Discussions By Condition: Leg conditions

long, strange trip

Posted In: Leg conditions 13 Replies
  • Posted By: Anonymous
  • August 19, 2006
  • 06:15 PM

Hi all,
a short history of pain and affliction. in '02 I had hernia repair procedure performed on both lower abdominal inguinal hernias. Shortly after the surgery, I started to notice a tingling sensation on the surface of my left thigh. I questioned my care givers about this and was blatantly ignored. I receive my care at the VAMC in Phoenix, AZ. Only later did find that my concerns had indeed been added to my file, although I was still given no direct info. As time went by the tingling was joined by a burning sensation, right below the surface of the skin. A , with no sort time later the pain became so severe that I had to quit working, and spent the bulk of my time in bed.The doctors tried elavil to start with, to no avail. we went from there to carbazapam, no luck, then to tegretol, neuron8tin, vicodin (some help there), then into class 2 narcotics. Tried Percoset and found the first relief in 2 years. When the dosage was maxed out , we went to morphine sulfate. 600mg a day is the current dose and I can at least function in the world. Work is still not an option, as I am now receiving social security disability.At 1 point in this journey I called my priest and had the last rites administered, as I was determined to end my life, rather than endure the horrible burning, which by the way, had come to include my right leg as well. It was only after heavy prayer that I did find relief. Backing up some, when i first complained of this condition, MY DOCS SAID THE BEST TREATMENT WAS TO LOSE WEIGHT AND LOOSEN MY BELT!!!:confused: If you've come this far, then you've also seen the same web page that offers this "treatment". Good luck to all and please feel free to contact me if you have unanswered questions. 4 years of this stuff and no real cures in sight. god Bless you all, Mike

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  • Hey -I have this. At first it was just when I was walking or standing, my thigh would get numb. Then it got to where it would be a painful burning and go away when I sat down. Now it's gotten to the point where it is numb virtually all of the time, and painfully burning when I stand walk and even lie on my back. Is this condition the reason you are on disability? I am overweight and for three years I did a job where I wore a hip computer. I don't do this anymore, and I don't wear a belt at all, but it's still getting worse.
    Anonymous 42789 Replies
    • August 19, 2006
    • 09:23 PM
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  • hi wiley,yesindeed, this is the root cause of my SSD. Been on SSD for a year now, and no end in sight. Just a word of caution; do not allow your care giver(s)to use outdated methods to treat you. get pro-active and be a strong part of your care. Good luck, mike
    Anonymous 42789 Replies
    • August 20, 2006
    • 00:30 AM
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  • I also have Meralgia Paresthetica . I am 48 yr old. I had surgery for what I thought would fix my burning sensation in my left leg in early 2005 but I came out with a laminectomy ( rods and screws in my L 5- S 1) and built up my last disc with pollimers. I currently have degenerate disc disease. Awhile after surgery I start up with the pain and pain in my back. I have been reading articles on this and it tells me to loose weight constricting garments or girdles My neuro surgeon told me to see a pain mgmt dr. We have tried just about every thing, from Neurotin to cortizone shots in the leg with no avail. I currently stand on my feet as a cashier, and there days I just can't stand the pain. My surgeon told me that he could do the surgery by cutting the nerve possible rrelieving the burning but could have numbness the rest of my life. Possibles that might be of help: ULTRASOUND, ELECTRIC STIMULATION OR TRANSVERSE FRICTION techniques to break up adhesions at the inguinal region. Thanks for the info. will try your route for pain mgmt with drugs if ok'ed with doc.
    Anonymous 42789 Replies
    • August 23, 2006
    • 06:36 PM
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  • I also have Meralgia Paresthetica . I am 48 yr old. I had surgery for what I thought would fix my burning sensation in my left leg in early 2005 but I came out with a laminectomy ( rods and screws in my L 5- S 1) and built up my last disc with pollimers. I currently have degenerate disc disease. Awhile after surgery I start up with the pain and pain in my back. I have been reading articles on this and it tells me to loose weight constricting garments or girdles My neuro surgeon told me to see a pain mgmt dr. We have tried just about every thing, from Neurotin to cortizone shots in the leg with no avail. I currently stand on my feet as a cashier, and there days I just can't stand the pain. My surgeon told me that he could do the surgery by cutting the nerve possible releiving the burning but could have numbness the rest of my life. Possibles that might be of help: ULTRASOUND, ELECTRIC STIMULATION OR TRANSVERSE FRICTION techniques to break up adhesions at the inguinal region. Thanks for the info. will try your route for pain mgmt with drugs if ok'ed with doc.
    Anonymous 42789 Replies
    • August 23, 2006
    • 06:44 PM
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  • hi shortcake, just a word of caution, if I may. Since the problem with M.p. is that the nerve is essentially dead, what good could come of cutting the offending nerve? I tend to be wary of most health care Professionals as they for the most part do not really understand the nature of our affliction. It is not going to chang unless and until, we as patients educate them and not allow outdated and archaic remedies to be foisted upon us, in lieu of real medicine and research. Unfortunately we are in a minority andnot in line for extensive research. good luck, Mike
    Anonymous 42789 Replies
    • August 23, 2006
    • 10:39 PM
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  • hey how u doing mike my name is mike too just wanted to ask u a ? i have same stuff wrong with me i seen your post would like to know how u are doing and if u have any sugestions for me if u could reply thanks alot
    mikey48503 1 Replies
    • September 29, 2006
    • 10:57 AM
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  • thank you for your message, mikey. Ill be glad to help in any way i can. since im not much of a public speaker, please just ask specific questions and ill answer best as i can. BTW i am doing as best as can be expected, given the nature of M.P. god bless, mike
    Anonymous 42789 Replies
    • October 4, 2006
    • 00:34 AM
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  • I was surfing the net, and would like to tell my story.Seven weeks ago I was rushed into hospital for an operation, I had a performated appendix, peritonitis, and a cyst; (sometime after the op I had a big fat needle injection in my left thigh); the 13 cm wound became infected so that stiches had to come out the next day; 6 days later I was sent home with an open wound (I will spare you the gorey details);After the operation I noticed a numb feeling in my LEFT thigh, but the nurse said I just needed to exercise.After weeks of check up appointments for the wound, I was referred to a neurologist at the same hospital about my thigh. He diagnosed Meralgia Paresthetica' and said I should not wear tight clothing, or sit with my knees up; I was angry and insulted, (I am also not overweight), he said there was nothing more he could do for me. I told him I did not have this before I came to the hospital. I think it may have been caused by surgery or the injection; the neurologist said it could not have been because of that, and if it was an injection pain would also be in the groin.I am very distressed now and intend to go for a second opinion.Any further information or advice would be appreciated. Thanks.
    Anonymous 42789 Replies
    • January 23, 2007
    • 06:45 PM
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  • Don't be insulted if Dr suggest weight loss, or looser belt. Form Dynomed.com: (Maggie, it could indeed be related to your surgury)"Meralgia paresthetica (also known as “lateral femoral cutaneous nerve entrapment” or “femoral cutaneous nerve syndrome”) results from pressure or constriction on the lateral femoral cutaneous nerve of the thigh. The symptoms of this disorder are pain, burning, and tingling sensations along the outside of the thigh, usually accompanied by a burning numbness in the skin. The nerve aches and burns whenever it is constricted or pressure is placed upon it. Light touch causes more discomfort than firm pressure. Meralgia paresthetica is sometimes confused with hip disorders, including trochanteric bursitis, and with other conditions affecting the lower back.Meralgia paresthetica may be due to obesity. It is often seen in patients who wear tight corsets or undergarments, or heavy tool belts around the waist. Sometimes it affects young people whose bodies are muscular, such as cheerleaders who repeatedly extend their hips, or cross-country athletes. It may be the result of complications from surgery, trauma to the hip, or mild repetitive trauma to the lateral femoral cutaneous nerve.
    Anonymous 42789 Replies
    • February 3, 2007
    • 05:11 PM
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  • Thanks for your response; I did look up all the info on the net about Meralgia Paraesthetica; I just need to know about if it can, and how it can happen from surgery; my GP says it can be if a patient is not positioned right, or not given enough support (padding) on the operating table, and therefore pressure can be put on a certain nerve; also in the IMJ (Irish Medical Journal) on the net it says MP can be caused even in remote areas (left leg?!) after appendix surgery;I was just angry that the neurologist at the hospital where I had my surgery, dismissed this problem, and treated it as if it was some long ongoing problem I already had - I definately did NOThave this before I went into that hospital; also the neurologist did not reassure me in any way, by saying that my thigh may get back to proper sensation in time, and that if it didn't I should come back to see him. I just got the feeling that he wanted to get rid of me, and did not want it connected in any way to my recent surgery at that hospital.My doctor is referring me to a different neurologist for a second opinion; if I find out (which will be hard to do) it is indeed due to the surgery, or mistakes made, I want to take the matter fiurther;I want you to know I am being positive, and getting on with things in my life, concentrating on my music etc.I, like everyone else, hope to have the feeling back in my thigh, but I think it is a positive step to look into the matter, so I can eventually have proper closure to the whole situation.I would like to know of any cases, where MP has happened after surgery, this would help me a lot to deal with the matter.Thanks...... Maggie
    Anonymous 42789 Replies
    • February 4, 2007
    • 06:02 PM
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  • Hi, sorry to hear what you are going through. I have had several spinal fusions and a laminectomy. I had to have bone removed from the donor site for the fusions and the stupid surgeon cut my lateral femoral cutaneous nerve. I highly reccomend NO ONE does this on purpose. If this means loosening your belt or wearing stretch pants for the rest of your life then do so. The results of having this nerve cut is never predictable and does not ever leave you without nerve symptoms of some sort. What I have learned from more than 15 years of so called corrective surgery for my back etc. is that it takes 6 months for the doctor to even guess if he is on the right tract with the nerves he cut into or nearby. Then it will take at least 2 years for the healing process to complete- HA HA. I do not recommend that you or anyone has surgery of any sort unless you are in unbearable pain- and that is for more than 2 weeks.I wish I could say I didn't have to have my surgery- you probably think I am nuts, but I had what could be called a dead disc that was pressing on the nerve. that was in the lower lumbar. Then it affected my neck, thus the second fusion and now my thorasic spine has degenerated.I know just that when the surgeon came back from surgery for the bone excision he tapped my leg and said "this must feel different". I stupidly said that I thought this was why my leg was losing all feeling and I was falling.-this actually was from another nerve problem, not the lateral cutaneous nerve. He never answered that with any sort of explanation. Just my luck, the doctor was too cocky and cut me without care. Now, only 16 months later and he has retired and disappeared. He was only about 55yrs old. Sorry, I am so angry, I have chronic pain and really no hope for the future and this ortho has made my life even worse. I have no hope for anything, the nerve is not getting any better. It constantly sends out zings and tingles. It feels very sore on the edges and is warm to touch. It is fri''ing awful. I bump into things and not know I have cut or scratched that whole side of my left leg. I was given eplim at first and I only took it a couple of times. I decided that the drug had more side effects than living with the numbness and zings etc. I already take a crypt load of painkillers. Please, anyone that is considering cutting a nerve for the numbness-DO NOT do it! I can guarantee you that you will not get complete numbness, and in this case you will not be happy with the extensive area it covers.And just for those that may have an inpingment that may have happened on it's own, do everything you can for the nerve- including massage, losing weight, taking the belt off whatever but get that nerve back, it is worth working for. Good luck,K:mad:
    Anonymous 42789 Replies
    • February 18, 2007
    • 10:10 AM
    • 0
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  • xSoo sorry to hear your painful story; I do hope you will find the help you deserve; this morning I went to see a neurologist for a second opinion on the MP in my left thigh; he said that it was most likely to have been caused by the painful injection I had in my left thigh in hospital after my appendix operation; he said it was in actual fact a 'nerve lesion' and that this happened very rarely, and it was just bad luck to have that happen, and that it was not due to any negligence; apparently the nerve is damaged and it could heal in time (regrowth), but time will tell......... I am lucky in that I do not have much pain, only discomfort; I was pleased to be taken seriously and given the time for an explanation........ this in itself has helped me to heal a little.Take care....... Maggie
    Anonymous 42789 Replies
    • February 28, 2007
    • 09:40 PM
    • 0
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  • Hi Maggie i had the same thing happen to me after a laminectomy L5 S1 area the day i came out of surgery my right hand and right foot and leg was numb. the feeling in my hand came back but not my foot or leg.what now!!!
    Anonymous 42789 Replies Flag this Response
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