I'm posting this regarding a friend......
Her symptoms fit RLS, but with other sympstoms as well which I've found to be listed as common with arachnoiditis (although this syndome/disease is apparently quite rare....) so was hoping to get some advice from some knowledgeable people out there.
Basic symptoms are very painful leg spasms which she says start as a dull ache/throb which builds quite quickly to a very painful spasm/twitch. This mainly happens in the evening/at night and severely affects her ability to sleep. Although she says if it comes on after she has fallen asleep of a night she finds that although the spasms/twitches will wake her each time she is able to fall asleep quite easily after each one. If they start before she initially falls asleep they are excrutiating and sleep is impossible until the symptoms subside. Perhaps the most worrying symptom that she has now let on about is complete numbness from the waist down. This has happened tonight but she has admitted to me that it has happened before. She has complete loss of feeling from the tips of her toes up to just under her tummy button. This evening this loss of sensation lasted just over 2 hours and was accompanied by short bouts of pins and needles in very specific areas (mainly genitals, but also a burning tingling sensation around the knees). During the periods of numbness there are no spasms and typically no pain.
Other general symptoms on a daily basis are fatigue, an undiagnosed depression, palpitations, she has experienced difficulty swallowing once of twice recently, headaches (she'll have a few days at a time where she is plagued by them), difficulty emptying here bladder.....
She is 27 years old, overweight, a smoker, doesnt drink, has a history of back problems and has been left bed bound on several occasions due to this, is a horse rider so has had numerous falls/injuries in the past, but currently leads a relatively sedentary lifestyle.
I've read that patients should go to the dr forearmed as they tend to assume disc problems (which she has been checked for previously with no evidence of any damage) and that in some circumstances this kind of mis-diagnosis and subsequent mis-treatment can make things a lot worse and cause more damage. SOOOOO this is our attempt at doing some research before she goes back again to try and get a better answer from them than she has before.
I thank in advance anyone thats feels they are able to give some advice, it will be gladly received and greatly appreciated. :)