Discussions By Condition: Leg conditions

start ball rolling

Posted In: Leg conditions 3 Replies
  • Posted By: Anonymous
  • June 5, 2006
  • 08:53 PM

anyone got any ideas about this - drives me crazy every night when I sit down. have to get up and walk about every half-hour but thankfully doesn't keep me awake

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  • I had a client that had this diagnosis. She was treated with a drug called Neurontin. I understand there are several other treatments that help as well.
    Anonymous 42,789 Replies Flag this Response
  • I suffered for about 3 years before I even knew what it was. Lots of Insomnia. When RLS started getting more media attention I realized that I was suffering from it. Periodic web searches about treatments/causes led me to discover that people with anemia (typically iron deficiency anemia) will get RLS. So finally, after about 5 years of RLS and associated sleep problems, I started taking iron supplements and my symptoms immediately disappeared. If you suffer from RLS, you should a least try Iron supplementation. Try it for a few weeks and see if symptoms subside. It has been about a year since I started taking iron daily, so I am not sure how long it initially took to work, but I think it was only a matter of days until I could lay down and go to sleep without experiencing RLS (what a relief). I currently take a multi-vitamin with iron (100% recommended daily allowance) daily, plus an iron supplement (over 300% RDA) every day or every other day. Incidentally, I was also experiencing Periodic Limb Movement Disorder (PLMD) in conjunction with RLS (fortunately this happens when you are asleep). PLMD is characterized by involuntary movement, in my case, my legs would tense up and "shake" for several seconds - this kept my wife up sometimes. This condition has also disappeared once I started taking iron.I am male with no known chronic sources of bleeding, so my anemia is likely caused by a hereditary condition like spherocytosis, or some other condition where red blood cells are broken down too quickly (I had a blood test that showed a high biliruben count). Anybody know any good hematologists so I can get a real diagnosis? One more tip for RLS sufferers, before I was taking iron I would wrap my leg in a tight ace bandage to alleviate symptoms enough to fall asleep.
    Anonymous 42,789 Replies Flag this Response
  • I experienced a variant of RLS for 20 years before figuring out what it was. Mine was Restless Arm Syndrome, but it was so infrequent, not to mention bizarre, that I never sought information. It was just too indescribable! However, within a year after I figured it out I have bowel surgery that left me so malnourished that I had several brushes with death. At the very bottom of my illness suddenly it showed up with a vengeance in my legs, and it was constant and uncontrollable at night. During this 6 month period I received 6 units of blood, and now that I am so much more well-nourished it has not recurred even though I am still very much anemic (9-10 grams of hbg). I am guessing that it was the blood that cleared it up.
    Anonymous 42,789 Replies
    • August 28, 2006
    • 10:06 PM
    • 0
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