It's with a lot of frustration and sadness that I post the following details.
Our beloved Mother passed away on 31st March this year. To say we are heartbroken is an understatement. Not only are we trying to deal with the grief of losing her but also the frustration concerning her final appointment when she was sent away and told she didn't need to be seen for a further 12 months and then less than 3 months later she was gone:confused:
She was diagnosed with Diabetes in 2008 & pretty much changed her lifestyle to adjust to this illness. She done a pretty good job on it it too and kept it under control. However, in 2009 following some routine bloods, it appeared there were some concerns regarding the results and it showed that her platelet count was low. There was a discussion at that time of a bone marrow test but because the bloods didn't get any worse or any better didn't happen but she was diagnosed with Fatty Liver. She continued with her appointments and at her final one on 15th December 2010 she was informed that the bloods again hadn't got any worse or any better and she would be seen in 12mths.
Less than 3 months later she passed away from Primary liver cancer which had spread to the lungs.
She was admitted to hospital on 9th February with Ascites. Following a scan of the liver it was revealed that there were 2 tumors on the liver (one measuring 7cm) and also that her liver was almost completely cirrhotic.
So...this leads to the frustration.
As a family we cannot understand with how no biopsy or physical examination took place during these short number of years, despite the fact that there were problems quite obviously presenting themselves.
It was only when she was referred to her oncologist that he informed us that the liver was in the condition it was.....the consultant she was seeing prior to this had never mentioned her having cirrhosis. In fact, in February on his notes which were returned to my Mothers GP was that he would be "wary that the fatty liver may lead to cirrhosis in time". At this point it was too late. Her oncologist informed us that judging by the image of her liver that the cirrhosis was present for a long time.
It is of our opinion that because Cirrhosis was never diagnosed, this lead to the Hepatoma.
I would just love to hear from someone who may be able to share their experience of something similiar and help ease the frustration somewhat?