Discussions By Condition: Kidney conditions

Undiagnosed Right Flank Pain

Posted In: Kidney conditions 8 Replies
  • Posted By: Anonymous
  • April 16, 2008
  • 08:25 PM

I Have been having right flank pain for over 3 years now. It started with blood in urine Doctor thought it was a bladder infection (3 times). About a month later I ended up in the ER with excruciating right flank pain. I had a 7mm Kidney stone in my uriter, The urologist done ESWL (lithotripsy), twice before it was suposedly crushed. I did not have insurance at the time. The pain did not go away, and I could not afford to persue it. I worked in much pain for a year when I got insurance I went to the Doctor, CT showed a 14mm stone in uriter. When they tried to do ESWL it was too infected had to put a stent in and put me on antibiotics to reduce th inflamation before proceeding. I ended up in the ER again, with excruciating pain, my right kidney was stopped up by the stone. I spent a week in the hospital on IV fluids, and medicine. The Doctor did the ESWL to a supposed sucess.
The pain did not supside (the pain is and has always been in the same place,it is not as intense as the pain that lands me in the ER). My Doctors ran all the tests to try to find the source of the pain (gallbladder,liver,upper&lower intestine,renal, and gynological). The only thing that they found is a 5mm stone in the kidney. All the doctors say that a stone in the kidney does not cause pain. I have been going to see a pain management Doctor for about 5 months now. I also had to quit work. I found a urologist who would do ESWL on the stone in my kidney, although he does not think it is the source of my pain. With my past history it would have gotton bigger and got stuck in my uriter. I had the surgery last week so far it has not worked. I go back in a week to get a follow up X-ray. One of my past Doctors said I had IBS, I disagreed I think he wanted to put a name to my pain (he was a Gastranologist). I think my Doctors do not take me seriosly, I know something is wrong and it is scary and frustraiting. I am 33, and have two boys (8 & 12) who need me. I still do my housework, supper and help with thier homework. Some days less gets done than others do to all of this. I am blessed with an understanding and helpful boyfriend. I can only hope that someday they will find the problem. I know it is not all in my head. I know what pain is (I have a high talerance) both boys were delivered without any medicine, I did not take any medicine after thier birth, and the stones that got stuck were large ones and I worked a long time without pain meds bfore they were dissolved. I'm at wits end any sugestions?

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8 Replies:

  • I have been having right flank pain for almost two years now and I have been undiagnosed as well. The onset of the pain began one morning with excruciating pain which sent me to the ER but the only thing they found was an infarction in my kidney. An infarction is an area that has died, usually due to some sort of blockage in the blood-stream. The blockage in my blood-stream was ruled out because I do not have high cholesterol and I do not have "thick blood". My case has baffled 5 different specialists and is still un-resolved.My doctors also say that I shouldn't have any pain this long after the initial incident, but here I am on muscle relaxers and narcotics years later.
    Anonymous 42789 Replies Flag this Response
  • Strangely enough, my husband has the exact same symptoms as you. Please update if you get a diagnosis because we are very frustrated. His is exacerbated by physical activity so he can't do anything strenuous. He has been in and out of the hospital over the last several years and every test imaginable has been run on him. I have been having right flank pain for almost two years now and I have been undiagnosed as well. The onset of the pain began one morning with excruciating pain which sent me to the ER but the only thing they found was an infarction in my kidney. An infarction is an area that has died, usually due to some sort of blockage in the blood-stream. The blockage in my blood-stream was ruled out because I do not have high cholesterol and I do not have "thick blood". My case has baffled 5 different specialists and is still un-resolved.My doctors also say that I shouldn't have any pain this long after the initial incident, but here I am on muscle relaxers and narcotics years later.
    Anonymous 42789 Replies Flag this Response
  • I think we need to remember that doctors don't know it all...so keep persisting till you find one that does or one that is caring enough to be commited to you in the journey of diagnoses and getting you better. I had a disabilitating illness when I was younger and nobody took me seriously (6 doctors) until I almost died and my urine was brown.In other words, You have pain, you know somethings wrong, keep on them till they help you, because it is actually illegal to leave a patient in pain.Please let us know how you are doing and if they find out the problem. I wish you good luck :)Debbie
    debgail 6 Replies Flag this Response
  • I still have the pain in my side but I also have a new diagnosis to go with it, or at least a guess of a diagnosis. My gastroenterologist has given me a "probable diagnosis" of Crohn's Disease and acute pancreatitis. I put the "probable diagnosis" in quotation marks because when I asked him for the lab results and paperwork to back up these statements he told me that this diagnosis is just a "best guess". So basically he is telling me that he doesn't know and basically doesn't care. So in all reality I am no better now than I was before...
    Anonymous 42789 Replies
    • December 9, 2008
    • 04:56 AM
    • 0
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  • I have had unexplained flank pain as well. Last year I had a kidney stone that wasn't diagnosed untill I had 2 different CT scans and x-rays. I was Anemic and losing blood and they couldn't spot the trouble. About 8months later I started to have more flank pain and I went to the ER. My blood test came back normal and they sent me on my way. I found a blog about slipping rib syndrome and started to believe this was the problem,but i have ear pain and headaches. Fatigue and aching legs and ankles are a symptom as well but since I did not have insurance at the time they really don't want to go any further. I have recently gotten insurance and I am going to try and see them about my fibroids. I have a underwrite that I can't have kidney prob. for 2yrs. Earlier I was diagnosed with acid reflux,so Itook Zantac. I have less pain in my stomach, but that has nothing to do with the flank pain. At a loss for words now,just in pain. Going to school for my MS in counseling so I work on Breathe awareness,lamase for pain etc.I take what ever hydocodene& Ibruprofen I can get from other illnesses and pray for an answer. I know the ear syptoms and sore ankles, legs spell out more than a slipping rib,but my body has to show it in my blood and I have to wait and pray it will show its ugly head soon. Good Luck Everyone!!!!!
    Anonymous 42789 Replies Flag this Response
  • Don't wait RUN to a kidney SPECIALIST.. Kidney stones could be the least of your problems I went undig. for 3 yrs felt like there were a million needles going into my kidney wrapping around, I was on dialysis 6 month after they FINALLY figured it out. But I had to go outside the scope of wht the Dr's were saying. I MOVED here to Calif to be near the best Dr. I should have died 16 yrs ago according to the other Dr's. I got my new kidney on Jan 8, 2008, thanks to a young man that had donated his organs. Don't let them put you on the sidelines before it's to late. Ask what your CREATINE count is, WATCH it CLOSELY, if it's at .08 or higher, you ARE LOSING YOUR kidneys. They kept telling me I was a "Drug seeker" When I started to question them. Some Dr's do think they are GOD, remember one important thing, They are PRACTICING MEDICINE, they don't have it all down or it wouldn't be practice would it? Mind you there was a lot of other things I've gone through since I started dialysis. 3 Heart Attacks, 3 strokes, 3 bleeding ulcers, my gallbladder, appendix, spline, some of my lower intestine, small colon, removed, triple bypass. All this started from right flank pain that excelled it all. So please listen GO to a KIDNEY DR... Make them show you your test results, by law they are yours, if you feel even the slightest that the Dr maybe waiting go to a different one and take the results from the first Dr. NEVER take No as an answer. if anyone has a question feel free-- crysafe@hotmail.com
    Anonymous 42789 Replies Flag this Response
  • Strangely enough, my husband has the exact same symptoms as you. Please update if you get a diagnosis because we are very frustrated. His is exacerbated by physical activity so he can't do anything strenuous. He has been in and out of the hospital over the last several years and every test imaginable has been run on him.I'm sorry but I still don't have a diagnosis to share with you on my case. I can tell you that they are still testing but the more they look the more they find. So far they have found a cyst in my thyroid, a factor VIII deficiency in my blood, arthritis in my neck, nerve damage in my elbow, asthma, migraines, tinnitus, and occasionally I will have some blood in my urine. Still nothing on my "mystery pain", as I have come to call it. Please let me know if your husband ever gets any sort of diagnosis as well. My docs are stumped.Side note to this story. . . The medical profession completed their collection on me the other day. They have now inserted a camera into every orifice in my body, congratulations guys!
    Anonymous 42789 Replies
    • August 30, 2009
    • 03:18 AM
    • 0
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  • Have the doctors checked your pituitary gland? Perhaps you have a pituitary adenoma, causing a problem with the thyroid and maintaining water balance, thus causing the kidney stones.I'm sorry but I still don't have a diagnosis to share with you on my case. I can tell you that they are still testing but the more they look the more they find. So far they have found a cyst in my thyroid, a factor VIII deficiency in my blood, arthritis in my neck, nerve damage in my elbow, asthma, migraines, tinnitus, and occasionally I will have some blood in my urine. Still nothing on my "mystery pain", as I have come to call it. Please let me know if your husband ever gets any sort of diagnosis as well. My docs are stumped.Side note to this story. . . The medical profession completed their collection on me the other day. They have now inserted a camera into every orifice in my body, congratulations guys!
    Anonymous 42789 Replies Flag this Response
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