Discussions By Condition: Liver conditions

Can not convince doctor

Posted In: Liver conditions 1 Replies
  • Posted By: Anonymous
  • October 6, 2009
  • 11:00 AM

Hi,

I have been told by a well respected hepatologist that I have NASH, but I can not get my doctors to agree that the symptoms I have now got are related to my liver, and they are wasting time looking for other causes like my stomach and I need to get on with treatment for my liver if it is that. I can not return to my hepatologist who diagnosed me as I do not have insurance, he did write to my PCD with his findings but she does not seem to think my symptoms can be attributed to NASH. Could those here who suffer from liver disease take a look and comment, thank you.

LFT have been elevated since 1993 ALT100 AST80.

CT and US in 1993 suggested fatty liver.

2 scans done 2009 suggest fatty liver and NASH.

All bloods have been normal hep, willsons, celtics you name them I had them done. Not diabetic.

Since 1993 I noticed what I thought to be fluid around my stomach area, this would come and go but it would last a few days to months then I would pee a lot and it would vanish.

Since June this year I have started to get nausea on a daily basis not eating much at all, or drinking fluids. I also get indigestion but no pain to talk of.

Since June I lost 10kg.

I bleed more easily than I used to although all bloods come back as normal including clotting and platelets.

Today I have noticed that my stomach feels swollen I have not eaten more but have had a bit more fluid to drink over the last few days.

Now can anyone relate to this that has liver disease, when my stomach is swollen, fluid? my nausea vanishes just like that, I had been nauseous for weeks then my stomach swells and hey presto, no nausea.

How do I convince my doctor that my liver could be causing this, I feel that if I don't I will miss out on treatment or/and getting on a transplant list in time.

Thank you, Ian

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  • Hi,I have been told by a well respected hepatologist that I have NASH, but I can not get my doctors to agree that the symptoms I have now got are related to my liver, and they are wasting time looking for other causes like my stomach and I need to get on with treatment for my liver if it is that. I can not return to my hepatologist who diagnosed me as I do not have insurance, he did write to my PCD with his findings but she does not seem to think my symptoms can be attributed to NASH. Could those here who suffer from liver disease take a look and comment, thank you. LFT have been elevated since 1993 ALT100 AST80.CT and US in 1993 suggested fatty liver.2 scans done 2009 suggest fatty liver and NASH.All bloods have been normal hep, willsons, celtics you name them I had them done. Not diabetic.Since 1993 I noticed what I thought to be fluid around my stomach area, this would come and go but it would last a few days to months then I would pee a lot and it would vanish.Since June this year I have started to get nausea on a daily basis not eating much at all, or drinking fluids. I also get indigestion but no pain to talk of.Since June I lost 10kg.I bleed more easily than I used to although all bloods come back as normal including clotting and platelets. Today I have noticed that my stomach feels swollen I have not eaten more but have had a bit more fluid to drink over the last few days.Now can anyone relate to this that has liver disease, when my stomach is swollen, fluid? my nausea vanishes just like that, I had been nauseous for weeks then my stomach swells and hey presto, no nausea.How do I convince my doctor that my liver could be causing this, I feel that if I don't I will miss out on treatment or/and getting on a transplant list in time. Thank you, IanNothing can fix NASH/NAFLD better than PPC (polyenylphosphatidylcholine) Brand names PhosChol and HepatoPro. http://www.lef.org/magazine/mag2004/feb2004_report_liver_02.htm Can NAFLD Be Treated or Prevented?Conventional medicine does not yet have one specific pharmacological treatment that truly works to control NAFLD. People who are at high risk of developing NAFLD, particularly those who are obese or have diabetes or metabolic syndrome conditions, may want to consider talking to their doctor about taking the soybean extract polyenylphosphatidylcholine (PPC). Research suggests that the supplement may stop liver damage in its tracks and even accelerate its regression.26PPC already is approved for the treatment of chronic liver diseases in many European countries and is being investigated for treatment of hepatitis (see sidebar on p. 55, “PPC in Viral Hepatitis”). PPC is listed in the Physician’s Desk Reference (PDR) commonly used by US physicians. An accumulating body of research suggests that PPC’s umbrella of protection may extend from the liver to the stomach, pancreas, and cardiovascular system. PPC is well absorbed in humans and animals when taken orally and has no known contraindications, side effects, or interactions with other drugs, even when consumed in large quantities. In one pilot study, researchers found that daily doses of PPC halted the progression of liver fibrosis,27 and a Czech study showed that taking the supplement every day (along with low doses of fatty acids, B vitamins, and vitamin E) reduced fatty-liver symptoms within six months in more than half of the study participants.28 PPC also appears to increase the breakdown of collagen, the connective-tissue protein that tends to accumulate in liver disease, promoting the scarring behind fibrosis and cirrhosis.29
    synesthesia 87 Replies
    • October 8, 2009
    • 05:26 PM
    • 0
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