Discussions By Condition: Kidney conditions

Son diagnosed with acute glomerulonephritis

Posted In: Kidney conditions 9 Replies
  • Posted By: Pghpensfans
  • March 24, 2007
  • 05:36 PM

My nine-year-old son just got discharged from the hospital with acute glomerulonephritis. He has taken Strattera in the past, but is currently taking Adderall XR. He began having abdominal pain and told me the next day that his urine is a funny color. His pediatrician was on vacation and the covering pediatrician had her fax machine on all day. My son came home with a fever and a sore neck, so we went to the local ER who diagnosed him with a UTI and gave him Amoxicillin. The abdominal pain continued and he refused to eat or drink because of it. Fevers continued. We got fed up and took him to Children's Hosptial of Pittsburgh. He spent the night there and had IV fluids. They said he has no UTI and that it is a kidney infection. He was put on a 1,500 mg sodium diet and told to stop taking any caffeine. He was put on no medication and told to follow-up with the pediatrician for a blood pressure check and a basic metabolic profile. We are also going to follow-up with the pediatric urologist in a week. They found no sign of infection and are puzzled as to what has caused this.
Basically, I was just wondering if it could be the Adderall XR and if anyone else has heard about this or experienced it. We were told he'd need follow-up for the rest of his life to keep an eye out for any kidney problems. Also, I'd appreciate any help/suggestions with the low-sodium diet. I'll check back for reples or you can always email me at Pghpensfans@msn.com. Thanks for letting me vent, it's been a long week....:confused:

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9 Replies:

  • Well, I see a lot of people have read my post, but no one is responding. :( My son ended up back in the ER for hypertension and ended up having to take medication for high blood pressure. We were supposed to see the pediatric nephrologist today, but now my MIL is in ICU on a ventilator and is unresponsive. I'm just taking deep breaths and dealing.
    Pghpensfans 7 Replies Flag this Response
  • Well, I see a lot of people have read my post, but no one is responding. :( My son ended up back in the ER for hypertension and ended up having to take medication for high blood pressure. We were supposed to see the pediatric nephrologist today, but now my MIL is in ICU on a ventilator and is unresponsive. I'm just taking deep breaths and dealing.I am by NO means any sort of expert, but your childs story reminds me of my sons story. In the last few weeks my son complained he did not feel well and had pretty severe lower stomach pain. I took him to the ER and at that time he was urinating blood. They did a Ct scan and one of his kidneys was over 2 times the size of his normal kidney. We were sent to Childrens hospital where they did blood tests, Ct Scans, Ultrasounds, and Xrays. My was admitted that same day and after all the doctors reviewed his tests I was told the probabilities of him having cancer were very high. He had surgery within 3 days of being admitted and they removed his right kidney. Biopsy results were not available till the next day and it was then I was told he did not have cancer, he has Autosomal Dominant Polycystic Disease. My son is feeling a lot better, although we have a non curable disease and do not know what the future will hold for him......All we can do is hope for the best. My son is 12. I truly hope your son is okay and that you find someone that can help figure out just what is wrong with him. Best of luck to you.
    Anonymous 42789 Replies Flag this Response
  • Your son, you and your family have my thoughts and prayers. It turned out that my son's kidney infection did in fact result from a strep infection. We are currently taking his blood pressure three times a day and if it is 100/60 or less in the morning, we are able to hold his medication. The nephroligist feels that this should be a one-time thing and shouldn't happen again...but it could. We will see the nephrologist at Children's Hospital again in May. Please feel free to continue to post to me or email me at Pghpensfans@msn.com, if you need to vent.:)
    Pghpensfans 7 Replies Flag this Response
  • My son was diagnosed with Glomerulonephritis three years ago. According the the doctor, he got this from strep throat. It was pretty scary but we were able to get his blood pressure down with medication and the swelling and joint pain went down when his blood pressure was under control. We do a yearly urine test to be sure that there are no red blood cells in his urine and everything has been good up until three moths ago...he had a sore throat and a couple of days later had blood in his urine. We've been moitoring it now for the last three months and he continues to have blood in his urine (when he forces-usually after a bm). The doctor sent us back for tests but everything came back normal. My son is 12 now and is really concerned about the blood in his pee...I'm taking him back to the doctor's this week. There has to be a reason why my son is having blood in his urine!Hope your son is doing well and coping with this decease. My son gets very frustrated-communication is key to help them through this.
    Anonymous 42789 Replies Flag this Response
  • I wonder why he's still having the blood in his urine. :(
    Pghpensfans 7 Replies Flag this Response
  • I really don't know but all the research on the internet doesn't help because he doesn't have any side effects associated with severe cases...just the blood - and only when he forces...
    Anonymous 42789 Replies Flag this Response
  • :( Well where can I start my story at. I was a pretty healthy 23 yr old female up until july 5 2007 and thats when my life turned upside down. I first noticed frothy urine when I peed. I went to the er due to that and also high blood pressure and kidney pain that would not go away. They told me u have a UTI, take levaquin for 7 days. i took it for 5 and the pain inly got worse and now slowly I was gaining water weight. I went back to doc. and she says.. nope u still have UTI, ( blood & protein found in urine,, and also low amounts of protein found in blood ) were gonna start me on macrobid. Now its July 13th. the pain is worse all over my body, my face, eyes, hands, legs, ankles, feet were swollen now my weight went from 155lbs to 182lbs, and from a UTI??? Come on. I never believed them one bit. On july 14th I was rushed to the er again with high, high blood pressure, heart palps, u name it I had it. And told them to check my Kidneys I needed a specialist... Then what I call him is GOD came in and ran tons of tests. Did a kidney biopsy and found out that I had Minimal change disease. WHAT!!!! THAT WAS MY REACTION. Now im on course of Predisone, with lasix, ulcer medications to prevent them and high cholesterol pills too. All of this because some doctor was too lazy to do further reasearch. I should be ok in 6 months to a year depending on how my body reacts to the medications. I ended up finding out in the hospital that I am also highly allergic to Compozine.. Thats a narcotic I believe to relieve pain that I had in the hospital. And that almost killed me. Honestly. MY heart rate jumped to about 200 beats per minute and they had the paddles ready when I fell ill... Just never believe what the doctors say always get 2nd opinons. Its been only 2 weeks since being released from the hospital and on the medications. Im doing ok. Im still swollen from the waist down. Hopefully the end of the month the weight will slowly come off.
    lianerhymes1 2 Replies Flag this Response
  • i understand, went through most of the same stuff myself almost three years ago. turns out i have iga along with cresentic glomerulonepritus. the prednisone saved my kidneys and my life but it caused me to swell in places i didin't know could. my genitals looked like something that belonged in national geographic. my kidneys were re-acting to the shock steroid therapy. i kept calling in and they kept saying weight gain was normal.....i gained almost 60 lbs in three weeks. i was able to lie in bed and watch the stretch marks crawl down my legs. some even tore open. finally i was hospitalized for 7 days of some serious diuretics and my weight went back to normal. not that it stayed that way, the normal weight gain from the steroids soon began and now i have stretch maks everywhere. i went from 115 to 189 in about 6 months. i used to dance, teach ballet and coach gymnastics full time. my body wouldn't let me do anything and it still won't. i will say that although the side effects of the steroids (tooth decay, hair loss, hip degeneration, hand tremors, and a bunch of other stuff) were only barely worth stopping the kidney disease sometimes when i think about what has become of my life. i am glad to be alive and the weight fell off as fast as it went on but i have nothing of my former life left. they can't seem to find out what else is wrong with me and i am losing hope and the will to keep fighting. the depression of not being able to do simple things like clean the house or walk to the corner store is overwhelming when you consider how active and strong i used to be. i thought once the kidney disease was put into a remissive sate (it is auto immune and can/probably will come back) i could put my life back together but most of the time the only "life" i have is that i'm alive. my advice to all parents and adults is that everytime you give a urine sample that you ask for a protien dip, it's a $5 dollar test that can send off the warning bells early, resulting in a much better chance at staying away from dialysis, every kidney patients greatest fear, although most doctors don't add this test to there list, nor is it covered as a standard annual test but i tell you all it could save you or your kid's life. pay the 5 bucks.
    pocket_venus 7 Replies
    • September 7, 2007
    • 09:44 AM
    • 0
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  • :( Well where can I start my story at. I was a pretty healthy 23 yr old female up until july 5 2007 and thats when my life turned upside down. I first noticed frothy urine when I peed. I went to the er due to that and also high blood pressure and kidney pain that would not go away. They told me u have a UTI, take levaquin for 7 days. i took it for 5 and the pain inly got worse and now slowly I was gaining water weight. I went back to doc. and she says.. nope u still have UTI, ( blood & protein found in urine,, and also low amounts of protein found in blood ) were gonna start me on macrobid. Now its July 13th. the pain is worse all over my body, my face, eyes, hands, legs, ankles, feet were swollen now my weight went from 155lbs to 182lbs, and from a UTI??? Come on. I never believed them one bit. On july 14th I was rushed to the er again with high, high blood pressure, heart palps, u name it I had it. And told them to check my Kidneys I needed a specialist... Then what I call him is GOD came in and ran tons of tests. Did a kidney biopsy and found out that I had Minimal change disease. WHAT!!!! THAT WAS MY REACTION. Now im on course of Predisone, with lasix, ulcer medications to prevent them and high cholesterol pills too. All of this because some doctor was too lazy to do further reasearch. I should be ok in 6 months to a year depending on how my body reacts to the medications. I ended up finding out in the hospital that I am also highly allergic to Compozine.. Thats a narcotic I believe to relieve pain that I had in the hospital. And that almost killed me. Honestly. MY heart rate jumped to about 200 beats per minute and they had the paddles ready when I fell ill... Just never believe what the doctors say always get 2nd opinons. Its been only 2 weeks since being released from the hospital and on the medications. Im doing ok. Im still swollen from the waist down. Hopefully the end of the month the weight will slowly come off.Actually, compazine is an antinauseant but can have the side effect of increasing pain control if other narcotics are being used at the same time. Hope everything works out for you better than this summer did.
    Anonymous 42789 Replies
    • September 16, 2007
    • 01:45 AM
    • 0
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