Discussions By Condition: Kidney conditions

First told angiomyolipoma,now multiple possible cysts HELP

Posted In: Kidney conditions 3 Replies
  • Posted By: debgail
  • December 28, 2007
  • 04:05 AM

Hi everyone! I am new here and am hoping to find someone who might have a similar situation and what to do about it.

Months ago I had a abdominal ultrasound and they found 2"possible angiomyolipomas" in my right kidney. The doc ordered a 2nd ultrasound(because of pain) and it said "mass of unknown etiology" c.t recommended. I had the ct and now it says"Multiple subcentimeter hypodensities measuring appproximately 10 hounsfield units are seen in the right kidney which may or may not represent kidney cysts".
I am now so confused , because I thought ct was supposed to be more accurate at diiagnosis than ultrasound. I gather that they are not sure what is in my right kidney. I mean which is more likely, angiomyolipoma, cysts? AND are they sure that it is NOT cancer since the "MAY" be cysts is mentioned.

If anyone can shed any light on anything of this nature I would really appreciate the info.

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3 Replies:

  • Pray for cysts, though there are no cure, they do not harm you. Pardon the pun, they just are a pain in the arse. Though rarely out side of faimly history, does your any one in your faimly have a history of cysts??
    Anonymous 42789 Replies
    • January 31, 2008
    • 01:08 AM
    • 0
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  • I was diagnosed with a large angiomyolipoma and 2 to 3 smaller lesions in my left kidney 6 mos. ago. I am also a physician, and I can tell you from the research I've done that CT is the better diagnostic test. I also had an MRI to help my surgeon determine if it could be resected and whether he could spare the rest of my kidney or not. I had robotic laparoscopic removal of mine Dec. 2007 and I am now recovered with my left kidney intact, though I'll get regular scans to watch the smaller lesions from here on out. Please get a second opinion with an experienced urologist that is familiar with these, as it will give you peace of mind; if you have a cyst or an angiomyolipoma, it should have definite characteristics that would be hard for anyone to mix up, especially with the latter.
    Anonymous 42789 Replies Flag this Response
  • Thank you Martha,I am glad you are doing well. All the docs I have seen just go by the radiologists report and dont even ask to see films. I leave with my head spinning thinking I already read my report! I wonder why they are so quick just to say well they are either cysts or angiomyolipomata as the reports say. What I need is for someone to say to me FOR SURE thats what they are and no chance they are cancer. I just do not want to relax thinking they are nothing and then in 2 years I am going to die of cancer ya know? I guess I need a doctor like yours or a doctor like you !Lately, I have been having intermitten aching or a jabbing pain in that kidney followed with a quick wave of nausea. Now, if they are cysts/angios is that something that you just have to put up with? ...Since they are benign? I have multiple whatever they are in the centimeter and larger size. I know they are not big like yours. Does it take a long time for them to grow to the size that yours did?Thank you so much for taking the time to reply and for your help! I hope you have continued good health with your kidney!Thank you,Debbie
    debgail 6 Replies Flag this Response
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