Discussions By Condition: Liver conditions

Challenging Dr. on failure to diagnosis - Mother passed away!

Posted In: Liver conditions 2 Replies
  • Posted By: VanillaBear
  • May 16, 2011
  • 11:11 AM

Hi,
It's with a lot of frustration and sadness that I post the following details.

Our beloved Mother passed away on 31st March this year. To say we are heartbroken is an understatement. Not only are we trying to deal with the grief of losing her but also the frustration concerning her final appointment when she was sent away and told she didn't need to be seen for a further 12 months and then less than 3 months later she was gone:confused:

She was diagnosed with Diabetes in 2008 & pretty much changed her lifestyle to adjust to this illness. She done a pretty good job on it it too and kept it under control. However, in 2009 following some routine bloods, it appeared there were some concerns regarding the results and it showed that her platelet count was low. There was a discussion at that time of a bone marrow test but because the bloods didn't get any worse or any better didn't happen but she was diagnosed with Fatty Liver. She continued with her appointments and at her final one on 15th December 2010 she was informed that the bloods again hadn't got any worse or any better and she would be seen in 12mths.
Less than 3 months later she passed away from Primary liver cancer which had spread to the lungs.
She was admitted to hospital on 9th February with Ascites. Following a scan of the liver it was revealed that there were 2 tumors on the liver (one measuring 7cm) and also that her liver was almost completely cirrhotic.
So...this leads to the frustration.
As a family we cannot understand with how no biopsy or physical examination took place during these short number of years, despite the fact that there were problems quite obviously presenting themselves.
It was only when she was referred to her oncologist that he informed us that the liver was in the condition it was.....the consultant she was seeing prior to this had never mentioned her having cirrhosis. In fact, in February on his notes which were returned to my Mothers GP was that he would be "wary that the fatty liver may lead to cirrhosis in time". At this point it was too late. Her oncologist informed us that judging by the image of her liver that the cirrhosis was present for a long time.
It is of our opinion that because Cirrhosis was never diagnosed, this lead to the Hepatoma.
I would just love to hear from someone who may be able to share their experience of something similiar and help ease the frustration somewhat?
Thanks.

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2 Replies:

  • Hi, It's with a lot of frustration and sadness that I post the following details. Our beloved Mother passed away on 31st March this year. To say we are heartbroken is an understatement. Not only are we trying to deal with the grief of losing her but also the frustration concerning her final appointment when she was sent away and told she didn't need to be seen for a further 12 months and then less than 3 months later she was gone:confused: She was diagnosed with Diabetes in 2008 & pretty much changed her lifestyle to adjust to this illness. She done a pretty good job on it it too and kept it under control. However, in 2009 following some routine bloods, it appeared there were some concerns regarding the results and it showed that her platelet count was low. There was a discussion at that time of a bone marrow test but because the bloods didn't get any worse or any better didn't happen but she was diagnosed with Fatty Liver. She continued with her appointments and at her final one on 15th December 2010 she was informed that the bloods again hadn't got any worse or any better and she would be seen in 12mths. Less than 3 months later she passed away from Primary liver cancer which had spread to the lungs.She was admitted to hospital on 9th February with Ascites. Following a scan of the liver it was revealed that there were 2 tumors on the liver (one measuring 7cm) and also that her liver was almost completely cirrhotic.So...this leads to the frustration.As a family we cannot understand with how no biopsy or physical examination took place during these short number of years, despite the fact that there were problems quite obviously presenting themselves. It was only when she was referred to her oncologist that he informed us that the liver was in the condition it was.....the consultant she was seeing prior to this had never mentioned her having cirrhosis. In fact, in February on his notes which were returned to my Mothers GP was that he would be "wary that the fatty liver may lead to cirrhosis in time". At this point it was too late. Her oncologist informed us that judging by the image of her liver that the cirrhosis was present for a long time.It is of our opinion that because Cirrhosis was never diagnosed, this lead to the Hepatoma.I would just love to hear from someone who may be able to share their experience of something similiar and help ease the frustration somewhat?Thanks. I would really love peoples opinions on the above, professional or otherwise. If anyone could provide some info I would greaty appreciate it. Thanks.
    VanillaBear 1 Replies Flag this Response
  • Hi vanillabear,My mother was feeling tired all the time and she had so many test that showed nothing. In 2005 she had an xray on her lungs and it showed nogils on both lungs, the Dr told my mum it was nothing and to stop being a worry wart.Mum got worse over time and he back began to ache, they did blood test that showed nothing abnormal.I went to see mum and sat with her for over three hours rubbing her back, i told her id take her to the Hospital and she said no. Later on that night i get a phone call from one of mum neighbours saying she was taken to hospital by ambulance.I called the hospital and she wasnt there, i called her home and the ambo said she was fine and they were taking her to hospital because she wanted to go.My sister got to the hospital where the Drs said it was all in mum head they cant find anything, so she called me and i went right off and the lack of their care.I called the hospital and spoke to a Dr and told him to do an xray on her lungs, mums back had been hurting and when i was with her i thought i heard a gurgling noise, He told me there was no need to do one and they wee sending her home. They did, later on in the morning my sister returned to the hospital with my mother and there a old Dr told my sister that there should have been xrays done, he got them done that is when it showed my mother had fluid on her lungs, they drained 2 and a half litres off her lungs, the next day i went to leave home to go to the hospital and i got a call from a nurse to tell me that my mother had been diagnosed with lung cancer.I go so angry with the fact she was telling me on the phone, I left and poor mum was crying in pain, i asked could there be something done and a nurse told me no, so i asked to see the Dr, this old Dr came in and i told him what the nurse had said he went out and told her to get mum some pain relief straight away.They moved mum to a ward and she just seemed to get worse as time went on, in the end mum said she could not ahndle the hospital any more and she wanted to go home, more blood tests done but nothing else, We took mum home but two days later she was re admitted. My sister and I asked for mum to have full blood tests done, ct on her lungs, heart, kidneys, liver spleen and stomach, the Dr that saw us told us that she didnt feel mum needed them, we reminded her what happened when we first took her in there. The next day mum was taken down to have xrays and ct scans, the next day this fool Dr came in without warning or pulling a curtain around mum for a bit of privacy this Dr just told my mother that she was riddled with cancer and there was nothing more they could do she had about 4 months to live and that she may as well go home. My poor sister was there and she nearly fell over as it took her by surprise as well as devastated her, there was a social worker there and she caught my sister before she fell.I was on my way in and was stopped in the hall way by this Dr who asked me if i was my mothers daughter i said yes, she handed me a bit of paper with all these things on it and she said this is what is wrong with your mother, i cant stop to explain or answer questions right now so call me on this number if you want to talk.I looked at the paper and had no idea what it all meant, i saw the word metastatic and i knew what that meant.I sat for a minute then saw my sister wheeling my mother down the hall way, my sister had been crying and i looked at my mother and her face said it all.My sister told me what had happened and i told her what had just happened to me, we sat with mum and just cried. My sister and i made a complaint about the Dr and the treatment she had recieved since she first came to the hospital, we put it in writing and the social worker also did the same.We got a meeting with the hospital and all they said was sorry and that the Dr was young and they will deal with her and give more training on her patient care.My mother was taken to a palliative care unit where she passed away. We found that mum had died of primary breast cancer with ashemic heat disease.Then after all that heart ache, mum s funeral was as bad. She was catholic and the priest that did her rosary smelt like alcohol and we were not happy, he told us he would see us oat her funeral, on the day of her funeral it was so hot, we waited in the church for an hour and no one showed, we had to contact the church and asked why he was not there, we got told he was busy, i screamed down the phone doing what, he is to be here doing our mothers funeral, they sent a priest that we didnt know during the service her forgot mums name and we had to tell him, he nearly knocked mums coffin over and everyone was so hot they couldnt wait to get out.It has been six years now, and we have tried to contact the catholic church for an apology we have written letters we have gone to the head church and spoken to a monsenior about the situation only to be told it was over with we should just forget it.I fully understand yur heart ache and I do hope you get justice, we never have as it was put in the too hard basket as they church was involved after her death, trying to get two cases going about lack of care and the church's lack of interest in one of their own parishiners, I hope with my heart you find justice and your more than welcome to talk to me about your pain.My mums birthday is the 24th of May and she dies on the 26th of October, one month after being diagnosed.May you find peace regards zaidee
    zaidee 1 Replies
    • September 23, 2011
    • 10:37 AM
    • 0
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