I wanted to write this because I have stuggled with kidney pains for years and I thought by maybe sharing my story, it might help someone out there who may be going through the same thing.
I have had kidney pains since as long as I can remember. I started noticing a common pattern with the pain, it was always the left side, and the pain would occur when I would drink a large amount of liquid/fluid in a short period of time. I was born with other medical issues, including Spina Bifida-Myelomeningocele, so aches and pains were normal for me. I mentioned my strange pain to my urologist one day and she sent me for a kidney function test. The test showed hydronephrosis (swelling) in my left kidney, but to my amazement, no blockages. My doctor basically shrugged off any idea of a blockage because of these test results, which I didn't blame her, but I KNEW there was something seriously wrong with me. She said the hydronephrosis was probably just a bad picture because all of my previous ultrasounds Ive had every two years, have never showed any swelling. She began thinking that my left, lower back pain was being caused from severe constipation, and wanted me to go in for a KUB x-ray. Me being stubborn, I did not have this done. It made me angry to think my doctor really thought this was the problem. My symptoms slowly started to worsen. During my pain "attacks" I then began vomiting profusely to the point where I would lose 5 pounds in just a day or two. My nausea was so severe, I couldn't move without vomiting, and the pain in my left flank area was just unbearable. The "attacks" which started only lasting 24-48 hours began lasting up to 5 days. I started to think that I was just going to die like this. No one would figure out what this was, and the pain would never end. I cried multiple times a week because I felt no one could help me. I felt as though no one believed me and that I was exaggerating this pain. It got so bad one day, I went and saw my primary care doctor. She sent me for a STAT abdominal CT scan with contrast. She called me with the results which read:
Severe dilatation (enlargement) of the left renal pelvis without ureteral dilatation that has since developed since the study of May 2007 with associated decreased and delayed perfusion and excretion of contrast material by the left kidney as compared to the normal-sized right kidney. The finding would point to a UPJ type obstruction.
THIS WAS IT. I googled UPJ obstruction, and there were my exact symptoms. I followed up with my urologist shortly after my CT scan. Two weeks later, I now have a nephrostomy tube which is helping drain my left kidney until I can have a stent put in. The nephrostomy tube placement x-rays showed the UPJ obstruction as suspected. As uncomfortable as this tube may be, I am SO grateful to have it.
So, moral of my story, if you think there is something wrong, DO NOT GIVE UP! Even if one, two, or ten doctors don't believe you, or tests do not show anything, do not give up. You know your body more than anyone. Just because one test comes out OK, that does not mean it is correct. Continue searching until you have your answer! I hope I can atleast one person with this post... thanks for reading. :)