actually commit a crime.
This seem to fall into no-man´s land – what type of specialists or tests should I ask for, if any? Would non-western/alternative medicine help? What kind? How can one tell a quack from a good try?
I am pretty sure the old LPD was caused by hormone treatments I had for a uterine fibroid 4 years ago but I would think that should have run its course by now. One would expect a proportional increase in the number of LPD cases if there were some causal relationship, but who’s counting? I haven’t seen any counter go up since my case.
LPD: Leiomyomatosis peritonealis disseminata, (Leiomiomatosis peritoneal diseminada in Spanish) benign smooth muscle tumors in the abdominal area, is generally attributed to estrogen stimulation. However there are cases after hysterectomies, after menopause, and even in men, so just removing the source of the estrogen does not seem to be a definitive solution for everyone. Moreover, some cases are ER negative. Although hormonal disorders are frequent, LPD is rare, therefore, an unusual sensitivity may be one possible contributing factor. Also, cases in those who have no other associated conditions (pregnancy, contraceptive use, PCOS, granulosa cell tumor of the ovary, endometriosis, ovarian teratoma, tamoxifen use, thyroid or liver problems) suggest that there are other factors involved. Myomas can be deadly if they spread to the lungs.Sometimes myomas transform into cancer.
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