Discussions By Condition: Kidney conditions

Medullary Sponge Kidney and hyperparathyrodism

Posted In: Kidney conditions 4 Replies
  • Posted By: sianrecovery
  • August 21, 2012
  • 04:22 AM

Does anyone know of a link between these two conditions? I was first diagnosed with MSK 20 years ago, and now have periodic checks with the uroology department. I have diffuse calcinosis in both kidneys and have passed a number of small stones. I also was given a diagnosis of ME three years ago, which is starting to resolve now a private ME doc has given me thyroid hormones. She also suggested I get my parathyroid hormone tested, as I have routinely high levels of calcium in my blood and urine.

I looked at the parathyroid.com website, and was startled by the info on it. My mother also had MSK and high calcium and died early from breast cancer, one of the outcomes associated with hyperparathyroidism when untreated.

My GP wont test my parathyroid hormone or send me to a endo.

Has anyone any experience of this?


Thanks

Sian

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4 Replies:

  • I'm not sure if this is a coincidence, but i have often wondered if there is a relationship between the two. I was diagnosed with HPTD in 2000 I had to have one of my parathyroids removed in 2003. Then this year, 2012 I was hospitalized for a kidney infection that spread to the blood. While I was there the doctors diagnosed me with MSKD. Images showed thatboth kidneys have the defect. Please let me know what you and your doctors find in regaurds to this, because my doctors have not given me an answer.
    Anonymous 42789 Replies
    • September 30, 2012
    • 04:52 AM
    • 0
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  • MSK might be a renal anatomical complication of primary hyperparathyroidism, or it might be regarded as an anatomic substrate--or rather as a consequence--of prolonged hypercalciuria, regardless of its pathogenesis.More information about MSK: http://www.kidney-cares.org/msk/
    Anonymous 42789 Replies
    • January 17, 2013
    • 09:01 AM
    • 0
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  • MSK might be a renal anatomical complication of primary hyperparathyroidism, or it might be regarded as an anatomic substrate--or rather as a consequence--of prolonged hypercalciuria, regardless of its pathogenesis. More information about MSk: http://www.kidney-cares.org/msk/
    kidneydiseasedoctor 1 Replies
    • January 17, 2013
    • 09:08 AM
    • 0
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  • It is Both diseases primary parathyroid has been linked to MSK they share the same genetic maker/mutation This is VERY new information it firmly established this past year I researched and happily found I too have both disorders also parathyroid hyperplasia along standing with every complication I too have been told It is VERY likely I haveMEN1 GOD BLESS youi. Your search for answers I hope for you!
    tenacious218 1 Replies Flag this Response
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